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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    What are you finding when shopping for gluten-free food products since the Corona virus outbreak? My wife and I went to online order some things from Bob's Red Mill this morning and found that most of the gluten-free products we normally purchase from them were out of stock. Is this due to hoarding or production issues created by work force absenteeism...
  2. trents
    It's me, where does that graph come from? Does it represent a personal profile of reactions/sensitivities or is it a generic tool you found somewhere? I note that instant coffee is a mild offender. Is that in comparison to non instant coffee? If so, that strikes me as interesting.
  3. trents
    I guess one idea I have is to consider going on an anti inflammatory diet. There are certain foods that tend to increase inflammation that should be avoided and there are probably others that tend to quell inflammation. This may be one of those things you will have to live with but learn to manage better. Your idea of avoiding strenuous physical activity...
  4. trents
    If you are sensitive to sunlight that can be a sign of Lupus, a disease which has a wide range of symptoms such that it manifests itself differently for different people. It has long fingers. But sensitivity to sunlight is a classic Lupus symptom. And it is another autoimmune-based disease. I'm not certain how a minor amount of gluten ingestion affects...
  5. trents
    Many celiacs are also dairy intolerant and soy intolerant. Very common.
  6. trents
    There is suspicion from within the Celiac/gluten intolerant/gluten sensitive community and it's researchers that 20ppm might not be an adequate limit for some. That's why it's under review. As far as your shaking, neurological dysfunction of various kinds is a well-known gluten-related problem within the celiac/gluten sensitive community. In retrospect...
  7. trents
    I have to leave for an appointment now but you raise some questions that I think I can help with. I'll get back to you.
  8. trents
    It's not an easy question to answer because individual celiacs vary in their sensitivity to trace amounts of gluten and even how they react to gluten. It is a well known fact that many or most people who eventually get diagnosed with celiac disease never experienced dramatic gastro intestinal distress. The investigation that finally led to their celiac disease...
  9. trents
    Unfortunately, the offending ingredient can be almost anything for different people. And I think it is also true that the gluten-free food industry probably uses a lot of ingredients that are not commonly found in mainline food manufacturing in order to come up with products that approximate that taste and texture of their mainline equivalents. So we can...
  10. trents
    I would check with your local government social services department to see if there are any public resources available to address your home's mold problem. That presents some potentially serious short and long term health risks. When you explained that your breathing was fine all day until you returned home that was tell tale IMO, especially if that is a...
  11. trents
    Thyriodist? Is that a typo? When I google that I get nothing. Did you mean to type "thyroiditis" which is inflammation of the thyroid gland? May we assume since you are a celiac that you are following a strict gluten free diet?
  12. trents
    It's good to hear things are more or less under control now. Sounds like quite a medical ordeal you have been through and a long winding rode. Thanks for sharing. So many more medical problems are autoimmune based than most people realize.
  13. trents
    They may have chosen to just be polite. I do computer repair and technology support and realize I can't always correct my customer's misconceptions and misnomers. I generally know what they are trying to say even if they don't say it correctly and it's often easier just to fix the issue rather than to educate. Most likely, they won't remember it anyway and...
  14. trents
    And you are sure these are swollen lymph nodes and not just some kind of cyst? https://www.healthline.com/health/sebaceous-cyst
  15. trents
    When I was a child I had frequent bouts of tonsillitis for which I was given antibiotics until age 7 when the tonsils were removed. Back in those days, penicillin was still a silver bullet. As a teenager and college-age young adult I was on tetracycline therapy continuously (if I recall correctly) for acne. I often wonder if all those antibiotics set the...
  16. trents
    Ariadne100, I think we can all relate to the skepticism you describe from people, even in the medical community. I look at it as belonging to the vanguard of medical discovery. I imagine disease researchers got the same treatment in the 1800's when they were telling doctors that infections were being caused by organisms too small to be seen with the naked...
  17. trents
    Just a reminder that though there have been laws passed to improve food labeling for the benefit of those who need to avoid certain food elements, the commercial food industry can and does change the formulation of their products without notice. We get used to buying certain things because we checked them at some point in time and they contained no gluten...
  18. trents
    To what CL said I would also add those who do have celiac disease or gluten intolerance/sensitivity will experience improvement when eliminating gluten. That would make endoscopes and lab work unnecessary except to the extent of providing peace of mind and perhaps reinforcing the need to eat gluten free. The crux of the matter, whatever your test results...
  19. trents
    Ariandne100, Sounds like you have done a good assessment here of things that likely will cause you issues. I find that over time I have developed various kinds of reactions to things that never used to bother me. Some of may be related to plain old age-related changes. Our immune system becomes more dysfunctional as we age even in the absence of celiac...
  20. trents
    Ariadne, You say you always are careful to read food labels so we assume you are avoiding gluten. But GFinDC makes a good point about about the vegetarian diet and the challenge it presents in regard to B12 deficiency. Even though you do eat fish and may be getting some B12 in the fish you consume, it may be much less than your body actually needs. There...
  21. trents
    Did you check the ingredients for the Heinz tomato soup? Many or most canned soups use wheat starch as a thickener.
  22. trents
    It is also true that those with one autoimmune disease often develop others.
  23. trents
    Have you suggested this to your primary care doc? I find that if I link some some evidence from the web I sometimes get listened to by physicians. There is much more awareness in general concerning celiac disease within the medical community than there was 15-20 years ago but there is still a lot of ignorance as well. Many of the symptoms you list are not...
  24. trents
    Very interesting and seems to be another piece of the puzzle. However, it doesn't answer the question of why this only happens with certain genotypes. Presumably, those without the Celiac genes would be exposed to the same bacteria but their immune systems would still be able to differentiate between the bacteria and the grain when encountering the same gluten...
  25. trents
    No insurance. That makes it tough to get specialty care. I guess the only thing I would suggest is keeping a food diary to see if there is an association between things in your diet and these bouts of bowel dysfunction you describe.
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