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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,301 topics in this forum

  1. Triomam
    nvsmom

    Just Had My Endoscopy And Have Very High Ttg Iga

    By Triomam, Last action:
    • 6 replies
    • 2.9k views
    • nvsmom
    • nvsmom
  2. dartmania2002
    anand

    Doctor Unable To Explain, Please Help 1 2

    By dartmania2002, Last action:
    • 27 replies
    • 4.5k views
    • anand
    • anand
  3. Nebraskamommy
    anand

    To Biopsy Or Not On Our 3 Year Old

    By Nebraskamommy, Last action:
    • 13 replies
    • 2.8k views
    • anand
    • anand
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  4. AKSheridan

    My Daughter Is Miserable, Possible Celiac?

    By AKSheridan, Last action:
    • 5 replies
    • 1.6k views
    • AKSheridan
    • AKSheridan
  5. jgaida01
    nvsmom

    Where Do I Go To Get Diagnosed - I Think I Have All The Symptoms?

    By jgaida01, Last action:
    • 10 replies
    • 2.1k views
    • nvsmom
    • nvsmom
  6. Montezuma
    cahill

    Where Do I Start? Allergist Or Gastroenterologist?

    By Montezuma, Last action:
    • 3 replies
    • 5.3k views
    • cahill
    • cahill
  7. glux

    Not Sure What I Have

    By glux, Last action:
    • 18 replies
    • 3.6k views
    • glux
    • glux
  8. JoJo2310
    NoGlutenCooties

    Vitamins Before Biopsy

    By JoJo2310, Last action:
    • 3 replies
    • 1.6k views
    • NoGlutenCooties
    • NoGlutenCooties
  9. JoJo2310
    NoGlutenCooties

    Which Dairy Allergy Is Linked To Celiac?

    By JoJo2310, Last action:
    • 2 replies
    • 1.4k views
    • NoGlutenCooties
    • NoGlutenCooties
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  11. Teetee
    GottaSki

    Weak Positive, Negative Biopsy

    By Teetee, Last action:
    • 12 replies
    • 3.7k views
    • GottaSki
    • GottaSki
  12. tealeaves1
    NoGlutenCooties

    Anyone Have Inconclusive Biopsy Results?

    By tealeaves1, Last action:
    • 3 replies
    • 3.6k views
    • NoGlutenCooties
    • NoGlutenCooties
  13. jackjujam
    LauraTX

    Would Love Some Input...

    By jackjujam, Last action:
    • 1 reply
    • 1.1k views
    • LauraTX
    • LauraTX
  14. Raesmommy
    skelly247

    Dr Said Endoscopy "looked" Like Celiac

    By Raesmommy, Last action:
    • 2 replies
    • 1.1k views
    • skelly247
    • skelly247
  15. tallypop

    Flare Ups?

    By tallypop, Last action:
    • 6 replies
    • 10.2k views
    • tallypop
    • tallypop
  16. nikki-chevelle

    Glutened Symptoms, Need Help!

    By nikki-chevelle, Last action:
    • 6 replies
    • 1.8k views
    • nikki-chevelle
    • nikki-chevelle
  17. kellysensei

    Blood Test Negative...so I Guess It's Ncgs?

    By kellysensei, Last action:
    • 4 replies
    • 1.7k views
    • kellysensei
    • kellysensei
  18. mommy2mande
    GottaSki

    Testing Done Today

    By mommy2mande, Last action:
    • 3 replies
    • 1.3k views
    • GottaSki
    • GottaSki
  19. SugarSpike

    Help Interpreting Test Results

    By SugarSpike, Last action:
    • 6 replies
    • 2.1k views
    • SugarSpike
    • SugarSpike
  20. Lee uk
    kareng

    Glucosamine And Vitamins

    By Lee uk, Last action:
    • 4 replies
    • 2.3k views
    • kareng
    • kareng
  21. Fireflash
    GFinDC

    Do I Have Gluten Allergy?

    By Fireflash, Last action:
    • 3 replies
    • 1.9k views
    • GFinDC
    • GFinDC
  22. skelly247
    kareng

    New With Borderline Test Results, Opinions?

    By skelly247, Last action:
    • 13 replies
    • 8.8k views
    • kareng
    • kareng
  23. JBarnett
    nvsmom

    Importance Of Getting Professionally Diagnosed

    By JBarnett, Last action:
    • 15 replies
    • 2.9k views
    • nvsmom
    • nvsmom
  24. BlessedMommy

    Hello! Any Others Who Can't Get A Formal Diagnosis?

    By BlessedMommy, Last action:
    • 10 replies
    • 2k views
    • BlessedMommy
    • BlessedMommy
  25. Triomam
    powerofpositivethinking

    Ttg Iga

    By Triomam, Last action:
    • 13 replies
    • 9.8k views
    • powerofpositivethinking
    • powerofpositivethinking
  26. dustout
    GFinDC

    Possible Gluten Problems, A Mixture Of Problems, Or Not. Unsure Where To Go

    By dustout, Last action:
    • 4 replies
    • 1.7k views
    • GFinDC
    • GFinDC

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  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Great Value Veggies cannot be trusted.

      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rath...
    2. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it. But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder...
    3. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      Thanks for the insight! It has been a whirlwind...very overwhelming and frustrating at times. But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion
    4. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      THANKS again!!!
    5. trents
      - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
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  • Posts

    • Scott Adams
      Great Value Veggies cannot be trusted.

      By Scott Adams · Posted

      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      Why now?

      By heart390 · Posted

      THANKS again!!!
    • trents
      Why now?

      By trents · Posted

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
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