Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats The Point Posting

gfp

Recommended Posts

gfp Enthusiast
gfp
Posted
  • Author
One new poster assualted me. Steve missed it, but it was after one of his posts that she got nasty. I called her on it, she got nastier. The WHOLE THING was deleted starting with Steve's post. One of my posts that should have been deleted wasn't, so you can still see it there and all it says is "deleted post". If that's the thread, Steve, that's what happened. I agree that your post didn't need to be deleted, but the rest did.

Probably but there should be some explanation....

I don't mind if they attacked me and the real thing is they really needed help....

The initial posts were not so understanding, I don't agree with the original poster (obviously) but the responses were a little antagonistic and really as my post pointed out we all have different ideas anyway.... wouldn't the world be boring if we didn't...

IMHO the initial posts should have been moderated ... no one special, just the overall tone ... and its not like the posts were actually wrong.. but they really didn't seem very compassionate to me and this person so obviously needed help not criticism...

They could possibly have been a spammer... they did mention one product by name... but I think as a group we failed them.. :( sorry... I felt like the responses were more of a club or clique reacting rather than the usual helpful posts ... I can see why but IMHO its no different from people who choose to eat "gluten-light" and brush off breadcrumbs or share a toaster etc. just a little more over the edge...

Its my opinion many people are conning themselves over shared kitchens and several other matters but that is thier opinion... I don't agree and I can be a little direct but try puitting yourself in their position... they think they found a cure they want to share and they just get very negative replies instead of being helped?

A similar thing happened over the lyme disease poster... but she was partially correct and apparently did get diagnosed earlier... and probably a few people here actually benefited from what she said?

So once again I think we failed as a group here.... and perhaps we can all learn from that...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 65
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted
Probably but there should be some explanation....

I don't mind if they attacked me and the real thing is they really needed help....

It may have been an oversight. I don't know why your post was removed and my last post wasn't. I don't know how the program works, but maybe when Scott went to delete the posts he was one number off and deleted yours instead of my last post.

It wasn't the original poster that caused the turmoil ... it was a new poster I haven't seen before or since ... she was less sensitive to the original poster and the rest of us for that matter than I've ever seen anyone be on this board.

I'd bet anything that removing your post was just a mistake.

Ironically enough, I never even considered Lyme when the "Lyme poster" was here. :blink: Now, that's a different story, as it's my understanding she got her three warnings and didn't change what she was saying. She thought everyone with celiac has Lyme .... I just think the symptoms are so similar because both are a systemic disease, that many people who have Lyme try the gluten-free diet thinking they have celiac and see little improvement on the diet because they have a totally different problem. The symptoms are a very close match. Then there are the really lucky people like me who have both! ;)

If you saw the argument, you would understand why those posts were deleted. The woman was not the original poster, and she was very insensitive towards her (and you, and me, and everyone else). I don't think the original poster even saw the thread when those messages were there it was so short-lived. Heck, Jestgar didn't even see them! :lol:

Jestgar Rising Star
Jestgar
Posted

Yeah! And I always look for arguments ;)

I also recall that the original poster also said he was raw/vegan so it seems VERY unlikely that he was consuming any gluten anyway.

CarlaB Enthusiast
CarlaB
Posted

No, different thread. This one had to do with family not being supportive. We ALL might be talking about different threads! :lol: The one with a deleted gfp post and several other deleted posts was about family being unsupportive.

Jestgar Rising Star
Jestgar
Posted
We ALL might be talking about different threads! :lol:

:lol: :lol: :lol:

Forum chaos!

blueeyedmanda Community Regular
blueeyedmanda
Posted

the one about the guy curing himself with the cleanse got deleted too

2kids4me Contributor
2kids4me
Posted
She thought everyone with celiac has Lyme .... I just think the symptoms are so similar because both are a systemic disease, that many people who have Lyme try the gluten-free diet thinking they have celiac and see little improvement on the diet because they have a totally different problem. The symptoms are a very close match

I agree, many of the systemic autoimmune conditions are known as "great imitators" in that they all have various vague symptoms - celiac with neurologic signs can mimic MS, Sjogrens and Systemic lupus are similar with their symptoms and can occur togther - making it a diagnostic challenge, Lyme disease is often missed and, yup, lucky people can be undiagnosed celiac when they contract Lyme, etc. ... and depression can accompany ALL of these diseases very commonly

I learn a lot from this board, its all about differing experiences, opinions and knowledge that we share...I think that somtimes the negative replies start happening when someone new comes on board claiming cures, or disagreeing with the long time gluten free ... or perhaps coming in with expectations that aren't met.

We all have to reply like we might meet the person some day, I want to be able to smile and say hello...not run for cover cause of something I said, or walk up to the other person and argue.

I learned long ago, that there is never only one or two ways to solve a problem, everyone's experiences are different and sometimes patients "dont read the book" - meaning they dont have the textbook symptoms OR there are 2 conditions occuring in that patient.

I like all the various threads we have going, but with moe than 12,000 people here, there is bound to be some grumbling.........

sandy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted
  • Author
No, different thread. This one had to do with family not being supportive. We ALL might be talking about different threads! :lol: The one with a deleted gfp post and several other deleted posts was about family being unsupportive.

we could be talkiung about 3 different threads (now Im dizzy) ...

but I guess that's worse????

I think what I'm trying to say is a lot of threads might get started by people we feel are niaeve ... but something is wrong when the whole board gets sucked in....

If one nasty person hijacked that thread then if we all acted properly (and I know non of us are perfect) then it shouldn't really have happened, they should have been moderated straight away and warned...

The problem is by the time Scott steps in the whole thing has snowballed.... so it ends up being a severe pruning because there are insults flying everywhere...

If we just had a moderator delete that one post and put a message it was deleted because it was deliberatly provoking/insulting or whatever then either the person should shut up OR they will keep posting and get banned if Scott thinks they deserve it..

IMHO what happens is people post back and then even mods post back but not as mods... I don't know what a mod can do (using the SW and permissions Scott has defined) but they should be able to delete that offending post before the whole thing gets out of hand...

Secondly poeple who know better and I know are nice people had responded badly to the original poster... IMHO ... and the original poster was the one who probably lost out... I doubt he/she meant to provoke the reaction they did... I think they were just misguided but either way people could have been a little more welcoming IMHO and been more gentle in thier corrections...

From the original post I think the poster did beleive they had cured themselves... and they may well have got rid of the gastro symptoms if they were borderline anyway... but now the poor person is probably damaging themselves without realising it.

If we could have encouraged them to stay and read other peoples experiences we could maybe... just maybe have stopped them being really ill later.. or even getting a terminal disease...

I learn a lot from this board, its all about differing experiences, opinions and knowledge that we share...I think that somtimes the negative replies start happening when someone new comes on board claiming cures, or disagreeing with the long time gluten free ... or perhaps coming in with expectations that aren't met.

We all have to reply like we might meet the person some day, I want to be able to smile and say hello...not run for cover cause of something I said, or walk up to the other person and argue.

Yes ... I wish I put it that way ....

AndreaB Contributor
AndreaB
Posted

As moderators, we can't delete posts or even make a single post invisible. We can only make a whole thread invisible.

Mtndog Collaborator
Mtndog
Posted

Now I'm all curious-= have stomach flu and I'm bored (and hopping mad since I had to cancel a father/daughter trip).

Steve- you're a good man.

CarlaB Enthusiast
CarlaB
Posted
(and I know non of us are perfect)

Speak for yourself. :rolleyes:

:lol::lol::lol::lol:

jerseyangel Proficient
jerseyangel
Posted

It kind of boils down to that Steve happened to post in 2 threads that either were completely deleted, or had certain posts deleated. There were others, also that this happened to. I also posted there, and went in and edited mine to better fit with the "new" thread.

As Andrea (and I, upthread) said, we as mods can't delete a single post. We can only render an entire thread invisable until Scott has a chance to look at it. If a member has a problem with a single post, they always have the option of reporting it.

It's a sort of "damned if you do, and damned if you don't" situation for the mods sometimes. (Sorry, but it is) I've stepped in and warned people for getting rude or inflammatory, and have been criticized for it (or completely ignored). On the other hand, if we let it go and just keep an eye on the situation, we get criticized for not saying something. Posting incorrect information is not against board rules--I'm not saying that incorrect info should not be corrected (and politely, at that), but where to draw the line about warning people is a lot of times subjective and up to the mod reading at that time, unless a board rule has been broken.

I've learned that you truly can't please all of the people all of the time. Some of the responses to that thread were a bit harsh (sarcastic, actually), but I could see where the people posting them were coming from. I can also see the point where maybe we should have given the guy the benefit of the doubt, and tried to set him straight.

Here's the thing--99% of the time these things work themselves out. That's why in most cases, Scott isn't aware that there is a problem until either someone reports it, or he sees that a warning has been issued.

Jestgar Rising Star
Jestgar
Posted

Patti, the moderators on this board are very gentle and I'm not sure a warning from one of them would be perceived as anything to be paid attention to. Maybe you could come up with a standardized sort of phrase: "The moderators have been asked to monitor this post for abusive behavior. Please stop XXXX, return to the original topic, refrain from mentioning XXXX...." Whatever fits the situation.

jerseyangel Proficient
jerseyangel
Posted
Patti, the moderators on this board are very gentle and I'm not sure a warning from one of them would be perceived as anything to be paid attention to. Maybe you could come up with a standardized sort of phrase: "The moderators have been asked to monitor this post for abusive behavior. Please stop XXXX, return to the original topic, refrain from mentioning XXXX...." Whatever fits the situation.

Jestgar,

That is a great suggestion. Would you mind if I showed it to Scott?

Are you saying I need to toughen up? :unsure::lol:

Mtndog Collaborator
Mtndog
Posted
Jestgar,

That is a great suggestion. Would you mind if I showed it to Scott?

Are you saying I need to toughen up? :unsure::lol:

I've been accused of the same thing! :P

Jestgar needs to put us through moderator boot camp!

Jestgar Rising Star
Jestgar
Posted
Would you mind if I showed it to Scott?

Are you saying I need to toughen up? :unsure::lol:

You are welcome to share anything I post.

I think if you were any tougher you'd be a linebacker. What you aren't is pushy. And I kinda like that combination :rolleyes: . Don't change. :)

jerseyangel Proficient
jerseyangel
Posted
I've been accused of the same thing! :P

Jestgar needs to put us through moderator boot camp!

:lol::lol: Bev :lol::lol:

Jestgar Rising Star
Jestgar
Posted
I've been accused of the same thing! :P

How could ANYONE think you aren't tough with that vicious looking wolf in your avatar!

Lisa Mentor
Lisa
Posted

Patti:

I think that you always to a wonder job. You are always to calm voice of reason. :)

We are a diverse group, which always makes it interesting. I can envision a three page debate on the color of the sky. But then, it's always "Carolina Blue" GO TARHEELS!!!

For the most part I think that everyone here conducts themselves in a respectful manner, with the exception of an occasional interloper. The Boards kindness and generosity far outweighs an occasional outburst.

Mtndog Collaborator
Mtndog
Posted
How could ANYONE think you aren't tough with that vicious looking wolf in your avatar!

Jestgar- Is this Better? Hit refresh.

Note: This avatar is only temporary. A cute puppy will return shortly.

blueeyedmanda Community Regular
blueeyedmanda
Posted
How could ANYONE think you aren't tough with that vicious looking wolf in your avatar!

Patti-is he a Maine Coon by some chance?

jerseyangel Proficient
jerseyangel
Posted
Patti-is he a Maine Coon by some chance?

Amanda--No, he's a "domestic longhair" :D I just love him to bits, though!

Bev--I was looking for Angus--where'd he go :unsure: ?

Don't mind me, I get confused easily :huh:

Jestgar Rising Star
Jestgar
Posted

Much better!

If you can make a little girl scream like that I'm really scared of you! :lol:

jerseyangel Proficient
jerseyangel
Posted
Much better!

If you can make a little girl scream like that I'm really scared of you! :lol:

Yea--come on Bev--give! What did you do??? :lol:

Mtndog Collaborator
Mtndog
Posted
Yea--come on Bev--give! What did you do??? :lol:

Told her to scream- it's my 3 year old niece Olivia and we have screaming contests (yeah- my sister LOVES that!). She has the highest pitch, most piercing scream I have EVER heard. When she was about a year and a half my dad and I took her to Ben and Jerry's and she got mad at her ice cream because it was too hard to eat so she let out this blood-curdling screech.

It was so bad that the guys behind the counter burst out laughing.

She also screamed through my wedding vows- we have pictures of my sister holding her with her hand over her mouth. She cracks me up!

I must say, you guys have cheered me up immensely today! :D:wub:

Angus will be back shortly. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      13

      Top Brands of Gluten-Free Canned Chili

      While it seems unlikely to contain intentional gluten ingredients--and based on the ingredients you provided, this canned Wendy's chili appears to be gluten-free, but with a very important caveat: it cannot be considered certified or guaranteed gluten-free due to the potential for cross-contamination and the ambiguous nature of "natural flavors."
    2. Scott Adams
      - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Going for upper endoscopy today

      Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
    3. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Guinness, can you drink it?

      I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have...
    4. maryannlove
      - maryannlove commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      13

      Top Brands of Gluten-Free Canned Chili

      I have same question as trents above. After I mentioned how much I liked Wendy's chili, a neighbor gave me a can b/c I didn't know could buy it in a can. Is gluten free in Wendy's restaurant, but can doesn't say gluten free so afraid to eat it. (Can says provides 50% Daily Value of protein, another plus.) Below are ingredients on can. Would the experts...
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Gluten free nuts

      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,271
    • Most Online (within 30 mins)
      7,748
    NancyWM
    Newest Member
    NancyWM
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Going for upper endoscopy today

      By Scott Adams · Posted

      Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have no issues with Daura Damm, but those who are super sensitive might.
    • Aretaeus Cappadocia
      Gluten free nuts

      By Aretaeus Cappadocia · Posted

      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website for a drop location in your area. Each drop location has a local volunteer(?) coordinator who coordinates with the local customers. I go to a drop 4-5 miles from my home that delivers every 2 weeks. We seem to range from 8-18 customers at a given delivery. The downside of the drop is that you have to be there when they say. They give you a few days notice of the precise time, though, and they are punctual. Their pricing relative to other vendors for various products ranges from best price to overpriced, so you have to shop and compare. Quality is mostly good but once in a while you get a dud - however they've been very responsive to giving me a credit on the few occasions when I've complained. In my opinion, they are not as transparent about gluten as they could be. Some products are labeled "gluten free" and so far I trust that. Many products are labeled "Azure Market products are re-packaged by Azure for your convenience in a facility that meets Food Safety Modernization Act (FSMA) standards, including an approved allergen control program." I've corresponded with them over this and they all but say this means gluten free. I've come to trust this, with a little nervousness, but I wish they would be more explicit. They also sell a lot of gluten-containing products. Frankly, I think they are overlooking a business opportunity to become a trusted source for the gluten-free community by not being more clear about gluten. Among Azure products I've purchased are "Walnuts, Baker's Pieces, Raw", "Cashews, Raw, Large White Pieces, Organic" and "Missouri Northern Pecan Grower Pecans Fancy Native, Raw, Halves". The walnuts and cashews were very good and the pecans were fabulous. For almonds, I've been buying Blue Diamond unsalted when they go on sale (mostly from Safeway). The salted ones are probably fine too but the flavored ones I avoid now that I am gluten-free. I also buy products including nuts from CostCo (cashews, shelled pistachios). Their nuts usually contain a "made in a facility that processes wheat" statement, which is scary. I've contacted customer service about various Kirkland products and they will usually give you a response <<for a specific lot>> whether it really was made in a wheat facility (sometimes yes sometimes no). For the "Kirkland Signature Fancy Whole Cashews, Unsalted, 40 oz" and "Kirkland Signature Shelled Pistachios, Roasted & Salted, 1.5 lbs", I got a "safe" answer and I ate them. I got an "unsafe" answer once for "Kirkland Signature Fancy Whole Cashews with Sea Salt, 2.5 lbs" and "Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs" and I don't look at these anymore. Again, these answers were given for specific lots only. They will accept an unopened return for cash if you find out you don't want it. Costco also sells "Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs" that are labeled gluten free. My celiac kid eats them all the time. I pretty much only eat food that I prepare myself from scratch. My celiac symptoms are not that overt, so I can't say for certain I could identify a glutening. However, my antibody levels dropped 25 fold (into normal range) since my dx earlier this year. Hope this helps.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to switch " medical team" because I was told I wasn't celiac though I am gluten-free since 1994! I am also positive HLA-DQ2. I think doctors down play it because on quest lab work it states " However 39% of the U.S  general population carry these HLA-DQ variants, as a consequence, the presence of HLA-DQ2 or  DQ8 or both variants is not perse diagnostic of celiac disease". Hintz the down playing of celiac disease......This needs to change because doctors seem to down playe it because when I showed the past 2nd and 3rd  doctors that I waisted my time on this year showed my that line and absolutely down played it.4th pcp this year.I live in Patterson California and would love for a few of us to go to mayors office and make this disease heard
    • Midwesteaglesfan
      Going for upper endoscopy today

      By Midwesteaglesfan · Posted

      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.