Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seriously?

celiacgirl1982

Recommended Posts

JNBunnie1 Community Regular
JNBunnie1
Posted

Wait, Cheetos brand cheetos are gluten free? I didn't know that! See, we ll learn something new every day!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 70
  • Created
  • Last Reply
Pac Apprentice
Pac
Posted

"You can eat THAT, it's all natural, no chemicals in it."

"It's CHEESE cracker, you can surely eat those. I bought them for you."

Just recently my sweet mother-in-law, who just doesn't get the diet at all, brought back a bag of flour tortillas from the store asking: "You can eat those, no? It's just tortillas."

"But that is so DANGEROUS to eat gluten-free!" (I think because I would lack protein, but it was a few year ago so I don't remember.)

Some online health food store: "Gluten is dietetic fiber that is essential for human body. People that have to unfortunately avoid gluten cannot obtain enough dietetic fiber from natural food to make up for the lack of gluten in their diet and therefore need to buy special food supplements..."

Another invaluable piece of online information: "Due to lack of important vitamins and nutrients in gluten-free foods, people with celiac diet have to periodically eat gluten to avoid deficiencies." The missing nutrients included protein, fiber and almost all vitamins. I would almost swear I saw even B12 in the list.

genieb Newbie
genieb
Posted

I got a little bit of that at the beginning but not much. No one ever says anything like that anymore. Their mouths are usually too full eating my cooking to say anything. I entertain gluten free and send gluten free food to Bob's pot lucks at work and everyone loves it. Over the years I've learned it just easier to take care of ourselves than to expect others to understand.

Googles Community Regular
Googles
Posted

I haven't heard yet. But I am waiting to hear: "I got that gluten free pizza from Domino's for you so you can eat with us."

My dad is trying to convince me that my new work which makes food for a residential program will be able to feed me gluten free without making me sick. After I let him know that my boss stated that one of the benefits of working there was getting a free meal every day. Apparently I haven't clearly explained how easily cc can happen. Bah on gluten.

deb445 Rookie
deb445
Posted

My Mother-in-law cornered me last summer, and asked, "When are you going to let the boys eat REAL food?"

This, coming from a woman who is overweight, diabetic, epileptic, and has chronic "phantom gall bladder" attacks.

ElseB Contributor
ElseB
Posted

Someone tried to tell me last week that pregnancy was a cure for Celiac Disease. This person supposedly had a friend who had Celiac, and then she got pregnant, had a baby and now she can eat gluten with no problems at all! So she suggested I should try getting pregnant "because you never know, it just might work". Had I been thinking faster, I should have asked her if pregnancy was also a cure for stupidity in which case she should perhaps give it a try!

Skittles Enthusiast
Skittles
Posted

UGH reading these are just making me frustrated all over again! haha I have experienced most of them already and I have only been diagnosed and gluten free for a little over 2 months. I have a friend who is a "self diagnosed" celiac even though the tests said she was not. and I know, some people do get tested and it says they are not celiac but they do experience the same problems as celiacs. BUT basically the only things she doesn't eat is like bread, pizza, and some of the obvious foods and she complains about how it is so difficult. and my other friends see how strict I am being and think that I am over reacting and that it must really not be that bad because look at all of the things Amanda can have! And people also don't seem to understand food sensitivities. I have certain food sensitivities and they are like, "well it doesn't contain gluten" and "I think you are just being too conscious." AGHagdfl NO, do you think I would really be putting myself through this if I really could have a burger!! I would love to have a bowl of pasta but I know it will kill me for a week or more!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lfrost Explorer
Lfrost
Posted

We went to the Costco food court and I asked the gal if their Very Berry Smoothies were gluten free. She told me she didn't think so because they have sugar. :blink:

psawyer Proficient
psawyer
Posted

We went to the Costco food court and I asked the gal if their Very Berry Smoothies were gluten free. She told me she didn't think so because they have sugar. :blink:

Siiigh. Not everyone can grasp the difference between gluten and glucose. Next, we'll be hearing that maltose and maltodextrin contain malt.

LeahBanicki Rookie
LeahBanicki
Posted

reading this is such great therapy... Thanks guys for cheering me up.

Skylark Collaborator
Skylark
Posted

Siiigh. Not everyone can grasp the difference between gluten and glucose. Next, we'll be hearing that maltose and maltodextrin contain malt.

Don't forget the confusion with monosodium GLUTamate. :rolleyes: Been told I couldn't eat something because of MSG on the label too.

beebs Enthusiast
beebs
Posted

My neighbor A NURSE said...Oh, I could never do that, I love bread too much. :rolleyes: :rolleyes: :rolleyes:

I said that to my mum, it has come back to bite me in the arse now though. Doh! Karma at it's best.

heathenly Apprentice
heathenly
Posted

These have been making me laugh. Just being gluten-free for two+ weeks, I heard some of the funniest things. One of my close friends has decided, after hearing my list of symptoms on gluten, that she too has a problem tolerating gluten. She said this while shoving two tacos and a burrito in her mouth. It's amazing how many people think they too have a problem with gluten, and they want me to tell them everything about what can and can't be eaten, symptomology, etc. I had to learn from Google, please check there. I'm no authority.

Other people have been very sweet, telling me about this-or-that gluten-free product, or even buying products for me to try. One of my foodie friends has even taken it upon herself to try out gluten-free recipes and prepared foods, to make sure they're palatable. That makes up for the person last week who, at an office potluck, pointed to each individual dish and said, "Can you eat that? Can you eat that?" No, I can't. Thanks for rubbing it in.

Perhaps this is my karmic payback for telling lactose intolerant people, "I would DIE!"

dani nero Community Regular
dani nero
Posted

friend: "tell me how the diet you're doing works, I also need to lose weight"

me: XD

another friend sent me some speech by some .. priest or shek about repelling devils which cause unexplained illnesses from the body.

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

Someone tried to tell me last week that pregnancy was a cure for Celiac Disease. This person supposedly had a friend who had Celiac, and then she got pregnant, had a baby and now she can eat gluten with no problems at all! So she suggested I should try getting pregnant "because you never know, it just might work". Had I been thinking faster, I should have asked her if pregnancy was also a cure for stupidity in which case she should perhaps give it a try!

If this were proven to be true I think there would be a population boom haha and I'll lead it off! But until then I think I'll stick to being gluten free ;)

notme Experienced
notme
Posted

my friends are always quizzing me. yesterday, it was about soda.

friend: is soda gluten free?

me: i don't know. i don't drink soda.

friend: so you never checked?

me: nope. i wouldn't drink it anyway, so, i don't care.

friend: man. that would suck if soda had gluten (sympathetic look)

me: not for me :)

and i am also not a big junk snacker. i sure miss CRACKERS (writing a song: Ode to Ritz lolz) but i never was a chip eater or pretzel/cheeto snacker. but i am constantly having bags of snacks thrust at me: "can you eat this???" i read the bag and say: yup. and they're all happy and say: "here ya go, then, you can eat it!!" i don't *like* them. i wouldn't eat them even if i didn't have celiac. they mean well........

Adalaide Mentor
Adalaide
Posted

That just reminds me of something totally random. So, sometimes when you get up in the morning (this is especially true for smokers) you have this... taste in your mouth that is just yuck. It's kind of dry and just generally icky. I used to joke that it tasted like I licked a rhino's butt.

friend: can you have this?

me: well... I could

friend: here ya go! (gives rhino)

me: :blink:

Just because it's gluten free, doesn't mean we want to eat it. There are some things I just have no interest in eating.

bigbird16 Apprentice
bigbird16
Posted

Mom: I made this pasta special for your dad. You should try some.

Me: I can't. It's pasta.

Mom: What do you mean?

Me: I can't eat wheat, remember. Pasta is made from wheat.

Mom: It is? (moment of silence) How do you know?

Me: Look at the box, Mom.

Mom: (ignores box) Well this is special pasta. It's low carb. It's high in protein, low in carbs. All the bad stuff is taken out.

Me: It's still wheat. (examining box) And it has extra wheat gluten added.

Mom: Just a bite. For me. Just one.

Me: (roll eyes) I'm not hungry. And when I am I'll make my own rice noodles.

BTW, my mom is a nurse. We have the same discussion about pasta or bread almost every time I see her.

celiacgirl1982 Newbie
celiacgirl1982
Posted
  • Author

Don't forget the confusion with monosodium GLUTamate. :rolleyes: Been told I couldn't eat something because of MSG on the label too.

Clearly they are thinking of monosodium GLUTENate. ;-)

Monklady123 Collaborator
Monklady123
Posted

Re: the "glucose" and "gluten" confusion...

Me calling a local pizza place where we always used to get pizza:

Me: Hi, could you tell me if you have a gluten-free pizza?

Guy Answering the Phone: Ummm what?

Me: Do you offer a gluten-free pizza?

Guy: umm... glucose?

Me: Thank you. Bye.

:ph34r: :ph34r:

VydorScope Proficient
VydorScope
Posted

I feel a bit bad reading this thread, because all your posts are pretty funny! :unsure: But must have been really frustrating. We have not had that problem yet, most people are very understanding. Of course we bring all our own food, and I am NOT known for being gentle or soft on anything so just might be that they are afraid of me. :) (did I mention my entire family will become black belts in November? Yeah... that might help too LOL)

As for the comment about "flour" and "white bread" many a year a go... before becoming a father or a husband had you asked me the difference between "whole wheat bread" and "white bread" I might have said "one is made with flour, and one is made with whole wheat." Flour to people with out food issues is an ingredient. Its listed on recipes as "1 cup flour" and so on. So those questions do not surprise me, even if they are funny now.

heather806 Rookie
heather806
Posted

As for the comment about "flour" and "white bread" many a year a go... before becoming a father or a husband had you asked me the difference between "whole wheat bread" and "white bread" I might have said "one is made with flour, and one is made with whole wheat." Flour to people with out food issues is an ingredient. Its listed on recipes as "1 cup flour" and so on. So those questions do not surprise me, even if they are funny now.

So true! All most people know is that whole wheat bread is supposed to be healthier than "regular bread." When I told one of my coworkers I was diagnosed with Celiac she said they were ordering pizza the next day and she was excited to tell me they have whole wheat pizza that I could eat. :) It was very sweet that she was excited about finding something she thought I could have, she just didn't quite understand what gluten is.

I never knew it could be in soy sauce, bbq sauces, canned chicken broth or things like that...never crossed my mind before being diagnosed.

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

So true! All most people know is that whole wheat bread is supposed to be healthier than "regular bread." When I told one of my coworkers I was diagnosed with Celiac she said they were ordering pizza the next day and she was excited to tell me they have whole wheat pizza that I could eat. :) It was very sweet that she was excited about finding something she thought I could have, she just didn't quite understand what gluten is.

I never knew it could be in soy sauce, bbq sauces, canned chicken broth or things like that...never crossed my mind before being diagnosed.

Isn't it just amazing the places you find gluten once you are forced to stop and look? I would never have guessed any of those either before!

slee11211 Apprentice
slee11211
Posted

My son's friend's mom: " How are you? I know you haven't been well lately" Me: "Getting better, thanks. Found out I was full blown Celiac, so no more gluten for me. It's been really hard to get used to." "Really!? Because I went totally gluten free to get 'bikini ready' for our trip and it's SOOO easy!" Blank stare. (in my head: "Assholes wear bikinis??") Sigh. Celiac makes me cranky.

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

Blank stare. (in my head: "Assholes wear bikinis??") Sigh. Celiac makes me cranky.

Heehee I just LOL'd!! Love it! ?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.