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Showing content with the highest reputation since 01/12/2010 in Article Comments

  1. knitty kitty
    The "why?" can also be related to the nutritional deficiencies that most Celiacs develop, not only before diagnosis, but afterwards when these deficiencies are not corrected or worsen on the gluten free diet.
    4 points
  2. trents
    She should sue them.
    4 points
  3. trents
    I think this excerpt from the article is very important: "The 2022 report reveals a greater sense of urgency from gastroenterologists versus the 2021 report. Indeed, the number of respondents in the 2022 survey who say that their celiac patient load has increased in the past year, is up by 60% over 2021." 60% increase in celiac patient load in one year...
    4 points
  4. Jefferson Adams
    Celiac.com covers relevant news about issues related to celiac disease and gluten-free food and living. To date, we have not covered news of the January 6th riots at the Capitol, simply because doing so without any relevant celiac disease or gluten-free angle would not be in keeping with our mission. However, the fact that the publisher of the largest...
    4 points
  5. GFinDC
    The mystery effect upregulated genes in celiac patients will protect celiacs from the zombie virus!
    4 points
  6. Purpletie3
    I told my Doctors this years ago and they sent me for a sleep study and hormone tests. Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight and even speech. Definitely a dull version of myself. I was 30 years mis-diagnosed so there...
    3 points
  7. cristiana
    I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
    3 points
  8. Kagemusha
    I would say the server was in the wrong in this case if it weren't for the guy clearly lying. He was drinking beer with gluten. The man needs shamed for lying about a serious disease.
    3 points
  9. Helen Vajk
    Amen. Even worse than the food labeling is the near-complete absence of medication labeling.
    3 points
  10. AnnaNZ
    I started greying in my 40s, gave up gluten in September 2023 aged 59, have taken courses of Vitamin D, B complex and zinc and my completely grey hair has started to regenerate dark brown. Real visible proof of malabsorption.
    3 points
  11. KDrutz
    Wondering if they tested both organic and non-organic gluten, and if herbicides or pesticides exacerbated the inflammation response. My personal experience is that I suffered with seasonal allergies and cat allergies for years until I stopped eating gluten (when my daughter was diagnosed with Celiac). After six months or so, all of my allergies were...
    3 points
  12. trents
    I understand the concept of rewarding those companies who are consistently in compliance with GFCO standards and the idea of doing so has merit but it is also true that while the cat is away the mice will play. As others have suggested, perhaps the introduction of unannounced, random drop in testing needs to be added to the mix to keep them on their toes...
    3 points
  13. Helen Vajk
    Celiacs should also have the right to complete labeling of gluten presence in medications, and all essential medications should be manufactured gluten free.
    3 points
  14. Celiac16
    @PosterboyThanks for the article - it definitely helped when I was looking into thiamine and niacin for celiacs. Interesting too is that schizophrenia has been linked with undiagnosed celiacs and in orthomolecular therapy is treated like pellagra with high dose niacin. I have supplemented with both and have benefited from them… they are kind of counterparts i...
    3 points
  15. Helen Vajk
    Hard to believe, but unfortunately seems true. This kind of "mislabeling" is actually bodily assault for celiacs, consciously done for profit.
    3 points
  16. Maria Deal
    I find this interesting. I had horrible monthly periods & anemia, then at age 19 was told my Endometriosis was so bad I should probably have a complete hysterectomy because I probably would not have children & yes my life was severely altered. Back then, 1982, there was no “autoimmune” connection. I never even heard of Celiac then, and yes eve...
    3 points
  17. Colonelswife
    Hospitals need to take a page out of Italy’s book- where there are strict Celiac laws in place. The number of hospitals in the U.S. that do not provide safe Gluten Free food for Celiac & NCGS patients is absolutely deplorable & inexcusable.
    3 points
  18. Mary Mele
    my opinion--their daughter has a whole lot more to be concerned about than they type of cake. this is a marriage that needs some help!
    3 points
  19. cristiana
    A UK perspective: I make gluten free cakes all the time with Dove Gluten Free Flour. They tend to be what the French call "Quatre-Quarts" cakes - you weigh the eggs, then use the same weight of gluten free self-raising flour, fat and caster sugar. Put all the ingredients in together, so easy, with of course the necessary flavourings.. I use the same...
    3 points
  20. trents
    @Guest Interesting, While you criticize Jefferson Adams' article here for citing outdated research with small sample sizes, you yourself fail to give any links to support your contrary claims. And I disagree with your contention that Jefferson uses "scare tactics". I also disagree with your claim that he is using outdated research in this article. The...
    3 points
  21. Scott Adams
    Your statement is far too broad to be reliable, as I've been eating nightshades daily for my entire life, without any issues. Many celiacs don't have issues with nightshades, although some do. Many non-celiacs don't have issues with nightshades, although some do. Please don't make broad, sweeping statements like this because it isn't helpful to people who...
    3 points
  22. Margaret O'Connor
    I am a Catholic who has lived with the gluten-free Host issue since 1985. During this period I have literally been at the mercy of having either priests who minister to people, rather than priests who minister exclusively to man-made Canon Law. As a Eucharistic Minister, I have seen several times the cross contamination of wine intended to be gluten-free...
    3 points
  23. Amy CH
    I am so thankful that my father, who died of lymphoma due to undiagnosed Celiac urged me to get tested. I had absoluted no symtoms, but thought why not? My new doctor basically ridiculed me, asking, "Why would you want to be screened for Celiac? Don't you know you would have to go on a special diet?" My response: "Isn't it better to be proactive?" She...
    3 points
  24. trents
    Bob, judging from the little bit of information you supply about your experience, I'm probably on your side of the ideological street, for the most part, but I hope you realize you just criticized this article for being political by using a politically charged argument yourself.
    3 points
  25. knitty kitty
    @sc'Que? and @Scott Adams and @Jefferson Adams Thought this article was extremely interesting. Intestinal Dysbiosis and Tryptophan Metabolism in Autoimmunity Open Original Shared Link
    3 points
  26. Anne Chopping
    I find celiac disease greatly inhances my dating efforts because it quickly eliminates jerks who do not treat my dietary needs seriously! I know immediately whether I am with someone who will treat me with the respect I deserve but my poor gluten-eating friends have to go on several dates before finding this out!
    3 points
  27. Mr. Pep'r
    I work in the airline industry, and I can attest that someone with Celiac Disease (like myself) cannot trust the airlines to take care of our health needs. Unfortunately the Flight Attendants are not equipped, nor aware of the risks concerning cross contamination while handling diner rolls or fresh baked cookies within the confines of a tight aircraft...
    3 points
  28. kareng
    I guess my take away from all this is - sometimes using the same knife or oil or toaster doesn’t get gluten on the food ....... but sometimes it does. And why would we relax our standards and hope we get lucky?
    3 points
  29. Scott Adams
    I’ve learned that the term “cross-reactive” is simply another way of saying “additional sensitivities.” I myself could not eat tomatoes, chicken eggs, or corn for at least two years after I went on a gluten-free diet. It took that long for my gut to recover, and to reach the point where I did not react to those foods. Thus cross-reactivity seems to be ver...
    3 points
  30. Joan H
    I've read this article my comment to Celiac.com when I sent a review of this article is that if this injection is successful, because gluten-free has become a huge money maker they are going to be up against big business, factories have been opened, specialty bakeries, etc etc and of course all the other gluten-free product makers they will fight it all the...
    3 points
  31. KennaH
    Interesting article. I am diagnosed celiac with anxiety and migraines. Also diagnosed with IBS-mixed prior to celiac confirmation. Moderate to severe villi blunting. I have no problem with gluten-free diet but FODMAP is overwhelming. Only self research, especially on this site, has helped more than any gastroenterologist. I believe I do report severe symptoms...
    2 points
  32. markpadgett8245
    It does seem the customer here was looking for a fight. Best to state your needs at the beginning when dining out--be it a person with Celiac or with gluten sensitivity. I have never seen or heard of someone with Celiac who can drink regular beer. All that being said, a little civility goes a long way but if you are going to claim you are allergic to gluten...
    2 points
  33. trents
    @LoSmith, what would be helpful to you in this regard? If "Simply saying "You need to eat more vegetables" or handing over lists and recommending recipe books is not helpful when simply READING a recipe can cause someone to reject it entirely" doesn't work for you, what would be a better approach? What would that look like for you? You may need to take the...
    2 points
  34. OldNavyWife54
    This man reminds me of my mother and my siblings. They never took my diagnosis seriously and were always dismissive of it. It took me to age 53 to get diagnosed and it made a huge difference in my health once I went 100% gluten free, but they still made light of it. So in 2016 when I was asked to take in my elderly mother, and later my younger brother...
    2 points
  35. N00dnutt
    @trents Yep! That's Aussie slang. "Crook" = (Sick-as-a-Dog). My apologies, I forget that I'm chatting in a non-Australian forum whose members are not likely to understand my alien jargon. The everyday Aussie vernacular is distinctly ours. That said, it's taken a century or two of evolution to refine it from the original Pommy Rhyming slang that...
    2 points
  36. Russ H
    It would be interesting to look at populations that have never been exposed to gluten.
    2 points
  37. OldNavyWife54
    If I had a dime for every doctor who told me I just had irritable bowel syndrome, I’d be a rich woman. I had started suspecting Celiac back in my 20’s, but my late husband was military so I was seeing military doctors. They wouldn’t even order the blood test, and just kept telling me it was only IBS. Celiac is so much more common than many would belie...
    2 points
  38. Scott Adams
    I don't think it's practical or affordable to test for all of these various deficiencies, and and simpler approach might be for those with celiac disease to take a general vitamin/mineral supplement like One A Day (with or without iron, depending on your needs), Geritol Multivitamin, or Costco's Mature Multi. In general nearly everyone has some sort of deficiency...
    2 points
  39. No more doughnuts
    People can try stopping it like I did and if the flare ups stop, then that's a strong clue. I never said all people should stop. Stop being so critical of my point here. I DO have celiac disease and nightshades do cause me horrible flareups. I have a medical background and 2 degrees. I am trying to help people figure out what may be harming them. Go...
    2 points
  40. trents
    "Ingredients: Water, Barley Malt, Non-malted Cereals, Hops" Open Original Shared Link Dina, barley malt contains gluten. This beer product is not gluten free. I would caution you to assume that just because you don't detect a gluten reaction means there is no inflammation of the small bowel lining happening. It may be just a low level inflammation but...
    2 points
  41. Elizabeth potter
    I have celiac disease and inflammatory bowel disease - I have extreme constipation and take xifaxan - I do not have colitis tho - finally after years of probiotics and antibiotics I’m much better
    2 points
  42. Scott Adams
    Yes, the study looks for a link between gluten consumption in celiacs and those with NCGS to see if it alters their gut microbiome, which in the short term it doesn't in either group.
    2 points
  43. Karen B.
    I appreciate being informed of this so I can make an informed decision on who and what I support. I'm all for freedom of expression but I will not support anyone that participated in that event. Thank you for providing the information so I can make that choice.
    2 points
  44. Helen Vajk
    Not a fun experience, my sympathies. FYI I've done over 30 short trips with medical missions to various destinations. Finding gluten-free food in such countries as India & Bangladesh was surprisingly easy. Latin America is the home of corn tortillas, lots of naturally gluten-free food. Even Ethiopia was good - they do have Italian cuisine/restaurants...
    2 points
  45. glf01
    I buy Malt O Meal Crispy Rice from the local (NE Ohio} Marc's stores. It is labeled gluten free and I have had no problems with it, and I am celiac. The flavor is very close to original Kellogg's Rice Crispies. The only downside is it might get soggier sooner - just eat fast! Gary
    2 points
  46. Elizabeth Butler
    I absolutely loved this article. This isn’t the first time I’ve seen a lot of this information minus the “dog” healthcare aspect however it was written in such attention catching way I’m going to try to share it with others. Also I would like to add. I’ve been gluten, dairy free, attempting corn/soy free( very small amounts) for awhile now with excellent r...
    2 points
  47. Spherical Bird
    I see ! Thank you for the details ! Ironically I found myself having mild ataxia yesterday (and that seems to make me a little moody when it comes to grasp intents in text messages 😅 so I apologize) As someone who haven't got an assigned doctor yet (for some unknown reasons a proper examination is complicated for most nowadays... And I couldn't ...
    2 points
  48. trents
    Good question and one I remember coming up before on the forum. I'm not aware of any research suggesting that we can get glutened from eating animal products coming from animals who were fed gluten. Having said that, we used to confidently claim that distilled liquors were free of gluten but anecdotal experiences are challenging that assertion. We are also...
    2 points
  49. trents
    Whey is a dairy product, not from plants I think.
    2 points
  50. Marti S
    This article contains incorrect, misleading, and incomplete information along with a lot of off point discussion and typographical errors. Please edit or ask someone to edit it for you. For the readers, please refer to credible sources like physicians or dieticians for information like this.
    2 points

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    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      Blood results

      By Russ H · Posted

      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
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