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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. The forum reports we have on Daiya are not good, so you may want to explore other brands:
  2. Let us know how it turns out. Unfortunately a negative test for celiac disease won't rule out non-celiac gluten sensitivity, which ~10x more people have than celiac disease...no test yet for NCGS.
  3. When in doubt you could always put your food in a microwave safe container to heat it up.
  4. Diarrhea is a listed side-effect of the medication, so even those without celiac disease may experience it.
  5. Yes, I understood and thank you for the links. The EMA-IgA (endomysial antibodies IgA) has a high false negative rate, so that is why I posted that info. The tTG-IgA (tissue transglutaminase IgA) does not have a false high false positive rate, and since there have been two positive tTG-IgA (tissue transglutaminase IgA) tests that were both very high, to me...
  6. Eating a restaurants is always risky, even if they offer a gluten-free menu or version of a dish.
  7. Welcome back, and perhaps go back to that gluten-free diet again to see if it clears up?
  8. This is already happening, as 15-25% of people in the USA report being on some form of gluten-free diet, which is well above the ~1-2% rate of celiac disease.
  9. I am not sure where you get a 15% chance of celiac disease with a 2x normal positive tTG-iga test result, but I seriously doubt this conclusion. The article below has recently been updated with the latest info on probabilities and accuracy of each test. As for the EMA-IgA (endomysial antibodies IgA): "The sensitivity of this test is approximately 50...
  10. This search should be helpful: https://www.celiac.com/search/?&q=cocktails&type=cms_records2&search_and_or=and&search_in=titles and this article as well:
  11. Can I assume that you are eating gluten daily now? If so, these are common symptoms of gluten sensitivity or celiac disease, but of course they also could be something else, so be sure to talk to your doctor about your symptoms. If you are eating gluten for your tests, then you may want to ask your doctor if you can stop until a few weeks before your...
  12. I agree that certain vitamins and minerals can be toxic when taken in high doses for long periods. I had gluten ataxia symptoms for over 20 years, and it wasn't until I began taking Magnesium Citrate and B1 that I began to find relief. I did not realize that I did need to supplement much more than I was, nor did my doctor discuss supplements with me...
  13. You can search prescriptions here for their ingredients, which may help you find out the culprit: https://dailymed.nlm.nih.gov/dailymed/
  14. I don't recall all info from your last posts, but hopefully you were eating ~2 slices of bread's worth of gluten daily for 2 weeks before the endoscopy, and at least 6 weeks before the blood tests. You do have one positive blood test result, and you can find out more about what that means in the article below. It could be that you have non-celiac...
  15. Thanks for sharing this, I wonder how many products this flour made it into? Cargill is a major supplier for the food industry.
  16. Please search the ingredients of any prescription medications here: https://dailymed.nlm.nih.gov/dailymed/
  17. Not to discourage you from helping your daughter, but driving that much in an Ohio winter can also be dangerous. I am just wondering if there is a safer way to deal with this. Could she be a member and do the meal plan while the weather is good, then switch to a different option during the colder months? Could you do mail order meals, or could she stock...
  18. This study is less than a year old, and it consists of data that was taken over a seven year period. It's unclear whether the subjects in the study were following a strict gluten-free diet, but the reality is that many celiacs don't follow a strict diet, and many often cheat on their diets, or eat at restaurants where contamination is common.
  19. I would only add that if you react that strongly to gluten, then you already have your answer. What's the point of doing the testing? I'm not one to steer people against their doctor's advice lightly, but to be the devil's advocate let's just say that you eat a lot of gluten for two weeks before your endoscopy, but your tests are negative. Would you...
  20. You can search for prescription medications here: https://dailymed.nlm.nih.gov/dailymed/ and a look at: https://dailymed.nlm.nih.gov/dailymed/search.cfm?labeltype=all&query=zenpep and I don't see any gluten ingredients used.
  21. The antibodies are mainly only produced in individuals who mount and autoimmune reaction to gliadin, which is the part of gluten that triggers this reaction. People without celiac disease or gluten sensitivity can eat all the gluten they want and won't normally test positive.
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