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Sad News


covsooze

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covsooze Enthusiast

I've had another miscarriage :( This time at 9 weeks. I had a scan just as it was starting, and there was no sign of a baby, just an egg sac - like with my first miscarriage. This is my third one now, so I'm being referred for investigations. If anyone has any good links on the subject for me to read, I'd appreciate it. It makes me appreciate my darling son even more now, I think he's a miracle.

Susie x


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darlindeb25 Collaborator

My thoughts are with you Susie.

nikki-uk Enthusiast
I've had another miscarriage :( This time at 9 weeks. I had a scan just as it was starting, and there was no sign of a baby, just an egg sac - like with my first miscarriage. This is my third one now, so I'm being referred for investigations. If anyone has any good links on the subject for me to read, I'd appreciate it. It makes me appreciate my darling son even more now, I think he's a miracle.

Susie x

AH Susie - I'm so sorry.

kevsmom Contributor

Susie - I'm sorry for your loss.

jerseyangel Proficient

Susie, I'm so very sorry.

Belinda Meeker Apprentice

Susie x,

My thoughts and prayer r with you !

I sure hope things work out for you for the best and will keep you in my prayers.

Belinda

blueeyedmanda Community Regular

I'm keeping you in my thoughts Susie


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Guest micah

I'm so sorry Suzie,

There is a little information on this website. You may have already seen it.

https://www.celiac.com/st_prod.html?p_prodi...-54107278180.2f

Teacher1958 Apprentice

Suzie, I am so sorry for your loss.

Brenda

mouse Enthusiast

Susie, I am so sorry.

melrobsings Contributor

I'm so sorry for your loss. I'm going to an fertility doctor and he said with Celiacs it's scary and we can be up to 40% infertile. I see you don't live in NYC, but if you are ever in the area I'm more then happy to give you his number, he's WONDERFUL!!! I wish you all the luck and health in the world!

AndreaB Contributor

I'm so sorry Susie. :(

Tephie Apprentice

Susie, my thoughts and prayers are with you.

Stephanie

Lisa Mentor

Susie,

I am so sorry for you three losses. I know how emotional it can be. My daughter found out she miscarried this past week.

You may remember, there was a thread here some time ago regarding miscarrages. I was amazed how many of us had suffered them.

I hope you can find some answers.

angel-jd1 Community Regular

I can't imagine the emotions you are going through right now. Take some time and take care of yourself right now. This has to be emotionally and physically hard for you. My thoughts are with you.

-Jessica :rolleyes:

Judyin Philly Enthusiast

Susie

So sorry

I had one before and one after my son.

Nothing makes it easier.

please know if care.

Will send a note from Alice Blast.

Judy

lovegrov Collaborator

I'm so sorry.

richard

Fiddle-Faddle Community Regular

Oh, I'm so sorry. :(

{{{{{}{{{{{HUGS}}}}}}}}}}

Michi8 Contributor

I'm sorry to hear of your loss. :(

Michelle

horsegirl Enthusiast

Susie,

I'm sorry to read of your experiences & losses. I don't have any wisdom for you, except

to make sure you take care of yourself as much as possible right now. Do something extra

special for yourself, & give your child a great big hug! Good luck in whatever lies ahead.

My thoughts & prayers are with you and your family.

covsooze Enthusiast

Wow...I'm overwhelmed by all your support and love. Thanks so much everyone, it means a huge amount.

Susie x

little d Enthusiast

Susie

I am sorry for you lose, my daughter and I will keep you and you husband/family in our night, night prayers.

donna

2Boys4Me Enthusiast

Susie, I'm so sorry for your loss.

GlutenFree-Amy Newbie

I am so sorry for your loss. I will keep you in my thoughts and prayers.

stef-the-kicking-cuty Enthusiast

Susie, I'm very sorry for your loss. I know, nothing, that I will say or do, will make it any easier for you. I just hope, one day you will have the chance to have another healthy baby and I will keep you in my prayers.

Stef

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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