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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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- hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease11Insomnia help
Hi @knitty kitty Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially w... -
- xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease43My journey is it gluten or fiber?
I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see. -
- knitty kitty replied to Charlie1946's topic in Related Issues & Disorders45Severe severe mouth pain
@Charlie1946, Sorry I sidetracked your thread a bit. Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over. Have you been checked for SIBO? There's a significant link between length of Omeprazole use and SIBO. I had SIBO, thrush (Candida... -
- Lkg5 replied to Charlie1946's topic in Related Issues & Disorders45Severe severe mouth pain
My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.- 1
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You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
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Hi @knitty kitty Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else.
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By xxnonamexx · Posted
I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see. -
By knitty kitty · Posted
@Charlie1946, Sorry I sidetracked your thread a bit. Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over. Have you been checked for SIBO? There's a significant link between length of Omeprazole use and SIBO. I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole. I had to stop taking it. It was a horrible time, so I understand how painful and frustrating it is. You change your microbiome (the bacteria and microbes living inside you) by changing what you eat. They eat what you eat. Change the menu and you get different customers. I changed my diet. I cut out dairy because I was reacting to the casein and lactose. I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges. By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out. SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you! The skin and digestive system is continuous. The health of our outside skin reflects the health of our gastrointestinal system. Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check. Niacin helps improve not only the intestinal tract, but also the skin. Sebaceous Hyperplasia is linked to being low in Niacin B 3. Lichen Planus is treated with Niacinamide, a form of Niacin B 3. Vitamins are chemical compounds that our bodies cannot make. We must get them from our food. If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well. Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins. So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal. Doctors are taught in medical learning institutions funded by pharmaceutical companies. The importance of nutrition is downplayed and called old fashioned. Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore. But we do, as people with Celiac disease, with impaired absorption. Nutritional needs need to be addressed first with us. Vitamins cannot be patented because they are natural substances. But pharmaceutical drugs can be. There's more money to be made selling pharmaceutical drugs than vitamins. Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years. Talk to your doctor and dietician about supplementing essential vitamins and minerals. Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/ -
My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
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