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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Blood results
Aw thank you so much for replying so quickly. Just wish the endoscopy had been clearer but as you say she might be in the early stages although she’s had gastric intestinal symptoms for a few years now but was told it was IBS. She won’t get the results for about 12 weeks which is frustrating, so hopefully if she trials a gluten free diet things will hopefully imp... -
- trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Blood results
Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac... -
- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16
Blood results
Sorry, typing error, not strophic, should read strophic!!!! Did it again, atrophic, not strophic, (flippin technology) -
- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16
Blood results
Hi My daughter has had her endoscopy and biopsies done but still none the wiser as to whether it’s coeliac even though she has many of the signs and symptoms. Gastroenterologist not 100% convinced as herEMAb blood test was negative even though her TTG Ab19 was positive at 19, lab range was 0.0-7.0. Bulb D1 biopsy potentially looked a little flat/strophic, ... -
- knitty kitty replied to Natalia Revelo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Nutrient deficiencies despite normal MARSH and strict gluten-free diet
Welcome to the forum, @Natalia Revelo! Yes, I've been in a similar situation. You can read about my journey in my blog here. I found most doctors and others do not pay much attention to vitamins. Herbal supplements can be helpful, but they can't help as much as supplementing with vitamins. You're not deficient in herbs, you're deficient in essential...- gut healing
- malabsorbtion
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By Heatherisle · Posted
Aw thank you so much for replying so quickly. Just wish the endoscopy had been clearer but as you say she might be in the early stages although she’s had gastric intestinal symptoms for a few years now but was told it was IBS. She won’t get the results for about 12 weeks which is frustrating, so hopefully if she trials a gluten free diet things will hopefully improve even if only slightly. I know improvements aren’t likely to happen immediately -
Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac disease, perhaps transitioning from NCGS (Non Celiac Gluten Sensitivity) to celiac.
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By Heatherisle · Posted
Sorry, typing error, not strophic, should read strophic!!!! Did it again, atrophic, not strophic, (flippin technology) -
By Heatherisle · Posted
Hi My daughter has had her endoscopy and biopsies done but still none the wiser as to whether it’s coeliac even though she has many of the signs and symptoms. Gastroenterologist not 100% convinced as herEMAb blood test was negative even though her TTG Ab19 was positive at 19, lab range was 0.0-7.0. Bulb D1 biopsy potentially looked a little flat/strophic, D2 relatively unremarkable. Also found some oesophagitis and mild gastritis, biopsy taken from there. She has also to hand take another stool sample for faecal Calprotectin which I’ve never heard of!! Als advised to trial a gluten free diet. Just wondering if anyone has had similar results. Thanks so much -
By knitty kitty · Posted
Welcome to the forum, @Natalia Revelo! Yes, I've been in a similar situation. You can read about my journey in my blog here. I found most doctors and others do not pay much attention to vitamins. Herbal supplements can be helpful, but they can't help as much as supplementing with vitamins. You're not deficient in herbs, you're deficient in essential nutrients. Vitamins are chemical compounds that our bodies cannot make. The body must absorb theses essential vitamins from what we consume. The Gluten Free diet can be low in these vitamins. Gluten free processed facsimile foods are usually not fortified nor enriched with vitamins to replace those lost in processing like gluten containing foods are required to do. Malabsorption of celiac disease can cause deficiencies in these essential vitamins as well. Correction of nutritional deficiencies is essential. Doctors are not required to complete many hours of nutritional education (twenty hours compared to seven years in medical schools funded by big pharma companies). There are nine water soluble vitamins, the eight B vitamins and Vitamin C, four fat soluble vitamins, A, D, E and K. There are about a dozen trace minerals heeded, too. Without these, our bodies' health slowly deteriorates. Iron deficiency requires not only iron, but the eight essential B vitamins, and Vitamin C to make red blood cells. The B vitamins and magnesium and other trace minerals like boron are needed to build the bone matrix. Vitamin D is needed to regulate the immune system, make hormones and build bones and healthy joints. Vitamin D helps with depression. The eight essential B vitamins are needed for brain function. Deficiency in Thiamine B 1 and the other B vitamins can cause weight loss, anorexia, depression, as well as anxiety and panic attacks. I suffered through the same symptoms because my doctors did not recognize nutritional deficiencies. I had studied nutrition before switching to Microbiology at university, because I wanted to find out what those vitamins were doing inside the body. They are instrumental in repairing and healing our bodies. They are necessary for proper brain function. Nutritional deficiencies develop over time and our health declines on a sliding scale as our vitamin stores are depleted and not restocked. Nutritional deficiencies can drag on for years. Blood tests for nutritional deficiencies in the B vitamins are notoriously inaccurate. The best way to see if you're deficient is to take B vitamins and look for health improvements. High dose thiamine can help immensely. Mitochondria die if there's insufficient thiamine, adding to poor health. Thiamine Mononitrate is frequently used in vitamin supplements because it won't deteriorate in a jar on a shelf, Thiamine Mononitrate is shelf stable, and is as unreactive in the body as in a jar on a shelf. Other forms of thiamine are easier for our bodies to utilize. Benfotiamine promotes intestinal healing. The form of thiamine called TTFD (tetrahydrofurfuryl disulfide) improves brain function, mental health problems, and therefore body function. Celiac disease greatly affects ones ability to absorb essential nutrients. Correction of nutritional deficiencies quickly is important because, well, we've seen how bad our health can get if deficiencies are allowed to drag on for years. We cannot eat sufficient food to correct nutritional deficiencies. Supplementation with essential vitamins and minerals is required.
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