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- trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Is this celiac?
Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So... -
- klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis10Help I’m cross contaminating myself,
I have a lot to learn! Thank you -
- DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff30Does anyone here also have Afib
I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. ... -
- Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Is this celiac?
The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to... -
- Serena Rodriguez replied to klmgarland's topic in Dermatitis Herpetiformis10Help I’m cross contaminating myself,
You've already identified the issue. You cannot have ANY gluten in your home EVER. It's not optional for everyone who lives with you to have a dedicated gluten free diet! And anyone who comes to visit you cannot bring anything gluten-containing into your home. All gluten containing items need to be thrown away, beauty/bath products included. All pots/pans...
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Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe? -
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I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib. He ended up in the hospital in August 2025 when his A Fib would not convert. He took the maximum dose of Flecainide allowed within a 24 hour period. It was a nightmare experience! They took him into the ER immediately. They put in a line, drew blood, did an EKG and chest Xray all within minutes. Never saw another human for 6 hours. Never got any results, but obviously we could see he was still in A fib by watching the monitor. They have the family sign up for text alerts at the ER desk. So glad I did. That is the only way we found out that he was being admitted. About an hour after that text someone came to take him to his room on an observation floor. We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room. It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk. They said someone would be in and finally a nurse arrived. He was told a hospitalist was in charge of his case. Finally the NP for the hospitalist showed up and my husband literally blew his stack. He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there. They got an EKG machine and confirmed it. She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT. He agreed. The echo showed everything fine, just as it was at his annual check up in June and there was no DVT. A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound. It both triggers A Fib and prevents the Flecainide from working. His conversion coincided with the last dose of antibiotic getting out of his system. So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib. This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa. My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low. Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible. The pradaxa gave him a full body rash! He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's. He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil He suggested he take Black Cumin Seed Oil for inflammation. He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation. Oh and I forgot to say the hospital bill was over $26,000. Houston Methodist!
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The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions: 1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten? When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
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By Serena Rodriguez · Posted
You've already identified the issue. You cannot have ANY gluten in your home EVER. It's not optional for everyone who lives with you to have a dedicated gluten free diet! And anyone who comes to visit you cannot bring anything gluten-containing into your home. All gluten containing items need to be thrown away, beauty/bath products included. All pots/pans, dishes, utensils need to go through the dishwasher. Anything too porous or delicate for the dishwasher needs to be thrown away and replaced. Your toaster needs to be thrown away and replaced. Your oven, stovetop, and all surfaces throughout your home (bedrooms and bookshelves too) need to be thoroughly washed. All of this needs to happen in the same day because you risk contaminating other parts of your home if you do only part of the job. There's no such thing as a "safe" amount of gluten in your home. Not putting your foot down means greater risks into the future for vitamin deficiencies, diabetes, damage to your thyroid, cancer, rheumatoid arthritis, and more.
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