For several months after I started the diet, certain things got much, much worse, mostly in the hormonal department. But about 6 months in, I started to feel better...so much better that I realized that even what I thought of as 'normal' before or 'healthy' before paled in comparison. If you had anemia, you were not 'fine' before, and you need to remember that. If they hadn't caught it that early, terrible things would have started to happen to you -- the things that we have all experienced here. This includes cancer. You should consider how lucky you are. I wish that they had tested me when I was young and saved me years of slow decline.
We're here for you. Remember: Nothing is a loss. It's a trade.
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#16
Posted 19 February 2013 - 06:28 AM
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#17
Posted 19 February 2013 - 12:49 PM
I had iron infusions today, and waited several hours after to try to see my GI doc who was on rounds. Unfortunately I was turned away and the earliest booking for an appointment with her is in over a month. The attending in the GI ward told me to stick to my diet exactly as it is untill I see my doc, but the thing theyre the most worried about is the swelling in my hands, which apparently they will bring up with my doc asap. I'm exhausted from my infusions and am going to go crawl into bed and stay there as long as I possibly can.
29 years old
Diagnosis: Severe Malnutrition due to Celiac - November 2012 via biopsy.
Severely iron deficient for 3+ years before diagnosis. No GI Symptoms. Two negative blood tests before biopsy.
Iron & Nutrient infusions schedule for Feb & March 2013
#18
Posted 19 February 2013 - 01:04 PM
"Since you've substituted all your bread with cornbread, corn would be high on my list of things to stop. Bartfull says he reacts worse to corn than gluten. But aside from that you may also want to quit dairy."
SHE, Cavernio, I'm a SHE.
I really should change my screen name to "Bart's Mom" or something. Bart was my dog. When he misbehaved I used to call him Bartless as in "Bart the hopeless". When he was a good boy, I would call him Bartful as in "Bart the wonderful". And when I signed up here my brainfog not only led me to use a confusing screen name, but I even spelled it wrong!
Anyway, I know not everyone has trouble with corn, but a lot of us do, and it was by substituting regular bread with cornbread that I lost my "honeymoon period". I went from feeling better than I'd ever felt in my life to feeling crummy again and developing a host of other intolerances. I STILL haven't gotten back to feeling as good as I did those first few weeks, but I'm a lot better now than I was a few months in. As a matter of fact, I'm considering going back to nothing but meat and cheese and broccoli and cauliflower for a while to see if I can get my energy back.
Either that or I need to save some money to get tested for thydroid.
#19
Posted 20 February 2013 - 09:14 AM
Sorry bartfull, I too get called a he when I'm a she. Cavernio's just Veronica and was a dumb name from school days that no one actually called me. Comes from having your name on things where letters can be rearranged. But I like it because it's pretty unique, no adding random numbers for me.
June 2012 positive visual of celiac disease from gastroscopy
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