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aikiducky

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Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    Is your son gluten free? If he isn't, what's stopping you from having him tested? You don't necessarily need to have celiac for your son to have it. Pauliina
  2. aikiducky
    Just my opinion, but, DarkIvy, the best thing if you want to pursue an official diagnosis is to go back on gluten NOW. The longer you're gluten free, the more your intestines will heal, the more likely it is you'll get a false negative on the tests. Besides, the longer you're gluten free, the more difficult it is to make yourself eat it again! Better to keep...
  3. aikiducky
    I'll be thinking of her, too. Pauliina
  4. aikiducky
    It's not uncommon, especially for adults, to have negative blood tests but a positive biopsy, I wouldn't consider celiac ruled out until you've had a biopsy and tried the diet. Only if the biopsy is negative AND you try the diet and your symptoms don't change, I'd say look for some other reason. I'm not saying that you necessarily have celiac, but you...
  5. aikiducky
    One thing that happens after you start the diet is that after your body has had a break from the constant gluten bombardment it had to endure earlier, now that it doesn't have to deal with gluten all the time, it gets more sensitive to it. So after going gluten free you can expect to have a more severe reaction to minute amounts of gluten. That's why people...
  6. aikiducky
    My thought is that your family really should get tested. Have any of them decided anything about that yet? Pauliina
  7. aikiducky
    If you were diagnosed by a biopsy with celiac as a child, you are celiac. The old diagnosis would still be valid, since celiac is a life long disease that doesn't go away. There might be something to be said for doing a biopsy now to see how much damage there is maybe. I'm very sorry that you have been sick. It's too bad no one knew to tell you that...
  8. aikiducky
    It would be safer to wash your hands after handling gluten, otherwise you'll have quite a good chance of glutening yourself by touching your mouth without even thinking about it. Definitely don't just wipe the gluten crumbs off on a towel and then use the towel to wipe a dish you plan to use! I'm not sure about this one, but just in case, isn't there...
  9. aikiducky
    I hope the Percocet kicked in... Yes, thank you for that link! The suggestions in the end were very sensible I think, and pretty much what I have ended up doing (drink lots, not get overheated, not pushing it too much in one go, the fact that even seemingly insignificantly small amounts of exercise help if you stick to it). This...
  10. aikiducky
    In my case, whenever I accidentally ingest just some little crumb of gluten, I only start to feel completely "normal" after three weeks. And if you've just started the diet obviously you have a lot more recovery to do. So I'd expect it to take a while. When I first went gluten free I really noticed a bump in my recovery at eight months or so, where...
  11. aikiducky
    I tend to take about three weeks to recover completely, but it's like Kaycee said, the third week I'm just a little down and off and I forget why. The I remember that I was glutened three weeks ago. I used to get a bit confused about it until I figured out that it really took me that long to recover. Last time I got glutened was beginning of April,...
  12. aikiducky
    It seems to be fairly normal to have ups and downs in the beginning. I'd just keep going for a while, and if it seems like you have too many downs, have another look at everything you eat, how careful you are being about cross contamination, and if that doesn't help, consider leaving out dairy for a while. Temporary lactose intolerance is very common even...
  13. aikiducky
    I just wanted to add that I've been gluten free for two and a half years now, and i wasn't anything like as sick as marciab's signature says she was, but sometimes i still get something that I could call mild post exertional fatigue. A bit like feeling like I have the flu. Especially if I've been recently glutened - or caseined. I've actually started to avoid...
  14. aikiducky
    Of course your starving if you only consume 800 calories a day! 5 pounds in two weeks is actually pretty good, but you're right, you're not going to be able to go on like that. If you keep eating that little, your body is going to think that there's a famine going on and start holding on to everything it can. The way to lose weight permanently is slowly...
  15. aikiducky
    On one hand, the inconsistency of your symptoms makes me think it's just a lactose problem: Fat makes you digest slower, which gives your body a chance to digest the lactose. That would explain why fattier milk products don't bother you so much. There's less lactose in cheese and kefir and butter (butter and hard cheese are pretty much lactose free), than...
  16. aikiducky
    Not to depress you or anything, but sometimes it takes me three weeks to get my energy back to normal after a glutening... Pauliina
  17. aikiducky
    It's not unusual to have a follow up endoscopy to see how you're progressing with healing. If you had had a positive blood test result, they could take another blood sample to see if the antibodies are coming down, but because you had a negative blood test in the first place that avenue for follow up testing is closed, which I assume is the reason they'd...
  18. aikiducky
    I think it's just plain too early, especially considering how ill she's been. Recovery time for adults is more like two years instead of just a few months. If you have seen some improvement I personally would choose to wait a bit longer before having any follow up testing. Especially if her antibodies have gone down, that's a good sign. Glad to hear she...
  19. aikiducky
    It doesn't explain why I get brain fog every time I get glutened though. I mean, I don't just suddenly turn iron deficient one day and then not iron deficient the next when the brain fog lifts again. But interesting nevertheless. Pauliina
  20. aikiducky
    Cheese that stands alone... Welcome to the board, you're not alone here! I don't have an official diagnosis, because I went gluten free before testing, had a negative blood test, and I couldn't face eating gluten ever again to try and get a positive test result. I did wish (sometimes still do) that I had an official diagnosis, but you know, the...
  21. aikiducky
    I don't necessarily get bad GI symptoms at all, but brain fog is a guaranteed one if I get glutened. GI symptoms seem to vary a bit depending on amount, time of month, and what else I have eaten at the same time. Pauliina
  22. aikiducky
    If you are gluten free, the blood tests should come back negative. That means that you've done a good job on the diet so congrats on that. The gastro doc is ignorant. How careful are you about cross contamination and minute amounts of hidden gluten? Many people get more sensitive to gluten when they go gluten free and stop eating it all the time. Another...
  23. aikiducky
    I don't have a diagnosis, and I don't actually remember when exactly I went gluten free any more. It was somewhere in October or November 2004, but other than that... maybe I should just celebrate for two months straight. Pauliina
  24. aikiducky
    It probably is suitable for a lot of coeliacs. I'm just very very sensitive. If there are no suspicious ingredients and it says "suitable..." I'll eat it. If there's, say, glucose syrup and that choice of words, I can't be sure that the glucose syrup isn't from wheat. But a lot of people seem to tolerate glucose syrup from wheat anyway, since there is so...
  25. aikiducky
    On the other hand you should be aware that if you've been gluten free for several years, it might take much much longer than a month to see any damage in the intestines, so all you might end up doing is making yourself sick and still get a negative diagnosis. I'm not saying you shouldn't do it, but be aware of all the pros and cons. Pauliina
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