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- chrisinpa commented on Scott Adams's article in Osteoporosis, Osteomalacia, Bone Density and Celiac Disease3Optimizing Osteoporosis Screening in Celiac Disease
Bingo......I think I forgot to mention, longer term Fosamax apparently causes bone to become brittle. Yikes! I thought about giving some feedback to the doctor as to why I cancelled getting the prescription and then thought otherwise.- 1
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- JoJoColes commented on Scott Adams's article in Osteoporosis, Osteomalacia, Bone Density and Celiac Disease3Optimizing Osteoporosis Screening in Celiac Disease
I agree 100%, to many side effects. I did exactly the same thing. Power walking, weight bearing exercises and supplements and heathy eating. I was told by a Doctor that the medications for osteoporosis didn’t help you to rebuild bones but instead harden your bones. If you to fall and break a bone it was very difficult to repair.- 1
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- chrisinpa commented on Scott Adams's article in Osteoporosis, Osteomalacia, Bone Density and Celiac Disease3
Optimizing Osteoporosis Screening in Celiac Disease
I'm 77 and since I was diagnosed with Celiac approx. two years ago my doctor recommended a bone scan. It didn't surprise me that the results showed some bone loss. I had gone on a gluten free regimen and hopefully healing has occurred. The doctor prescribed Fosamax and before I got the Fosamax I did a study and found the bad side effects of Fosamax to...- 2
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By Wheatwacked · Posted
Marsh 3b is the Gold Standard of diagnosis for Celiac Disease. Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you, you were having constant symptoms.. Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal". Gluten acts on the Opiod receptors to numb your body. Some report withdrawal symptoms on GFD. I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up. Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings. Stopped at a Wendys on the way home and the next day I was drinking again. 20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary. Back in 1976 my son was diagnosed at weaning by biopsy with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic. At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free. Well, I forgot that promise until I was 63 and my wife 10 years dead. Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back. Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency. It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) in the small intestine in Celiac Disease, and sometimes ttg(3) in skin in Dermatitis Herpetiformus. 'Why' is poorly understood. In fact, it wasn't even known that wheat, barley and rye gluten was the cause. Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So, as part of your recovery you must deal with those deficiencies. Especially vitamin D because it contols your immune system. Virtually all newly diagnosed Celiacs have vitamin D deficiency. There are about 30 vitamin and minerals that are absorbed in the small intestine. With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency. As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were symptoms. Our western diet has many deficiencies built into it. That is the reason foods with gluten are fortified. Gluten free processed food are not required to fortify. Vitamin D, Iodine, choline. The B vitamins, especially Thiamine (B1) run deficient quickly. We only store enough thiamine for 2 weeks so the symptoms of Gastrointestinal BeriBeri can come and go quickly. Magnesium, zinc, etc. each having its own symptoms affecting multiple systems. High homocystene, an indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12. Brain fog symptoms by deficient choline, iodine, thiamine B1. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study -
I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
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But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
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By Scott Adams · Posted
You can still have celiac disease with negative blood test results, although it's not very common: Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/ Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/ Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/ -
By Scott Adams · Posted
I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
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