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frieze

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Everything posted by frieze

  1. frieze
    cost, and habit.
  2. frieze
    doc wrong, find new doc. cycling and I may not be docs, but we do know our way around a blood test or two. good luck. and remember her "wrongness" if anyone asks for suggestions for a doc.
  3. frieze
    you need a new peds, if the IgG is +, he needs further testing, esp. since YOU are dx celiac.
  4. frieze
    remember you eat to live, not live to eat.
  5. frieze
    yup, do not get me started on bad docs! if the numbers do go down. is she going to dx you? or is she going to require that you go back on gluten and start the testing? idiot.
  6. frieze
    PLEASE, get him tested for type one diabetes, please. and get yourself retested for celiac. the tests can turn positive at any time, and you need the complete panel.
  7. frieze
    get him tested for type one diabetes, ASAP.
  8. frieze
    what does the ped think is the problem? the kiddo is sick, why? was her IGA level within normal? i would push for further testing, including DGP A+G. you are going to lose valuable growth time if you wait.
  9. frieze
  10. frieze
    yes, start your own topic. Macrocytic anemis, IS B 12 def anemia.
  11. frieze
    yup, call doc. if TWO nurses can't help you with this...got to go to the source. lol
  12. frieze
    i understand CL point, BUT,,, he is at an age were major growth should be expected, and you might not get that back if you keep him on gluten, even small amounts at school. if he is a reasonably mature 13 year old i would have a sit down with him and explain the situation, perhaps he would elect to wait till he is older, and grown.
  13. frieze
    there is no test for sensitivity, that is a celiac test. make sure you are eating gluten up till the scope time.
  14. frieze
    frankly, i think he is too young to put through the re exposure. if the testing had been done properly in the first place... but he can not really understand why you would be causing him pain. and he needs to make up the lost growth. try to get a thorough genetic testing, not JUST for the 2 genes recognized in the USA.
  15. frieze
    Immodium comes n liquid form... I can not imagine what is causing the withdrawal problem...but what is, is.
  16. frieze
    hmm pepto has routinely bee recommended here. it is not going to interfere with the disease process... just be aware that your stool will be black.
  17. frieze
    the genetics testing WILL NOT RULE OUT celiac, they only test for two genes, and there are others.. RAVEN, where are you????
  18. frieze
    PCOS may be caused by hormones, but we don't know WHAT throws those hormones out of wack. those of you dx, you are on LOW carb diets, yes?
  19. frieze
    OP, check out sphincter of Odi dysfunction.
  20. frieze
    Ennis, how about a gluten free "camp", do you have 4-H down your way? perhaps you could do a day camp when the resident camping is finished for the year?
  21. frieze
    were you gluten free when the blood work was done?
  22. frieze
  23. frieze
    there are only a few here that are "into" the gene testing, and, remember that not having the usual two, does NOT rule out celiac.
  24. frieze
    the gene test is NOT a slam dunk, don't have celiac if test is negative.
  25. frieze
    karen is more polite than I. make arrangements for a different doc, and then ask this one why he/she lied to you.
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