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Showing content with the highest reputation since 01/12/2010 in Article Comments

  1. knitty kitty
    The "why?" can also be related to the nutritional deficiencies that most Celiacs develop, not only before diagnosis, but afterwards when these deficiencies are not corrected or worsen on the gluten free diet.
    4 points
  2. trents
    She should sue them.
    4 points
  3. trents
    I think this excerpt from the article is very important: "The 2022 report reveals a greater sense of urgency from gastroenterologists versus the 2021 report. Indeed, the number of respondents in the 2022 survey who say that their celiac patient load has increased in the past year, is up by 60% over 2021." 60% increase in celiac patient load in one year...
    4 points
  4. Jefferson Adams
    Celiac.com covers relevant news about issues related to celiac disease and gluten-free food and living. To date, we have not covered news of the January 6th riots at the Capitol, simply because doing so without any relevant celiac disease or gluten-free angle would not be in keeping with our mission. However, the fact that the publisher of the largest...
    4 points
  5. GFinDC
    The mystery effect upregulated genes in celiac patients will protect celiacs from the zombie virus!
    4 points
  6. Purpletie3
    I told my Doctors this years ago and they sent me for a sleep study and hormone tests. Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight and even speech. Definitely a dull version of myself. I was 30 years mis-diagnosed so there...
    3 points
  7. cristiana
    I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
    3 points
  8. Kagemusha
    I would say the server was in the wrong in this case if it weren't for the guy clearly lying. He was drinking beer with gluten. The man needs shamed for lying about a serious disease.
    3 points
  9. Helen Vajk
    Amen. Even worse than the food labeling is the near-complete absence of medication labeling.
    3 points
  10. AnnaNZ
    I started greying in my 40s, gave up gluten in September 2023 aged 59, have taken courses of Vitamin D, B complex and zinc and my completely grey hair has started to regenerate dark brown. Real visible proof of malabsorption.
    3 points
  11. KDrutz
    Wondering if they tested both organic and non-organic gluten, and if herbicides or pesticides exacerbated the inflammation response. My personal experience is that I suffered with seasonal allergies and cat allergies for years until I stopped eating gluten (when my daughter was diagnosed with Celiac). After six months or so, all of my allergies were...
    3 points
  12. trents
    I understand the concept of rewarding those companies who are consistently in compliance with GFCO standards and the idea of doing so has merit but it is also true that while the cat is away the mice will play. As others have suggested, perhaps the introduction of unannounced, random drop in testing needs to be added to the mix to keep them on their toes...
    3 points
  13. Helen Vajk
    Celiacs should also have the right to complete labeling of gluten presence in medications, and all essential medications should be manufactured gluten free.
    3 points
  14. Celiac16
    @PosterboyThanks for the article - it definitely helped when I was looking into thiamine and niacin for celiacs. Interesting too is that schizophrenia has been linked with undiagnosed celiacs and in orthomolecular therapy is treated like pellagra with high dose niacin. I have supplemented with both and have benefited from them… they are kind of counterparts i...
    3 points
  15. Helen Vajk
    Hard to believe, but unfortunately seems true. This kind of "mislabeling" is actually bodily assault for celiacs, consciously done for profit.
    3 points
  16. Maria Deal
    I find this interesting. I had horrible monthly periods & anemia, then at age 19 was told my Endometriosis was so bad I should probably have a complete hysterectomy because I probably would not have children & yes my life was severely altered. Back then, 1982, there was no “autoimmune” connection. I never even heard of Celiac then, and yes eve...
    3 points
  17. Colonelswife
    Hospitals need to take a page out of Italy’s book- where there are strict Celiac laws in place. The number of hospitals in the U.S. that do not provide safe Gluten Free food for Celiac & NCGS patients is absolutely deplorable & inexcusable.
    3 points
  18. Mary Mele
    my opinion--their daughter has a whole lot more to be concerned about than they type of cake. this is a marriage that needs some help!
    3 points
  19. cristiana
    A UK perspective: I make gluten free cakes all the time with Dove Gluten Free Flour. They tend to be what the French call "Quatre-Quarts" cakes - you weigh the eggs, then use the same weight of gluten free self-raising flour, fat and caster sugar. Put all the ingredients in together, so easy, with of course the necessary flavourings.. I use the same...
    3 points
  20. trents
    @Guest Interesting, While you criticize Jefferson Adams' article here for citing outdated research with small sample sizes, you yourself fail to give any links to support your contrary claims. And I disagree with your contention that Jefferson uses "scare tactics". I also disagree with your claim that he is using outdated research in this article. The...
    3 points
  21. Scott Adams
    Your statement is far too broad to be reliable, as I've been eating nightshades daily for my entire life, without any issues. Many celiacs don't have issues with nightshades, although some do. Many non-celiacs don't have issues with nightshades, although some do. Please don't make broad, sweeping statements like this because it isn't helpful to people who...
    3 points
  22. Margaret O'Connor
    I am a Catholic who has lived with the gluten-free Host issue since 1985. During this period I have literally been at the mercy of having either priests who minister to people, rather than priests who minister exclusively to man-made Canon Law. As a Eucharistic Minister, I have seen several times the cross contamination of wine intended to be gluten-free...
    3 points
  23. Amy CH
    I am so thankful that my father, who died of lymphoma due to undiagnosed Celiac urged me to get tested. I had absoluted no symtoms, but thought why not? My new doctor basically ridiculed me, asking, "Why would you want to be screened for Celiac? Don't you know you would have to go on a special diet?" My response: "Isn't it better to be proactive?" She...
    3 points
  24. trents
    Bob, judging from the little bit of information you supply about your experience, I'm probably on your side of the ideological street, for the most part, but I hope you realize you just criticized this article for being political by using a politically charged argument yourself.
    3 points
  25. knitty kitty
    @sc'Que? and @Scott Adams and @Jefferson Adams Thought this article was extremely interesting. Intestinal Dysbiosis and Tryptophan Metabolism in Autoimmunity Open Original Shared Link
    3 points
  26. Anne Chopping
    I find celiac disease greatly inhances my dating efforts because it quickly eliminates jerks who do not treat my dietary needs seriously! I know immediately whether I am with someone who will treat me with the respect I deserve but my poor gluten-eating friends have to go on several dates before finding this out!
    3 points
  27. Mr. Pep'r
    I work in the airline industry, and I can attest that someone with Celiac Disease (like myself) cannot trust the airlines to take care of our health needs. Unfortunately the Flight Attendants are not equipped, nor aware of the risks concerning cross contamination while handling diner rolls or fresh baked cookies within the confines of a tight aircraft...
    3 points
  28. kareng
    I guess my take away from all this is - sometimes using the same knife or oil or toaster doesn’t get gluten on the food ....... but sometimes it does. And why would we relax our standards and hope we get lucky?
    3 points
  29. Scott Adams
    I’ve learned that the term “cross-reactive” is simply another way of saying “additional sensitivities.” I myself could not eat tomatoes, chicken eggs, or corn for at least two years after I went on a gluten-free diet. It took that long for my gut to recover, and to reach the point where I did not react to those foods. Thus cross-reactivity seems to be ver...
    3 points
  30. Joan H
    I've read this article my comment to Celiac.com when I sent a review of this article is that if this injection is successful, because gluten-free has become a huge money maker they are going to be up against big business, factories have been opened, specialty bakeries, etc etc and of course all the other gluten-free product makers they will fight it all the...
    3 points
  31. Flash1970
    Very interesting. If it proves to be accurate, could explain why people with celiac that follow gluten free diet still have symptoms.
    2 points
  32. KelleyJo
    When I was diagnosed in 2016, I was told I had probably had it at least 30 years. I also have lactose intolerance and IBS, so I'm not certain which symptoms were which in the early stages. I have osteopenia because of it. I have issues with inflammation. I was only diagnosed with the IGA blood test. But there was such a marked difference when I went very...
    2 points
  33. Jerry Aldridge
    Also, magnesium low levels must be included in general health for celiac disease. This includes bone health plus many other problems.
    2 points
  34. markpadgett8245
    It does seem the customer here was looking for a fight. Best to state your needs at the beginning when dining out--be it a person with Celiac or with gluten sensitivity. I have never seen or heard of someone with Celiac who can drink regular beer. All that being said, a little civility goes a long way but if you are going to claim you are allergic to gluten...
    2 points
  35. OldNavyWife54
    This man reminds me of my mother and my siblings. They never took my diagnosis seriously and were always dismissive of it. It took me to age 53 to get diagnosed and it made a huge difference in my health once I went 100% gluten free, but they still made light of it. So in 2016 when I was asked to take in my elderly mother, and later my younger brother...
    2 points
  36. N00dnutt
    Jefferson: Some Deli items like bacon, in Australia contain Gluten; most "Don's" smallgoods products contain Gluten, but! they list it on their packaging so you know.! Alex: 100% on the mark there. In Australia, McCormack Foods (Spice) supplier, advertises their products as having the potential for cross-contamination. A legal requirement here in Australia...
    2 points
  37. trents
    Cristiana, it also needs to be said since test scales are not standardized in the laboratory world, comparing numbers from different test periods can be misleading unless the same labs were used each time.
    2 points
  38. Ann Thomas
    I agree with Jim. I had several symptoms of celiac for several years prior to having the blood test. My blood level was so extreme that the doctor stated that I definitely had celiac. Since I was not comfortable with the endoscopy, we agreed to see how my health improved by following a gluten free diet Within 2 month all of my symptoms were significantly...
    2 points
  39. Russ H
    Not at all. Two thirds of people diagnosed in adulthood experience neurological manifestations. This is important from a medical diagnostic perspective and adds weight to the importance of adhering to a gluten-free diet.
    2 points
  40. trents
    This is very useful information and accords with a growing body of data showing more variability in celiac disease manifestation than we ever realized just a few years ago. The disease is proving to defy our neat little diagnostic categories.
    2 points
  41. ForwardMotion
    This is interesting and I am buoyed that more research is being conducted to look at cross-reactivity effects of foods, spices, etc., that are molecularly close to gluten. I recognized an issue with black pepper years ago, and have nicely substituted it with white pepper. White pepper is also low in oxalates. I also have never liked the taste of spicy...
    2 points
  42. Scott Adams
    Celiac.com did verify that Open Original Shared Link via a Florida corporation search, so you are not correct about her not being the owner. Feel free to click the link to see the documents yourself.
    2 points
  43. Scoop
    Of course, these are just my food choices - and I feel like you've made assumptions. I make my own mayo, and often dry my own fruit or use fresh fruit in my salads. Skip the bacon! I do my own veg stir fry - freshly chopped veg, ginger, herbs. My thai restaurant is strictly gluten free - gluten-free soy sauce, no gluten ingredients in the...
    2 points
  44. trents
    And the problem with generics is that the dispensing pharmacy will often switch manufacturers to get better prices. That and the fact that much of our medication is manufactured in China which makes it difficult to monitor compliance with allergen concerns.
    2 points
  45. trents
    The really, the bone you are picking is not with Digiorno, or any other food company that is abiding by the 20ppm standard for marketing a product as "gluten free." It is with the FDA.
    2 points
  46. trents
    Unless it is proved that fresh meat is a source of gluten exposure by way of what the animals have been eating I do not think supermarkets should be burdened with the task of guaranteeing the fresh meat they sell is gluten free. Many fresh foods are gluten free just by the nature of what they are. I suppose a person could take the extra step of washing their...
    2 points
  47. trents
    Good question and one I remember coming up before on the forum. I'm not aware of any research suggesting that we can get glutened from eating animal products coming from animals who were fed gluten. Having said that, we used to confidently claim that distilled liquors were free of gluten but anecdotal experiences are challenging that assertion. We are also...
    2 points
  48. trents
    About 10% of celiacs react to oat gluten the same way they do wheat, barely and rye gluten. You could be one of them.
    2 points
  49. trents
    Progressive is the political left wing division of Progresso, hee , hee! Yes, thanks for catching that. I've been watching too much national news lately.
    2 points
  50. trents
    The title of the article is: "Is Hydrolyzed Vegetable Protein Gluten-Free and Safe for Celiacs?" Not sure how we got onto this dairy rabbit trail but can we get back on track?
    2 points

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    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
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