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    trents

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Popular Content

Showing content with the highest reputation since 01/12/2010 in Article Comments

  1. knitty kitty
    The "why?" can also be related to the nutritional deficiencies that most Celiacs develop, not only before diagnosis, but afterwards when these deficiencies are not corrected or worsen on the gluten free diet.
    4 points
  2. trents
    She should sue them.
    4 points
  3. trents
    I think this excerpt from the article is very important: "The 2022 report reveals a greater sense of urgency from gastroenterologists versus the 2021 report. Indeed, the number of respondents in the 2022 survey who say that their celiac patient load has increased in the past year, is up by 60% over 2021." 60% increase in celiac patient load in one year...
    4 points
  4. Jefferson Adams
    Celiac.com covers relevant news about issues related to celiac disease and gluten-free food and living. To date, we have not covered news of the January 6th riots at the Capitol, simply because doing so without any relevant celiac disease or gluten-free angle would not be in keeping with our mission. However, the fact that the publisher of the largest...
    4 points
  5. GFinDC
    The mystery effect upregulated genes in celiac patients will protect celiacs from the zombie virus!
    4 points
  6. cristiana
    I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
    3 points
  7. Helen Vajk
    Amen. Even worse than the food labeling is the near-complete absence of medication labeling.
    3 points
  8. AnnaNZ
    I started greying in my 40s, gave up gluten in September 2023 aged 59, have taken courses of Vitamin D, B complex and zinc and my completely grey hair has started to regenerate dark brown. Real visible proof of malabsorption.
    3 points
  9. KDrutz
    Wondering if they tested both organic and non-organic gluten, and if herbicides or pesticides exacerbated the inflammation response. My personal experience is that I suffered with seasonal allergies and cat allergies for years until I stopped eating gluten (when my daughter was diagnosed with Celiac). After six months or so, all of my allergies were...
    3 points
  10. trents
    I understand the concept of rewarding those companies who are consistently in compliance with GFCO standards and the idea of doing so has merit but it is also true that while the cat is away the mice will play. As others have suggested, perhaps the introduction of unannounced, random drop in testing needs to be added to the mix to keep them on their toes...
    3 points
  11. Helen Vajk
    Celiacs should also have the right to complete labeling of gluten presence in medications, and all essential medications should be manufactured gluten free.
    3 points
  12. Celiac16
    @PosterboyThanks for the article - it definitely helped when I was looking into thiamine and niacin for celiacs. Interesting too is that schizophrenia has been linked with undiagnosed celiacs and in orthomolecular therapy is treated like pellagra with high dose niacin. I have supplemented with both and have benefited from them… they are kind of counterparts i...
    3 points
  13. Helen Vajk
    Hard to believe, but unfortunately seems true. This kind of "mislabeling" is actually bodily assault for celiacs, consciously done for profit.
    3 points
  14. Maria Deal
    I find this interesting. I had horrible monthly periods & anemia, then at age 19 was told my Endometriosis was so bad I should probably have a complete hysterectomy because I probably would not have children & yes my life was severely altered. Back then, 1982, there was no “autoimmune” connection. I never even heard of Celiac then, and yes eve...
    3 points
  15. Colonelswife
    Hospitals need to take a page out of Italy’s book- where there are strict Celiac laws in place. The number of hospitals in the U.S. that do not provide safe Gluten Free food for Celiac & NCGS patients is absolutely deplorable & inexcusable.
    3 points
  16. Mary Mele
    my opinion--their daughter has a whole lot more to be concerned about than they type of cake. this is a marriage that needs some help!
    3 points
  17. cristiana
    A UK perspective: I make gluten free cakes all the time with Dove Gluten Free Flour. They tend to be what the French call "Quatre-Quarts" cakes - you weigh the eggs, then use the same weight of gluten free self-raising flour, fat and caster sugar. Put all the ingredients in together, so easy, with of course the necessary flavourings.. I use the same...
    3 points
  18. trents
    @Guest Interesting, While you criticize Jefferson Adams' article here for citing outdated research with small sample sizes, you yourself fail to give any links to support your contrary claims. And I disagree with your contention that Jefferson uses "scare tactics". I also disagree with your claim that he is using outdated research in this article. The...
    3 points
  19. Scott Adams
    Your statement is far too broad to be reliable, as I've been eating nightshades daily for my entire life, without any issues. Many celiacs don't have issues with nightshades, although some do. Many non-celiacs don't have issues with nightshades, although some do. Please don't make broad, sweeping statements like this because it isn't helpful to people who...
    3 points
  20. Margaret O'Connor
    I am a Catholic who has lived with the gluten-free Host issue since 1985. During this period I have literally been at the mercy of having either priests who minister to people, rather than priests who minister exclusively to man-made Canon Law. As a Eucharistic Minister, I have seen several times the cross contamination of wine intended to be gluten-free...
    3 points
  21. Amy CH
    I am so thankful that my father, who died of lymphoma due to undiagnosed Celiac urged me to get tested. I had absoluted no symtoms, but thought why not? My new doctor basically ridiculed me, asking, "Why would you want to be screened for Celiac? Don't you know you would have to go on a special diet?" My response: "Isn't it better to be proactive?" She...
    3 points
  22. trents
    Bob, judging from the little bit of information you supply about your experience, I'm probably on your side of the ideological street, for the most part, but I hope you realize you just criticized this article for being political by using a politically charged argument yourself.
    3 points
  23. knitty kitty
    @sc'Que? and @Scott Adams and @Jefferson Adams Thought this article was extremely interesting. Intestinal Dysbiosis and Tryptophan Metabolism in Autoimmunity https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7417361/
    3 points
  24. Anne Chopping
    I find celiac disease greatly inhances my dating efforts because it quickly eliminates jerks who do not treat my dietary needs seriously! I know immediately whether I am with someone who will treat me with the respect I deserve but my poor gluten-eating friends have to go on several dates before finding this out!
    3 points
  25. Mr. Pep'r
    I work in the airline industry, and I can attest that someone with Celiac Disease (like myself) cannot trust the airlines to take care of our health needs. Unfortunately the Flight Attendants are not equipped, nor aware of the risks concerning cross contamination while handling diner rolls or fresh baked cookies within the confines of a tight aircraft...
    3 points
  26. kareng
    I guess my take away from all this is - sometimes using the same knife or oil or toaster doesn’t get gluten on the food ....... but sometimes it does. And why would we relax our standards and hope we get lucky?
    3 points
  27. Scott Adams
    I’ve learned that the term “cross-reactive” is simply another way of saying “additional sensitivities.” I myself could not eat tomatoes, chicken eggs, or corn for at least two years after I went on a gluten-free diet. It took that long for my gut to recover, and to reach the point where I did not react to those foods. Thus cross-reactivity seems to be ver...
    3 points
  28. Joan H
    I've read this article my comment to Celiac.com when I sent a review of this article is that if this injection is successful, because gluten-free has become a huge money maker they are going to be up against big business, factories have been opened, specialty bakeries, etc etc and of course all the other gluten-free product makers they will fight it all the...
    3 points
  29. AButtiglieri
    Thank you! This is the first article I’ve read about the non-physical effects of being glutened. It validates everything I have experienced, but never had any scientific proof of. I would like to see more studies on the inability to concentrate, depression, and memory issues.
    2 points
  30. chrish42
    This research and development sounds promising but I'm 77 and didn't even know I had a problem until the age of 75. I have done the best I can to avoid gluten for the past two years. Testing previously showed Celiac disease. I seemed to surmise that if the testing is accurate I can say I had minimal symptoms and other that possible malabsorption and weight...
    2 points
  31. Beverage
    I started going gray at 23, a very white streak that looked cool at first but quickly expanded. I did not have typical intestinal symptoms, lots of extreme allergies and got a lot of colds. I wasn't diagnosed with Celiacs until age 59. I realized the connection immediately. Now I'm 68 and normal greying for my age.
    2 points
  32. GreenEyedMama
    This happened to me at Michigan Adventure last summer. I called ahead and spoke with guest services to see what their policy was for me to bring food in for myself as a Celiac. Upon arrival, I stopped as directed to get my cooler tagged for the day, a worker then came over and started to separate my food into a small personal child size lunch box cooler....
    2 points
  33. MrsRose
    Sorry it took so long to reply, thank you for your insights, I will increase my vitamin D. I'm a soCal girl, born and raised in HB Cali, you know I love my sunshine. I am in Palm Springs are, I get plenty of sun, with sunscreen of course. Thank you again.
    2 points
  34. Scott Adams
    It's great that you finally figured it out. Unfortunately most people who have it are still undiagnosed. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting...
    2 points
  35. RDLiberty
    Thank you for this. It feels like once you've been diagnosed with celiac disease, the goal of half the articles out there is scaring you into thinking that even being gluten free isn't good enough and that you have to do all these crazy restrictive diets beyond gluten free. It's really unnerving when so much seems to be based off opinion rather than...
    2 points
  36. imdoodah331
    I've been in a mental state of food insecurity since I was diagnosed with Non-Celiac Gluten Sensitivity and Lactose Intolerance almost 2 years ago. Undiagnosed/misdiagnosed symptoms for many years. I live in a rural area small town. Not even one traffic light. We have 2 small grocery stores within a 30 minute drive, and neither store carries much in...
    2 points
  37. cristiana
    Very interesting. I was prescribed a course of these for the first time a week or two in early 2013 after taking some medication that had upset my stomach (gastritis). As soon as I started taking them, although it could have been a coincidence, I started getting severe diarrhea which never stopped. After a few weeks my doctor ran some tests and discovered...
    2 points
  38. Monoj3655
    This article is truly hopeful and promising to those of us with celiac disease. I would love to be without stomach discomfort constantly if I eat something with gluten. Since being diagnosed with celiac, I have added yet another condition to my list. I have FPIES to an ingredient called teff.
    2 points
  39. Ann Cochran
    I am a celiac. My sister was also. I also have dermatitis herpetiformis. I have a degree in home economics(later called family and consumer sciences) and taught child development and food and nutrition for many years. How I wish we had all had this information! My own children are very celiac aware and raising their own children differently then I raised...
    2 points
  40. Scott Adams
    Celiac.com did verify that Carol Kacinski is the owner of SIMPLY GLUTEN-FREE, INC. via a Florida corporation search, so you are not correct about her not being the owner. Feel free to click the link to see the documents yourself.
    2 points
  41. Spherical Bird
    Thank you Wheatwacked and Knitty Kitty. It's always interesting to read differents inputs/points of views on similar issues and shared intolerances too. It also reinforces some intuitions I had about my own too ! I like tomato sauces depending on the health of my guts. On the worst days, I can't absorb it at all. But if I'm good, no problem. And glad...
    2 points
  42. Helen Vajk
    Not a fun experience, my sympathies. FYI I've done over 30 short trips with medical missions to various destinations. Finding gluten-free food in such countries as India & Bangladesh was surprisingly easy. Latin America is the home of corn tortillas, lots of naturally gluten-free food. Even Ethiopia was good - they do have Italian cuisine/restaurants...
    2 points
  43. trents
    And the problem with generics is that the dispensing pharmacy will often switch manufacturers to get better prices. That and the fact that much of our medication is manufactured in China which makes it difficult to monitor compliance with allergen concerns.
    2 points
  44. Elizabeth Butler
    I absolutely loved this article. This isn’t the first time I’ve seen a lot of this information minus the “dog” healthcare aspect however it was written in such attention catching way I’m going to try to share it with others. Also I would like to add. I’ve been gluten, dairy free, attempting corn/soy free( very small amounts) for awhile now with excellent r...
    2 points
  45. trents
    Barebones lay version: It's a targeted therapy that blocks the action of certain immune system cells that attack the villi lining of the gut and cause damaging inflammation for those with celiac disease without suppressing other vital immune system responses. How'd I do?
    2 points
  46. cyclinglady
    The fact that so many celiacs are not healing is disheartening. Note that the study said in the conclusion: “Quantitative histology in well‐oriented biopsy sections reveals villus atrophy in the majority of patients with coeliac disease who appear well controlled on gluten‐free diet.” I have been participating on Celiac.com forum for six years. ...
    2 points
  47. cyclinglady
    Here are comments from Dr. A. Fasano, (one of the world’s leading celiac disease researchers), about this study:
    2 points
  48. Ennis-TX
    My whole point with this, going gluten free was a 180 from a death bed and bucket list to slowly gaining my health back. I got nerve and brain issues with (scary). Heck going grain free and paleo (the diet of our ancestors we are genetically evolved to eat)....SO much better. Why spend millions of dollars trying to make a crop we should not be eating...
    2 points
  49. Marti S
    This article contains incorrect, misleading, and incomplete information along with a lot of off point discussion and typographical errors. Please edit or ask someone to edit it for you. For the readers, please refer to credible sources like physicians or dieticians for information like this.
    2 points
  50. KEMB
    I agree that it's a disappointing article. Instead of offering helpful advice, it makes the case for why an emergency supply is needed and then directs you to her site to shop for the products. I understand the need to have sponsors to help support celiac.com, but I think this really blurs the lines between sharing advice and sponsored content. When sponsored...
    2 points

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    • trents
      New to gluten-free

      By trents · Posted

      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      New to gluten-free

      By QueenBorg · Posted

      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      Refractory celiac disease

      By knitty kitty · Posted

      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
    • Grahamsnaturalworld
      Refractory celiac disease

      By Grahamsnaturalworld · Posted

      Ok, thanks for the advice, the only advice I've had that's made sense after 21years since my slight symptoms all my life turned into nasty symptoms 21 yrs ago and around 50 gp's and specialists all chasing the symptoms and not looking for the cause, after 9 years of misery I discovered my symptoms matched celiac disease and a blood test proved anti bodies to gliadin but it was too late it has changed into r.c.d. thanks again.
    • trents
      New to gluten-free

      By trents · Posted

      Welcome to the forum, @QueenBorg! Just for the sake of clarification, your desire to avoid gluten is connected only with your dx of fibromyalgia and not celiac disease, correct?
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