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cristiana

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Everything posted by cristiana

  1. cristiana
    Definitely. Migraines visual and painful migraines - thankfully now a thing of the past. Brief episodes of waking up with what is called hympompic hallucinations when the disease first became active ten years ago - weird, but apparently even 'normal' people get them too! Episodes of finding it hard to find the right word for something - that still hits...
  2. cristiana
    Thank you! Lightbulb moment! I share the toothpaste with my family but the other day, by mistake, I used one of my gluten eating children's toothbrushes. Now it may or may not be related but these last two day I have had some awful canker sores develop in my mouth - I had two bad bouts before DX but no recurrences since being gluten-free. Could this...
  3. cristiana
    I'm just wondering - might it be worth having a stool sample analysed in case there is some sort of stomach bug causing this? Also - anxiety - have your iron/B12 levels been checked? If these levels are low, it can really have an impact.
  4. cristiana
    Hi Christine - do you have your B12 numbers to hand? I am interested - before DX they were just over the minimum level for me, which I think with my lab was something like 150. They went up to near 200, then when I started getting D. they went down again. My nutritionalist told me she was surprised I wasn't offered injections. However, I might ask for...
  5. cristiana
    Glad you found out what it was. I hope the eye drops work soon. I read this thread with great interest as I have had some odd eye issues in the last ten years. I had a short episode of double vision when my youngest child was very small and around that time I had lost a bit of peripheral vision for a few days. MRIs were clear though. My eyesight went...
  6. cristiana
    Hi MomB - thanks for sharing. Apart from all the other things I mention, I have noticed that for about a year now I have found it really painful on one side of my body if I wear tight clothing. I thought it might be shingles without the rash - a line along my chest to my spine on the left, it has really hurt to the point of it feeling almost like a burning...
  7. cristiana
    My endoscopy was performed in small private hospital. My first procedure, too. Dreaded it. Wanted to forgo whatever it was they put in my arm - in the UK you can have it withougt any sedation or you can have some sort of shot that kind of knocks you out, although you are still awake, kind of. My doctor and others told me that it would be fine and I should...
  8. cristiana
    An old thread that might be helpful. https://www.celiac.com/forums/topic/83588-gluten-free-and-still-high-ttg-iga-level/
  9. cristiana
    Hi Lance My sympathies as really, until I went gluten-free, I didn't have all the unexplained pains that I do now and I still don't know what to blame: is because I have damage caused by being an undiagnosed celiac for over forty years? Glutening? Other completely unrelated health conditions? Old age?! In my case, PN is tingling, fizzing and buzzing...
  10. cristiana
    I'm just wondering, have you had vertigo linked with gluten in the past? The trouble with vertigo is it has many different causes, including gluten. I only ask as I had a type of vertigo that I attributed to gluten cc that went on for months and it turned out it was cervical dizziness caused by an old whiplash injury. I'm sure others will chime...
  11. cristiana
    Or the odd chocolate!
  12. cristiana
    Bartfull, you are so right. Even some of the most well-meaning of restaurant/kitchen staff will get it wrong: either they don't understand how serious cc is or don't know what gluten is! The other day I went out and there were items marked 'G' on the menu. The key said this meant that the items in question were gluten free. Yippee I thought. But when...
  13. cristiana
    My brother in law lives in Freiburg and says there is an amazing gluten-free shop in his neighbourhood. Anyway, I was just trying to find it and came across this amazing website. The Germans are famous for their efficiency, I am not surprised such a helpful website exists. Anyway, looking at this you aren't going to have any problems over there! Open...
  14. cristiana
    janpell... hi. Not all over tingling. The ball of my left foot, around the ankle; sometimes in the toes (left and right); sometimes up the back of my left calf; a spot on my right calf; I sometimes wake up feeling my fingers have gone to sleep (I do have a DX for carpel tunnel and ulnar compression but some days are definitely worse than others) and the...
  15. cristiana
    Do you know, Icelandgirl, there is always something! I think I shall change my user name to alwayssomething. Just back from hospital tests on Friday, looking forward to a bit of a breather until the next blood tests, and then this buzz in my face starts up again! And in my legs! I am thinking I will go private to get my iron and B12 checked again. My...
  16. cristiana
    Hello All Well it is nearly two years now since my gastro symptoms started, although I think I could say that before that I had tingling in my fingers, buzzing on the back of my legs, twitching in my face, for about six months - minor but annoying. I was then diagnosed with celiac disease in the Spring of 2013. My blood iron and B12 levels were very...
  17. cristiana
    Janpell - thank you again. I have had my annual mammogram and ultrasound today, the pain over the last year has been so bad that I was really glad the radiographer was prepared to go the extra mile and give me an u/s as I was so sure they had missed something last year. But no, clear tests, thank the Lord. I did notice after they did the side shot it affected...
  18. cristiana
    Thanks so much - I ought to try eliminating some of these other foods as I don't think gluten is the substance that makes me sore, I really don't have it in my diet at all now unless it is CC. Couldn't agree more about needing to get on top with the inflammation problem. Yesterday I was in bed with the early stages of what felt like flu and I tried...
  19. cristiana
    Couldn't agree more with ravenoodglass. B12 levels are so important and for me at the early stages, when my B12 was low, taking B12 in pretty large amounts made all the difference with my anxiety - I mean like night and day. And still if I get tired again I take a sublingual B12 in the morning and I don't fall asleep at night in front of the TV at 1...
  20. cristiana
    Oddly enough someone I know was only telling me the other day how it has absolutely changed her life. She isn't a celiac but she says that, for example, a ripe banana and an unripened banana (not sure which is high or low fodmap) will literally mean the difference between having D ten minutes later and not having D at all. So she said that it works.
  21. cristiana
    I agree with nvsmom, getting your levels checked would be valuable - here in the UK I was offered ferritin, B12 and D. Ferritin was very low. B12 borderline, D OK. Long and the short of it is I have had so much more energy since taking iron supplements and B12. I saw two nutritonalists and the private one was brilliant. She told me to make sure I...
  22. cristiana
    It is good that you have sounded out your sister, too. I really hope that everything goes well with your interview tomorrow. In the meantime, as I said, try not to worry about your doctor. Hopefully the new person will be appointed before your doctor leaves so you won't need to worry about the other doctor. Take care.
  23. cristiana
    I do sympathise, when one finds a good doctor it can take a long time to really build up that relationship. I live in the UK and my own GP that diagnosed me left shortly afterwards. The doctor that replaced my GP was so much younger (she looks so young too!) and I was concerned but you know what - she has been absolutely brilliant. All my fears were...
  24. cristiana
    KEMB - interesting, it seems to me that that area is a junction for a lot of different muscles, nerves, tendons etc so I guess this is why it is so complicated. I do have a friend who has been thoroughly checked out but has almost constant pain in her left breast - she was told, 'Its your ribs'. I really appreciate your comments, you have really put...
  25. cristiana
    Thank you for your further input, Bartfull. It sounds a marvellous thing - I used to be skeptical too of so much, but when my B12 and blood iron was so low and I started to take supplements I could not believe the difference it made and so quickly. Just a few tablets or a few drops of this and that... amazing. KEMB - I am so grateful for your input...
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