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Popular Content

Showing content with the highest reputation since 01/12/2010 in Article Comments

  1. knitty kitty
    The "why?" can also be related to the nutritional deficiencies that most Celiacs develop, not only before diagnosis, but afterwards when these deficiencies are not corrected or worsen on the gluten free diet.
    4 points
  2. trents
    She should sue them.
    4 points
  3. trents
    I think this excerpt from the article is very important: "The 2022 report reveals a greater sense of urgency from gastroenterologists versus the 2021 report. Indeed, the number of respondents in the 2022 survey who say that their celiac patient load has increased in the past year, is up by 60% over 2021." 60% increase in celiac patient load in one year...
    4 points
  4. Jefferson Adams
    Celiac.com covers relevant news about issues related to celiac disease and gluten-free food and living. To date, we have not covered news of the January 6th riots at the Capitol, simply because doing so without any relevant celiac disease or gluten-free angle would not be in keeping with our mission. However, the fact that the publisher of the largest...
    4 points
  5. GFinDC
    The mystery effect upregulated genes in celiac patients will protect celiacs from the zombie virus!
    4 points
  6. Purpletie3
    I told my Doctors this years ago and they sent me for a sleep study and hormone tests. Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight and even speech. Definitely a dull version of myself. I was 30 years mis-diagnosed so there...
    3 points
  7. cristiana
    I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
    3 points
  8. Kagemusha
    I would say the server was in the wrong in this case if it weren't for the guy clearly lying. He was drinking beer with gluten. The man needs shamed for lying about a serious disease.
    3 points
  9. Helen Vajk
    Amen. Even worse than the food labeling is the near-complete absence of medication labeling.
    3 points
  10. AnnaNZ
    I started greying in my 40s, gave up gluten in September 2023 aged 59, have taken courses of Vitamin D, B complex and zinc and my completely grey hair has started to regenerate dark brown. Real visible proof of malabsorption.
    3 points
  11. KDrutz
    Wondering if they tested both organic and non-organic gluten, and if herbicides or pesticides exacerbated the inflammation response. My personal experience is that I suffered with seasonal allergies and cat allergies for years until I stopped eating gluten (when my daughter was diagnosed with Celiac). After six months or so, all of my allergies were...
    3 points
  12. trents
    I understand the concept of rewarding those companies who are consistently in compliance with GFCO standards and the idea of doing so has merit but it is also true that while the cat is away the mice will play. As others have suggested, perhaps the introduction of unannounced, random drop in testing needs to be added to the mix to keep them on their toes...
    3 points
  13. Helen Vajk
    Celiacs should also have the right to complete labeling of gluten presence in medications, and all essential medications should be manufactured gluten free.
    3 points
  14. Celiac16
    @PosterboyThanks for the article - it definitely helped when I was looking into thiamine and niacin for celiacs. Interesting too is that schizophrenia has been linked with undiagnosed celiacs and in orthomolecular therapy is treated like pellagra with high dose niacin. I have supplemented with both and have benefited from them… they are kind of counterparts i...
    3 points
  15. Helen Vajk
    Hard to believe, but unfortunately seems true. This kind of "mislabeling" is actually bodily assault for celiacs, consciously done for profit.
    3 points
  16. Maria Deal
    I find this interesting. I had horrible monthly periods & anemia, then at age 19 was told my Endometriosis was so bad I should probably have a complete hysterectomy because I probably would not have children & yes my life was severely altered. Back then, 1982, there was no “autoimmune” connection. I never even heard of Celiac then, and yes eve...
    3 points
  17. Colonelswife
    Hospitals need to take a page out of Italy’s book- where there are strict Celiac laws in place. The number of hospitals in the U.S. that do not provide safe Gluten Free food for Celiac & NCGS patients is absolutely deplorable & inexcusable.
    3 points
  18. Mary Mele
    my opinion--their daughter has a whole lot more to be concerned about than they type of cake. this is a marriage that needs some help!
    3 points
  19. cristiana
    A UK perspective: I make gluten free cakes all the time with Dove Gluten Free Flour. They tend to be what the French call "Quatre-Quarts" cakes - you weigh the eggs, then use the same weight of gluten free self-raising flour, fat and caster sugar. Put all the ingredients in together, so easy, with of course the necessary flavourings.. I use the same...
    3 points
  20. trents
    @Guest Interesting, While you criticize Jefferson Adams' article here for citing outdated research with small sample sizes, you yourself fail to give any links to support your contrary claims. And I disagree with your contention that Jefferson uses "scare tactics". I also disagree with your claim that he is using outdated research in this article. The...
    3 points
  21. Scott Adams
    Your statement is far too broad to be reliable, as I've been eating nightshades daily for my entire life, without any issues. Many celiacs don't have issues with nightshades, although some do. Many non-celiacs don't have issues with nightshades, although some do. Please don't make broad, sweeping statements like this because it isn't helpful to people who...
    3 points
  22. Margaret O'Connor
    I am a Catholic who has lived with the gluten-free Host issue since 1985. During this period I have literally been at the mercy of having either priests who minister to people, rather than priests who minister exclusively to man-made Canon Law. As a Eucharistic Minister, I have seen several times the cross contamination of wine intended to be gluten-free...
    3 points
  23. Amy CH
    I am so thankful that my father, who died of lymphoma due to undiagnosed Celiac urged me to get tested. I had absoluted no symtoms, but thought why not? My new doctor basically ridiculed me, asking, "Why would you want to be screened for Celiac? Don't you know you would have to go on a special diet?" My response: "Isn't it better to be proactive?" She...
    3 points
  24. trents
    Bob, judging from the little bit of information you supply about your experience, I'm probably on your side of the ideological street, for the most part, but I hope you realize you just criticized this article for being political by using a politically charged argument yourself.
    3 points
  25. knitty kitty
    @sc'Que? and @Scott Adams and @Jefferson Adams Thought this article was extremely interesting. Intestinal Dysbiosis and Tryptophan Metabolism in Autoimmunity Open Original Shared Link
    3 points
  26. Anne Chopping
    I find celiac disease greatly inhances my dating efforts because it quickly eliminates jerks who do not treat my dietary needs seriously! I know immediately whether I am with someone who will treat me with the respect I deserve but my poor gluten-eating friends have to go on several dates before finding this out!
    3 points
  27. Mr. Pep'r
    I work in the airline industry, and I can attest that someone with Celiac Disease (like myself) cannot trust the airlines to take care of our health needs. Unfortunately the Flight Attendants are not equipped, nor aware of the risks concerning cross contamination while handling diner rolls or fresh baked cookies within the confines of a tight aircraft...
    3 points
  28. kareng
    I guess my take away from all this is - sometimes using the same knife or oil or toaster doesn’t get gluten on the food ....... but sometimes it does. And why would we relax our standards and hope we get lucky?
    3 points
  29. Scott Adams
    I’ve learned that the term “cross-reactive” is simply another way of saying “additional sensitivities.” I myself could not eat tomatoes, chicken eggs, or corn for at least two years after I went on a gluten-free diet. It took that long for my gut to recover, and to reach the point where I did not react to those foods. Thus cross-reactivity seems to be ver...
    3 points
  30. Joan H
    I've read this article my comment to Celiac.com when I sent a review of this article is that if this injection is successful, because gluten-free has become a huge money maker they are going to be up against big business, factories have been opened, specialty bakeries, etc etc and of course all the other gluten-free product makers they will fight it all the...
    3 points
  31. DebJ14
    And let's not forget that we have to beware of paper straws. Those strips of paper are often glued into straws with wheat paste. I ran into this on a cruise when they stopped using plastic straws. I was sick within 30 minutes of having a Mojito. The person taking care of my food allergies pulled a box from a bar and sure enough "Contains Wheat" was written...
    2 points
  32. Anne65
    I have recently moved, and am back to finding new places that sell gluten free foods, new gluten free friends, plus more people in my life that don't know what it is. As far as addictive, it is like other things that are addictive that I shouldn't have, only even worse. Am I willing to spend 3 days on the porcelain throne?
    2 points
  33. chrisinpa
    The only best thing I do is try to find gluten free substitutes.....example....gluten free pizza etc.
    2 points
  34. trents
    I think sometimes it is the case when people are diagnosed later in life that the actual onset was years earlier but was not of an acute nature. As it gradually took it's toll on the small bowel lining and other body systems it got to a point where symptoms were noticeable enough to finally prompt investigation and diagnosis. Then people look back in time...
    2 points
  35. trents
    @alltheceliacquestions, 20ppm, even 10ppm will still cause reactions in the more sensitive subset of celiacs.
    2 points
  36. trents
    We all would but that one is a pipe dream. There just isn't enough demand from a business standpoint to justify a whole fast food chain converting operations to comply with GFCO standards.
    2 points
  37. trents
    @LoSmith, what would be helpful to you in this regard? If "Simply saying "You need to eat more vegetables" or handing over lists and recommending recipe books is not helpful when simply READING a recipe can cause someone to reject it entirely" doesn't work for you, what would be a better approach? What would that look like for you? You may need to take the...
    2 points
  38. LPat02
    I thought they did but after questioning them apparently not. It’s left up to the manufacturers and they arent monitored unless there is a complaint. I’ve had things labeled gluten free and when I questioned the company they said the imported ingredients aren’t tested. Stay away from the gluten free Idahoan Scalloped Potatoes. 😂
    2 points
  39. Joel K
    I was diagnosed 8 years ago. That day, I went home, chucked all the food in my house that wasn’t single-ingredient food, chucked all porous kitchen utensils, cookware, cutting boards, silverware, oven mitts, containers, dish towels, my microwave, toaster, and cleaning stuff. Didn’t eat out or anywhere else but my home for 6 months, cut out all processed foo...
    2 points
  40. cristiana
    @placey0918 That's really interesting. I'd love to have detailed tests for minerals and vitamins - unfortunately that sort of testing isn't routinely done here in the UK, not even under my private consultant which is a shame because I am sure many of my issues were to do with deficiencies. What you say about zinc is so interesting because I now...
    2 points
  41. trents
    Links to credible references please, marcus. There are plenty of unqualified "experts" who make a living off of sensational claims that run counter to mainstream scientific opinion.
    2 points
  42. No more doughnuts
    People can try stopping it like I did and if the flare ups stop, then that's a strong clue. I never said all people should stop. Stop being so critical of my point here. I DO have celiac disease and nightshades do cause me horrible flareups. I have a medical background and 2 degrees. I am trying to help people figure out what may be harming them. Go...
    2 points
  43. Russ H
    Thank you for the interesting review article. Sheffield Teaching Hospital in the UK has been doing excellent research into gluten induced neuropathy. For example, in the prospective cohort study linked below, 67% of newly diagnosed celiac disease patients (mean age 43) had symptoms and/or signs of neurologic dysfunction. 42% suffered frequent headaches, ...
    2 points
  44. Scott Adams
    I wish I could recall the study I saw some ~20 years back, but essentially it said that even though only 1% of the population has celiac disease, something like 15-20% of patients who had been seeing a gastroenterologist for more than 6 months had undiagnosed celiac disease. In other words, most people who visit a gastro doctor should simply be screened for...
    2 points
  45. dixonpete
    People use Necator americanus hookworms for Helminthic Therapy. They are well-behaved and actually use very little blood. In addition, the modern standard is to use very few hookworm larvae, usually starting with just 5. I've never noticed mine. I do notice all the gluten products I now get to eat and the absence of colitis. Plus, living in fear of other...
    2 points
  46. trents
    There have been many attempts at a "celiac pill" that did not prove viable in the latter rounds of trial testing. And we were disappointed. So I have guarded optimism.
    2 points
  47. Dina Wright
    I was diagnosed with Celiac disease 15 years ago. I struggled initially with eating gluten free but have now become a “pro” at making sure I don’t get glutenized when eating out, (I’ve walked out of many restaurants without certainty of avoiding “cross contamination”). So much attention to celiac disease has helped when it comes to eating gluten free...
    2 points
  48. Wheatwacked
    And if you have Celiac Disease and they served you food with gluten you would be the next story. It is about the right to appropriate nutrition regardless belief. Would withholding Insulin from a prisoner be ok?
    2 points
  49. Posterboy
    Scott, Thanks for sharing this research. Here is another article that might help others entitled "Vitamin D and the anti-viral state" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3308600/ I quoted the full citation so others can see at what level OHD Vitamin D has been shown to be an immune regulator. Generally it is believed (for...
    2 points
  50. cyclinglady
    The fact that so many celiacs are not healing is disheartening. Note that the study said in the conclusion: “Quantitative histology in well‐oriented biopsy sections reveals villus atrophy in the majority of patients with coeliac disease who appear well controlled on gluten‐free diet.” I have been participating on Celiac.com forum for six years. ...
    2 points

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
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