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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discussions related to the recovery process after you've been diagnosed.


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  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      39

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      39

      results from 13 day gluten challenge - does this mean I can't have celiac?

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      What apps or tech tools help you manage celiac disease?

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  • Posts

    • Wheatwacked
    • catnapt
      happy that  your iodine routine has been so miraculous for you   what other amazing things has iodine done for you?    
    • Wheatwacked
      I don't understand why you are continuing to persue a differencial diagnosis of celiac disease vs. NCGS.  Once you stop eating gluten, those symtoms will go away.  One less thing to worry about.  You improve without gluten so you proved the point.  Why beat yourself up?  Without gluten you can focus on the symptoms that remain and maybe over time, with the right nutrition for you, full recovery.  But it takes time to undo a livetime of poisoning. I'd still like to know your vitamin D. Feel free to ignore me.  
    • Wheatwacked
      Your choice. "Too much is too bad too" Yes I do think you might be iodine deficient.  The intake of iodine has decreased in the US by 50% since 1970.  Allowing for Celiac Disease malabsorption you are likely to be borderline on several nutrients.   I tried eating kelp but lost interest after a few months in the taste and effort to prepare.  Cut with scissors, soak, chew.  I did get noticible improvement in my muscle tone, specifically in my chest muscles but I was also set back by all the scary warnings of too much.  I now use Liquid Iodine 50 mcg/drop from Pipingrock.com.  It allows me to accurately intake 600 mcg, which is right in the middle of the safe range (150 to 1,100 mg.  By the way the Safe Upper Limit set in Japah is 3000 mcg) according to NIH.  Why guess?  Two years now and vision is recovering in my blind right eye, a sebacious cyst that would not heal since 2014 is almost completely healed (it was biopsied as Basal Cell carcinoma last year and doctor said my liver, kidneys, heart, lungs are perfect.  Almost all belly fat is gone and I am starting to feel more like the 25 year old I once was, instead of the decrepid 75 year old I became.    
    • trents
      I posted this comment, along with contact information, to the above mentioned government website: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."  
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