Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Get A Flu Shot?


luvs2eat

Recommended Posts

luvs2eat Collaborator

I've never had a flu shot. I go thru this every winter... wondering if I should have one or do what I've always done... become OCD about handwashing and trying hard not to touch my face.

We were all allergic to eggs when we were babies... so I sort of thought I shouldn't have a vaccine that's been incubated in eggs. But I had all the vaccinations kids have... and those would have been incubated in eggs too, right? Even my sister, who was the most allergic of all, gets flu shots w/o incidence. No one in my family has celiac but me.

Then I wondered that because I have an autoimmune disorder and was tested a few years ago for LUPUS after a high ANA (which turned out to be nothing)... I'm wondering if I should NOT have one because of autoimmune issues?

My GP doesn't give me the answers/reasoning I believe my fellow celiac sufferers will give me.

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I never have never gotten a flu shot, and I have never gotten the flu. I am fanatical about washing my hands, and I keep my face away from people, even healthy people, so they don't breathe their germs on me. I may have mentioned before, I am a bit OCD. :lol: I don't like doctors and avoid them like the plague (or flu, as the case may be.)

I may be playing with fire, but so far, so good. Maybe when I am old(er) and sick(er) I'll consider it. But for right now I will continue doing what I've been doing.

Alwayssomething Contributor

I have gotten a flu shot for years, but last year when I was having all my DH issues and still undiagnosed I was afraid too and when I asked my Dr. he told me I should be ok and then ended it with "don't make a liar out of me now" so I chose not to get one. In the last two years I have added 2 autoimmune diseases to my lifestyle and I always have an elevated ANA so Lupus and a few others are tested for every 6 months.

I talked to my GP and inquired about the perservative free flu shot (it is what they give pregnant women and children and is in a single dose dispenser) and he thought that was a great idea. I had it yesterday. This is the first shot I can remember not being sore from as well as not feeling a little off the next day from. This will be my shot every year now. (I will add that the company I work for dispenses the shots for free but does not give the perservative free one so I went to Target)

nvsmom Community Regular

I've heard, although I am far from an expert, that those with lupus and other rheumatic AI's should avoid the flu shot. I can't remember if it's because it gets your immune system going too much and causes a flare or what. Sort of like the fact that rheumatic AI sufferers are told not to consume garlic, echinacea,and melatonin because it boosts the immune system.

I do know those with Lupus should get the pneumonia vaccine every few years because they do not fight off viruses as well as the average person.

I don't know if that theory would apply to celiacs though since the gluten trigger is what puts a celiac's immune sytem into overdrive.

I tend to avoid the flu shot because whenever I do get it, I end up with a fever and flu-like symptoms...like in a flare. It's like a guarantee to feel bad in my case. I am currently getting tested for Lupus or other rheumatic AI's.

If Lupus, RA, UCTD, or MCTD are possibilities for you, you might want to look into vaccines connections to those AI's. i've never heard of it being an issue with celiacs. Best wishes. :)

shadowicewolf Proficient

The last time i got it was before i got really sick with the flu that triggered everything else. So no, i no longer get them.

Adalaide Mentor

I've always gotten a flu shot. My husband is diabetic so his doctor won't let him not get it. Because I've always worked with the general public and because me getting sick will put him at risk I get it for him. I am the world's biggest baby about needles. I whine, close my eyes, hole my breath and generally complain the whole time. I wasn't really thinking very clearly when I was at the doctor's office for my cold on Friday or I would have asked for one then. May as well pile on the misery.

Anywho, no one has ever told me it would be a bad idea to get one. I don't know about the egg thing, I don't have egg problems so it's never been an issue for me. I'd ask your doctor what he thinks about that. Besides that I don't know of any reason we should be avoiding them.

mushroom Proficient

I get a flu shot religiously. My lungs are so bad I can't risk flu or pneumonia (again!). That's how come I ended up in ICU with aspiration pneumonia this summer :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I would encourage anyone who thinks they want a vaccine to ask their physician (or the Center for Disease Control) website what is in them. The physcian receives the informations which each batch of vaccine.

To avoid the flu I carefully wash my hands with homemade soap frequently. We eat an organic, natural food diet, and get some sunshine. If someone in the family is sick all of us wear Tea Tree Oil, or Eucalyptus oil to kill germs in the air. Illnesses rarely if ever go through the seven of us in our household anymore.

I hope you will all be well this flu season.

Diana

squirmingitch Veteran

I'm not allergic to eggs. I don't have any other AI diseases that I presently know of. I have been getting a flu shot every year for the past 30 years; ever since I got the flu when I was 25 & it kicked my ass!!!!!!! At 25 yrs. old!!!!!! Last year I got the flu shot even having just discovered I have celiac disease. I will get one this year too.

icm Apprentice

Here's an interesting video that talks about the benefits of 5000IU of vitamin d3 a day. I'm doing the protocol and never plan to have the flu shot in the future.

ncdave Apprentice

I used to describe how i felt when i had got glutened as feeling like i had the flu. I got the flu winter before last, it was like a 3 day cake walk compaired to being glutened.

archaeo in FL Apprentice

luvs2eat, ultimately the decision will be up to you. I encourage you to research the science behind vaccines - no amount of any vitamin or herb or supplement is going to vaccinate you or keep you from getting ill if you contract a virus that your immune system can't fight on its own.

I never got flu shots before, but I recently started a job that requires me to travel, and I now work in a building with about 60 other folks in a cubicle environment (after leaving an office with only two other folks, where any of us might commonly also work from home), and since I changed jobs I have gotten the flu shot. I haven't had any flu or flu-like illness since I was a kid, but vaccines are only effective if a lot of us (ideally most of us) get them.

Remember that even if you are successful at fighting off a virus, you can still spread it. I don't want to pick up a flu virus at work and share it with my elderly parents, and if the vaccine helps kill the virus any faster it's worth it to me.

I had a reaction to an egg-based shot when I was a child, and haven't had a negative reaction since.

mushroom Proficient

I used to describe how i felt when i had got glutened as feeling like i had the flu. I got the flu winter before last, it was like a 3 day cake walk compaired to being glutened.

Dave,if you got over flu in three days you were one very lucky dude :o

Adalaide Mentor

Yeah, three days is a walk in the park. If I could do the flu in three days I'd skip the shot. I do the flu in about 2 to 4 weeks and have never once managed it without an argument with my doctor about whether or not I need to be hospitalized. Seriously, unless I'm literally dying I would much prefer to be miserable at home thanks. Although to be fair I usually turn my flu into pneumonia. I never do anything halfway. B)

ncdave Apprentice

I didn"t exactly get over the flu in 3 days, i was just using that number for the cake walk! Mine turned into bronchitis, thats the beginning of a long story.

ravenwoodglass Mentor

I never have gotten one and won't this year. I wash my hands a lot and haven't gotten ill since the year I was diagnosed and hope that continues. (knock wood)

I was a bit nervous about catching it when I went back to college and then started working with the public but so far so good.

BabsV Enthusiast

I've gotten them religiously every year for over a decade -- ever since a really bad case of the flu knocked me out for 3+ weeks (10 days in bed -- literally could not get up...it scared my room-mate to death at the time!) I do not have a problem with eggs so that's never been a consideration.

Also, after my diagnosis last August one of my doctors gave me the Pneumococcal vaccination which was amazingly painful BUT I did not have either of my winter colds turn into respiratory infections last year. For years any time I would get sick it would move into my chest and then it was always a course of antibiotics plus prednisone on a couple of occasions. And boy do I HATE taking prednisone!

lovegrov Collaborator

I ALWAYS get the flu shot. The last time I didn't was the year that I started with what I think was the flu and then went into my full-blown untreated celiac reaction, which landed me in the hospital for 11 days and out of work for 10 weeks. IOW, I think the flu was what triggered my bad breakdown, although I know I had celiac disease symptoms before that. Anyway, that was the only time in the past 26 years I didn't have one and the only time in 26 years I've had the flu.

richard

jmb002 Newbie

I can't speak for the gluten part of the flu vaccine because I am just starting to wade through all of this (was just diagnosed as having DH last week :blink:); however, if you are allergic to eggs (you said you were when you were a baby) then you should NOT have the flu shot. I am in nursing school and that is one of the big things they tell us, but it doesn't seem to pertain to other vaccinations. I will do some research if you would like, but I wouldn't get the flu vaccine if you are allergic to eggs. You should probably verify that with your physician to see if he thinks you can, but if it were me I wouldn't.

Hope that helps :).

Jenn

joolsjewels Newbie

My parents and brother all have either diabetes or RA, but they still get flu shots. Do not ask me why. It seems like the craziest thing to me. They all get sick! I refuse to get a flu shot and have not had the flu since elementary school, knock on wood really hard;). Ya'll can keep your flu shots for all i am concerned.

squirmingitch Veteran

I can't speak for the gluten part of the flu vaccine because I am just starting to wade through all of this (was just diagnosed as having DH last week :blink:); however, if you are allergic to eggs (you said you were when you were a baby) then you should NOT have the flu shot. I am in nursing school and that is one of the big things they tell us, but it doesn't seem to pertain to other vaccinations. I will do some research if you would like, but I wouldn't get the flu vaccine if you are allergic to eggs. You should probably verify that with your physician to see if he thinks you can, but if it were me I wouldn't.

Hope that helps :).

Jenn

There is no gluten in the flu shot.

burdee Enthusiast

Years ago I got annual flu shots. However, I always reacted with nausea and gut pain. People told me I got a mild case of 'flu'. Yet I never got the traditional 'flu' symptoms of muscle aches and respiratory distress. 5 years ago my ELISA test results showed I was allergic (IgG mediated) to egg whites. No wonder I reacted badly to flu shots which are cultured in egg whites. I no longer get flu shots. I have NEVER gotten the flu even since I stopped taking flu shots 10 years go.

kristenloeh Community Regular

I need to get the shot since my immune system is so weak. Instead of getting the flu this year, I got Meningitis! *ugh* Gotta love being me!

lovegrov Collaborator

Let me emphasize as well -- there is no gluten in any injectable!!

PS, just got my flu shot 50 minutes ago. Glad to have it.

richard

GwenO Apprentice

I used to avoid it but my job now requires me to have it done. I was quite resistant to getting it but didn't nitice any ill effects.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,962
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.