Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Happy Times! I Feel So Much Better!

rutland

By rutland
in Coping with Celiac Disease

Recommended Posts

rutland Enthusiast
rutland
Posted

Its been a rough go for the past year or so for me. Went gluten free in August and solved my neurological problems with numbness, tingling and weakness. So I thought that a strict adherance to the gluten free diet would be enough for me to improve all the others stuff, like the exhaustion, insomnia, depression, brain fog,back pain, and anxiety. I felt completely hopeless. Until now.

It feels like the black fog has lifted. What I realized is that even though I was strictly gluten free, I was still consuming foods that my body reacted to. I was afraid to limit my diet further but I felt I needed to do something. I knew I had sensitivities to dairy, and egg, but I still consumed them in small amounts because I thought that I needed the variation. Also I noticed I didnt feel right eating the gluten-free baked goods, like the breads and cookies and all gluten-free processed foods. So now that I eliminated dairy, egg, and the baked goods I feel a tremendous shift. I am now just eating meats, fish, poultry, veggies, fruits, and nuts. What a difference!

Im also taking some good supplements. This one supplement Im taking for magnesium is awesome. Its a powdered supplement that you mix with water. It makes me feel more calm and for some reason helps control my blood sugar from dropping.

I finally feel human again. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


marciab Enthusiast
marciab
Posted

congratulations .. It's always good to hear someone is doing well .... :rolleyes: Marcia

ps. I have to stay away from those gluten-free goodies too. Maybe when we are healed .....

Aerin328 Apprentice
Aerin328
Posted

Many who visit this site are in the maelstrom of celiac suffering. Those of us who have gone through it know there is nothing worse - it seems to attack not only your body, but your mind, making you feel like you'll never escape.

But there is hope, the body DOES heal. When the fog lifts and health returns, it's absolutely amazing the difference.

To any celiacs reading this who feel hopeless, do NOT give up hope. Avoid the "poison", be patient, and you will be a new person in time.

God bless,

Christian

Yenni Enthusiast
Yenni
Posted

I have also started to feel better. It took a while for me to figure out I can't handle any Legumes at all and I kept eating legumes for a long time after I stopped with casein and gluten.

I am very paranoid with preemade/processed food in general. Seems I have gotten sick from stuff that shouldn't make me sick. I have had problems eating this corn chips brand (Mission) and they have started to print on their bags that the chips are made on the same machine as casein products. So now I know why.

I eat pretty much the same as you. I seem to be ok with egg and corn. I have tried small amounts of it and so far so good, but I doubt I will ever get big on it. I try to follow Dr Fine's advice.

img006.GIF

I am allergic to nuts though, so I don't eat any of that. I am allergic to a bunch of fruits too so that is a little tricky too.

I am thinking baout getting allergy shots for the nuts and fruit, but I am not sure.

Glad you are feeling better!

I guess I can't get that picture to work, so go here to look at it instead: http://www.finerhealth.com/Lecture/img006.GIF

kbtoyssni Contributor
kbtoyssni
Posted

Congrats! I'm happy you're feeling better.

tarnalberry Community Regular
tarnalberry
Posted

Congrats on feeling better. I know it's hard to give up those last few things, but those subtle effects are often less subtle than we think they are. ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

I am so glad you are feeling better. I had a hard time accepting that I had to do the same thing when I was first healing but I ended up eating basically like you are and am surprised how much of a difference it makes. I still stay away from most mainstream stuff and feel better for it. I never thought I would be happy eating a 'fast food' meal that is fish and veggies wrapped in foil and baked instead of frys and burger. It can be so hard to figure out what our bodies need but when we do what a difference it makes. Congratulations on your hard healing work finally paying off.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

It sounds like you're eating nearly a paleo diet. :) I think it is a tremendous way to eat. Sure, might not be as immediately gratifying as dumping lots of grains, starches and sugar down the gullet, but it pays off in good health! Much easier to control the weight too.

almostnrn Explorer
almostnrn
Posted

Its so very nice to hear a story of recovery. I am very happy for you!!!

bluejeangirl Contributor
bluejeangirl
Posted

Thats wonderful Stef! I feel better when I stay away from grains also. Giving up dairy was very hard though,....I still cheat with that one with a little cheese here and there. If I was just grocery shopping for me I'd literally would just need to shop the perimeter of the store except for olive oil. They've been tellling us to do that for years, and I remember thinking who does that! Its weird how life is.

Gail

sspitzer5 Apprentice
sspitzer5
Posted

Glad you are feeling better! I also gave up eggs, most dairy, and most processed stuff and felt better afterwards. Just wanted to note that someone on the board pointed out that they sometimes use eggs to clarify red wines. So, I just crossed red wine off my list for a while too. :( But, rather not drink it than continue with puffy eyes and headaches.

S

rutland Enthusiast
rutland
Posted
  • Author

This sucks. There is one more thing that I must give up now. Beans. I was out today running errands and when I do that I usually like to bring out some soup in a thermos and have it in between errands. I was really hungry with an empty stomach, and I ate my black bean soup that I love so much. And then WHAM! :blink: A bastard headache, backache, and a pain in my side.

Now I feel overwhemed, I thought I had it all figured out. Hopefully this will be the last item I cross off my list.

Sinenox Apprentice
Sinenox
Posted

This gives me hope.

Creative-Soul Newbie
Creative-Soul
Posted

I'm glad you're feeling better; its good to know that you are successfully navigating this sometimes confusing area and are figuring out what your body needs (or doesn't need right now)! I think most of us here have been / are in the same boat as you are, and we "overstand"!!! :lol:

I've had to shed - in addition to dairy/casein which I've always been allergic to - peanuts, chocolate (not sure what it is in the chocolate, but its a scary reaction!), sugar, shellfish, most processed foods and, most recently potatoes, eggs and soy. I'm a vegetarian, so no meat either; I really can't stomach it. I've also like some of you been limiting my grains recently - not entirely on purpose, though - and am amazed at how much better and lighter I feel. I haven't had beans in a while, actually...humnnn...I wonder if that's another thing to look into?? :blink:

Who knew that this diagnosis would lead to such major life changes? I sure didn't! However I see it as a new lease on life, though at times things may seem overwhelming...

covsooze Enthusiast
covsooze
Posted

Thanks so much for sharing this :) I hope you feel better from the beans really soon.

The tough thing about stopping eating the foods that do this to us is, in my very recent experience (I've just started an elimination diet) the withdrawal effects, as often the things that are worse for us are the ones we're addicted to.

Nancy - I think I'm starting to agree about the paleo diet :)

rutland Enthusiast
rutland
Posted
  • Author
Thanks so much for sharing this :) I hope you feel better from the beans really soon.

The tough thing about stopping eating the foods that do this to us is, in my very recent experience (I've just started an elimination diet) the withdrawal effects, as often the things that are worse for us are the ones we're addicted to.

Nancy - I think I'm starting to agree about the paleo diet :)

Susie, thanks for your book recommendation. I just ordered it from amazon and Im eager to implement new ideas. I want to learn all I can about this, highly misunderstood condition.

Steph

blueeyedmanda Community Regular
blueeyedmanda
Posted

Glad to hear you are feeling much better. Isn't it amazing what a change in food can do? Talk about a whole new light. I know personally I feel like a whole new person.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,954
    • Most Online (within 30 mins)
      7,748
    apage
    Newest Member
    apage
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.