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What Do You Do For A Living?

Bosque

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Bosque Rookie
Bosque
Posted

As many on here, I was misdiagnosed with Celiac

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quietmorning01 Explorer
quietmorning01
Posted
What do you for a living?

Hi, Bosque,

My first thought is 'you mean.. . NOOOW?' Currently I work for a software company - part time. It's a new job - I've asked what my current job title is. . .but no one seems to know. . .heh. . gopher, maybe? **laughing** I work at home two days a week and work in the office three, and pretty much can write my own hours - yeah, it fits me very well in my getting older age.

:)

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

I teach first grade. Let me tell you, I absolutely love, love, love my job but it's not the greatest job to have when you are a Celiac and you have accidently injested gluten! You can't just run to the rest room when ever you need to. When I am so tired I want to cry I have to force myself to have enough energy to handle 24 six and seven year olds. Parents are always making goodies for us and I can't eat any of them. When PTO orders pizza for us for lunch I can't have it. But, there is always a funny side. I teach cardinal directions with the sentence "Never Eat Soggy Wheat" (North, East, South, West - get it?) and my class gets a kick out of reminding me that I should never eat wheat, even if it isn't soggy. :lol:

whitball Explorer
whitball
Posted

I'm a case worker and work with adults with developmental disabilities. I cover two counties and trust me I know where every bathroom is in each part of the counties that I cover! Being a celiac has it's challenges, especially when I attend conferences. Most do not have a gluten free menu, so I often have to bring my own food. My clients often struggle with understanding my food restrictions, as they often offer their own snacks or food when I visit their homes.

Lisa16 Collaborator
Lisa16
Posted

Hi Bosque!

I am a professor at a large state university. This is the ideal job for a celiac-- you only have to physically be in one place for a couple of hours each day-- the rest of the time you can run to the bathroom all you like. Plus you get the summers off and a long holiday break. Plus the occasional sabbatical. If I didn't have this job, I would never have survived 23+ years of misdiagnosis.

Even so, there were times (before diagnosis) when I had to run out of class-- even in the middle of student presentations. Not good. Funny-- it always happened in the class after lunch. I would eat a bagel.

Now it happens only from time to time and I have many fewer sick days-- I used to get the most god-awful headaches.

JennyC Enthusiast
JennyC
Posted

I worked as an organic chemist for a while, and now I'm back in school studying clinical laboratory science, meaning that I'll be running all of the patient lab tests for hospitals, clinics, and/or reference laboratories. I am counting down the days until graduation... ;)

nasalady Contributor
nasalady
Posted
As many on here, I was misdiagnosed with Celiac
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mushroom Proficient
mushroom
Posted

I was self-diagnosed after I retired; used to be a legal assistant. Sure wish at least one of the doctors I consulted in my lifetime had had the presence of mind to consider celiac--would have saved much suffering and permanent after-effects.

blueeyedmanda Community Regular
blueeyedmanda
Posted

I work in a large hospital as a Cancer Research coordinator. Pre-celiac and up till a year after the diagnosis I worked in the central lab here as a tech running blood work and other specimens on the patients. Interesting but this was a better option for me.

hermitgirl Contributor
hermitgirl
Posted

I am a hairstylist and work at a health club. Love doing hair, club pays the bills. Going to school online. Was originally aiming towards communications, now thinking going about nutrition.

Jamie Contributor
Jamie
Posted

Substitute teacher by day... personal trainer by night....

but... I'm the opposite of ALWAYS having to go to the bathroom if I injest gluten... that's my problem.. so I guess I don't really have to worry about that.

I'm very careful with what I eat when I'm at work(natural foods.. like fruits and salads) .. but if I do injest gluten.. I feel bloated and uncomfortable all day.

DakotaRN Newbie
DakotaRN
Posted

Hi Bosque,

I am a Registered Nurse at a long term care facility. Love my job on the most part.

elye Community Regular
elye
Posted

I teach English as a Second Language, mostly contract work for the embassies here in Ottawa. Since my celiac diagnosis four years ago, I find I am often bringing the subject of diet and nutrition into the conversational/vocabulary practises in my classes. What strikes me profoundly is how relatively ignorant North America has been in regards to the nature of this illness. I mention celiac disease to French, Italian or Spanish diplomats, and they all know about it, discuss it quite easily (minus some grammatical errors!) and talk about how common it is in their countries. We've got a long way to go. . . . ....

prayin4achange Newbie
prayin4achange
Posted
Substitute teacher by day... personal trainer by night....

but... I'm the opposite of ALWAYS having to go to the bathroom if I injest gluten... that's my problem.. so I guess I don't really have to worry about that.

I'm very careful with what I eat when I'm at work(natural foods.. like fruits and salads) .. but if I do injest gluten.. I feel bloated and uncomfortable all day.

I'm glad someone else has said that have the C problem and not the D. I began to feel a little alone haha.. it might be a little less urgent, but extremely painful and uncomfortable none-the-less!

To answer the question, I work part-time as a clerk in a medical billing office. My job is very stree-free and without much responsibility. I did an after school elementary program last year and almost died. I could never do it all day!

Jenn

julirama723 Contributor
julirama723
Posted

I'm a K-12 music teacher. This makes it INCREDIBLY difficult when I'm glutened or sick, as I don't have an aide and have a room full of expensive (and potentially dangerous!) equipment in which I can't leave children unsupervised. I also teach 9 classes a day, with few breaks, which means I am stuck in my room. When I'm glutened, I'm usually stuck in the bathroom at HOME, totally out of commission.

The kids are very sweet though, like one of the other posters had said. They know that I can't eat wheat. One day during snack time for an after-school music class, I reminded the students to clean up their areas and wash their hands well (the snack was crackers, I was practically holding my breath the whole time.) and that they couldn't touch any of the instruments. One girl forgot and touched a doorknob. She immediately said, "Oh Miss B. I am so sorry! I do not want you to get sick!" and she immediately grabbed Clorox wipes and wiped EVERYTHING she even remotely came into contact with. A few of the other students helped her! That was the cleanest my room has been in ages... :)

oceangirl Collaborator
oceangirl
Posted

It's so interesting to see what everyone does to make a living. I've been a professional actor (stage, film,TV and radio), director and teacher of acting at all levels for 35 years.

For the past 8 years I have also been a Special Educator in a behavioral program for students with emotional disabilities in a public high school whose goal is to ameliorate emotional and behavioral issues so students can succeed in their classrooms and in the world! Also not a good job to have when you've been glutened- you cannot tell Tammy to have her emotional breakdown at a later time because you really need to go hang out in the bathroom for a few blocks! Tra la la... fun!

On the up side: all my big, "bad", intense and troubled boys and girls all know what Celiac disease is and what the gluten molecule is and protect me fiercely from the evil gluten! They are great and I love working with teens even as I dislike all the labels ascribed to some of them.

Take care and good health to all,

lisa

songstressc Apprentice
songstressc
Posted
I'm glad someone else has said that have the C problem and not the D. I began to feel a little alone haha.. it might be a little less urgent, but extremely painful and uncomfortable none-the-less!

To answer the question, I work part-time as a clerk in a medical billing office. My job is very stree-free and without much responsibility. I did an after school elementary program last year and almost died. I could never do it all day!

Jenn

I belong to the c club! i too was wondering! Previously teacher - on a sabbatical ? or life change

Roda Rising Star
Roda
Posted

I have been an X-ray/CT technologist for 14+ years and I also did mammography for 15 months. I am currently working 12hr night shifts to accomidate my boys' school schedule. I am contemplating going back to school, thinking about nutrition, or getting back into mammography. The cafeteria is not open at night so I bring all my own food. Some of my coworkers balk and can't imagine eating the food I eat. I had a thread going early on when I was diagnosed about that. Here is the link: https://www.celiac.com/gluten-free/index.ph...ic=53774&hl

FYI, if anyone is wondering, alot of the people still look at my food as weird and won't try it, but I do have a few friends that love it and can't wait to see what I bring in next for them to try. ;)

ang1e0251 Contributor
ang1e0251
Posted

I'm a florist with my own shop and we have a coffee bar in the shop also. Makes it easy for me when I'm the boss! But..a couple of times when I was alone, I was in the bathroom when I heard the bells on the door tinkle. A customer!! Kind of embarrasing but what are you going to do?

My assistant is great and everyone around me is very understanding with food. Flower shows were a challenge but now I just take my own food and don't worry about it.

Before we bought the shop and I was dx'd, I worked at a Pizza Hut!! Only 3 days a week but that's when my symptoms were starting to really crank up, no wonder.

Things are much better now and I'm looking forward to many years of good health. Now if we can just get the economy back on track.

maile Newbie
maile
Posted

Financial Planner, in front of clients all day long, makes bathroom trips interesting!! (I'm quite honest with my clients, trust is a big part of my job and I've found it best to be up front with my "problems" )

daveray Newbie
daveray
Posted

Hi

This was an interesting topic. It shows the diversity of this disease.

I am a psychologist.

Salax Contributor
Salax
Posted

Definitely interesting. I work at a University inside Tech Services at a Helpdesk. AKA, a computer geek.

Kind of interesting for a woman. My hubby gets a kick out of it because he brought me into the field about 9 years ago and then got out and I stayed in. B)

elonwy Enthusiast
elonwy
Posted

I'm a video engineer for a post production company. My office is right next to the bathroom :). We get fed breakfast and lunch every day and dinner if we stay late and they are really good about making sure there is stuff for me to eat. They even stock the freezer with gluten free waffles and Amy's meals, its pretty awesome.

I just started night school to finish my degree from way back when, looking at going into astrogeology. Seems like a huge random change, but I got really sick the last time I was in school and dropped out....then needed to be working and making money. Now I'm feeling good and have energy and great support at home, so back to school! Figuring out the vitamin D deficiency has helped make that possible as well.

Bosque Rookie
Bosque
Posted
  • Author

Thanks everyone for your input. Being on sabbatical with Celiac

quietmorning01 Explorer
quietmorning01
Posted
Thanks everyone for your input. Being on sabbatical with Celiac

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  • Recent Activity

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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