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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease17Refractory Celiac disease - what to do
@RMJ what is the DPG test? I think my doctor never had me do that -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease17
Refractory Celiac disease - what to do
Thank you @Scott Adams and @trents this is very helpful, and I think I have some solid ideas to bring to my doctor (corticosteroids, testing for chron’s, increasingly strict gluten-free diet) @RMJ thank you this is definitely reassuring as well, I’m feeling frustrated and hopeless because I have gone through a similar progression of increasing strictness, an... -
- knitty kitty replied to SMK7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms22High IGA antigliadin, everything else normal, what does this mean?
Welcome to the Tribe! Take the Celiac diagnosis and run with it! P.S. Yes, adopting a gluten free diet is a big mental adjustment. Many go through the five stages of grief. Many are relieved to have a definitive diagnosis instead of being a walking medical mystery. The forum here can help with lots of articles and years of experience to get you... -
- SMK7 replied to SMK7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms22High IGA antigliadin, everything else normal, what does this mean?
This was the advice from the GI physician: "We discussed that your work-up is equivocal for celiac disease due to discordant serologies and biopsy results. As we discussed the gliadin DGP Ab IgA has a lower sensitivity (87%) and specificity (80-95%) for celiac disease compared to tissue transglutaminase Ag IgA (sensitivity of 95%, specificity of >...- 1
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- SMK7 replied to SMK7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms22
High IGA antigliadin, everything else normal, what does this mean?
Thanks, yes I have one of the celiac disease genes.- 1
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Posts
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@RMJ what is the DPG test? I think my doctor never had me do that
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Thank you @Scott Adams and @trents this is very helpful, and I think I have some solid ideas to bring to my doctor (corticosteroids, testing for chron’s, increasingly strict gluten-free diet) @RMJ thank you this is definitely reassuring as well, I’m feeling frustrated and hopeless because I have gone through a similar progression of increasing strictness, and am now at a level similar to what you describe, but have not seen any changes in my blood results. I am now thinking to cut out processed foods altogether maybe with the help of a dietician? I’m also worried about cross contamination from the tables or microwave at my work (there is often free pizza and such sitting). It just feels so...
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By knitty kitty · Posted
Welcome to the Tribe! Take the Celiac diagnosis and run with it! P.S. Yes, adopting a gluten free diet is a big mental adjustment. Many go through the five stages of grief. Many are relieved to have a definitive diagnosis instead of being a walking medical mystery. The forum here can help with lots of articles and years of experience to get you started on your Celiac journey. Best wishes! -
This was the advice from the GI physician: "We discussed that your work-up is equivocal for celiac disease due to discordant serologies and biopsy results. As we discussed the gliadin DGP Ab IgA has a lower sensitivity (87%) and specificity (80-95%) for celiac disease compared to tissue transglutaminase Ag IgA (sensitivity of 95%, specificity of >95%, which you tested negative for). Your duodenal biopsies were normal; though in mild cases of celiac disease, affected areas can be patchy. While about 90% of individuals with celiac disease carry the HLA-DQ2 allele, many people in the general population also carry this allele without developing celiac disease. In the context of some of...
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Thanks, yes I have one of the celiac disease genes.
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