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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Is celiac testing necessary?
Scott Adams replied to Wise1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are also other things to consider, for example an official diagnosis would likely lead to increased costs for private life and/or medical insurance--life insurance for sure, but on the medical side it depends a lot on the type of insurance you have, where in the world you live, etc. Most people don't mention this, but it is a fact, so you may want to... -
Wow, welcome back and I'm sorry to hear that you're not doing well. You are correct to question your doctor regarding the number of samples they plan to take during a endoscopy for celiac disease, and you are correct that the recommended amount is at least 4 samples. We had someone post here recently that they spoke to their gastroenterologist (in the...
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It is possible you have both, but I don't want to second guess your doctor. Many people who have eczema have reported improvement of their symptoms on a gluten-free diet, and it would be interesting to see how your symptoms are after a 100% gluten-free diet for a few months. Please let us know how things go.
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Undiagnosed and next step
Scott Adams replied to Lindsaygalaxy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would only add that you've already basically self assessed that you have non-celiac gluten sensitivity, and whether or not you go the route of getting a formal celiac disease diagnosis is up to you--you know that gluten causes your symptoms, and removing it makes them better. A formal diagnosis may give you access to more follow up care, but you may also... -
What does all of this mean????
Scott Adams replied to CLAwesome's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum. If you had a positive blood test for celiac disease, which is the normal first test done before an endoscopy for celiac disease, then those results combined with "focal mild increase intraepithelial lymphocytes" likely means that you have celiac disease. Of course your doctor would need to confirm this, however, there are many doctors... -
Welcome to the forum! It sounds like you've already figured out that you have non-celiac gluten sensitivity, and that you may actually have undiagnosed celiac disease. You are correct, to get a formal celiac diagnosis you'd need to eat gluten daily for at least 6-8 weeks (~2 slices of wheat bread daily) before taking the test, and then possibly get an...
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Welcome to the forum! You very well could have eczema, however, some people on this forum were misdiagnosed with eczema when they actually had dermatitis herpetiformis. If your rash includes very tiny, hard, clear blisters that are incredibly itchy, consider having your dermatologist do a biopsy on them for DH. If you do have DH, even the smallest cross...
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I just wanted to post this update which came to be via email directly from Dr. Kenneth Fine--he doesn't have time to join the forum and reply to questions directly, but here is his reply to some of the posts here about his lab and methods: So, Dr. Fine believes that gluten sensitivity (NCGS) is or can be preliminary to celiac disease, that it is not...
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This new article on the connection between autoimmune thyroid issues and celiac disease is interesting, and there are studies that support a gluten-free diet in many with thyroid conditions even if they don't have celiac disease. I suspect that it will later be found they such people fall into the non-celiac gluten sensitive group: https://www.cureus...
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Top Brands of Gluten-Free Oat Cereal
Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
Yes, if they are labelled "gluten-free" they should really be gluten-free.- 9 comments
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Welcome to the forum, do you have a link to back up this concept? I ask because you’ve mentioned grains that are clearly regarded as safe for those with celiac disease, for example sorghum. Potatoes have never been in question. Perhaps you are referring to people with celiac disease who have ongoing symptoms?
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Supplements
Scott Adams replied to Grandma Mary's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you look at the cost per tablet, and you need to include iron (I can't), Geritol is an excellent choice. -
Confusions about Specific Carbohydrate diet
Scott Adams replied to Grandma Mary's topic in Food Intolerance & Leaky Gut
The SCD used to be fairly popular among celiacs with ongoing symptoms, but I haven't heard it mentioned here in a while. Where did you hear about the SCD? Here is an older article on it: -
Newly diagnosed - Very anxious
Scott Adams replied to sadfaceemoji's topic in Coping with Celiac Disease
This article may be helpful: -
Top Brands of Gluten-Free Dog Food
Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
Dogs did not evolve eating grains, so I find it strange that veterinarians keep citing this single study as a reason to keep feeding grains to dogs.- 7 comments
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I don't believe that a coffee enema would be helpful for canker sores, or anything else. I am pretty sure that this "treatment" isn't recommended by any reputable medical doctors, however, the antibiotics are what likely rid your system of the candida.
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Food Allergen Labeling—What Happens Next?
Scott Adams commented on Andrea Levario, J.D.'s article in Autumn 2004 Issue
As the article states in the large font above it: "Journal of Gluten Sensitivity Autumn 2005 Issue. NOTE: This article is from a back issue of our popular subscription-only paper newsletter. Some content may be outdated."- 2 comments
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- fda
- fda regulations
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Is this celiac?
Scott Adams replied to Greek4eva323's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What does your doctor say? -
Is this celiac?
Scott Adams replied to Greek4eva323's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It looks like you have a positive blood test for celiac disease: T-Transglutaminase (Ttg) 6 U/mL (Standard Range 0 - 5 U/mL Flag H), and you have both genetic markers for it, and these two things mean that you most likely have celiac disease. Even if your biopsy were negative I think you should still consider going gluten-free. Were you eating 2 slices... -
Should I List Celiac in my Medical History
Scott Adams replied to Ginger38's topic in Related Issues & Disorders
If you were never formally diagnosed by a doctor with celiac disease I would not put "celiac disease" anywhere as part of your health history. The reason I say this is that it may lead to more expensive and harder to get private health and life insurance, so why subject yourself to this if you were not diagnosed with it? -
It's doubtful there would be any gluten contained in vape cartridges, whether they are marijuana or tobacco, but have you tried different brands just to see if this still happens? Also, perhaps it's time to just switch to the real thing, or try gluten-free eatables?
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Since you had an endoscopy so long ago it sounds like you're aware already that you have an issue with gluten, and it's not fully clear exactly how much gluten you've been consuming over the past 20+ years. It sounds like you eat some gluten, but not much, and may not have been eating it daily before the tests you took back then, and the test you took recently...
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I would need to ask him about this to be sure, and hopefully I don't get this wrong, but going from memory of past conversations we had years ago I believe that Dr. Fine believes that nearly everyone with the celiac genetic markers should be gluten-free, and his stool tests in those with the genetic markers who eat gluten are usually positive for anti-gliadin...
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He believes that anyone in any of these 3 stages should go gluten-free.
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Here is his site...looks the same since the 2000's 🙂 https://enterolab.com/ He also pioneered the concept that the very first place that anti-gliadin antibodies will show up is in the stool, then later the blood, and finally some will get flattened villi. He now does both blood and stool tests so that he can help those in the very first stage, w...