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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- jeffpine replied to jeffpine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Should I be screened for celiac disease?
WOW WOW WOW, your site did it for me: like this, i saw the ads for GliadinX and followed the product. There were several knockoffs. my engineer friend seperated them and found one at the local CVS at a bargain price. So yesterday I tried it. Twice. Lunch and dinner. works fine. Much obliged, -
- Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Reportable Disease
I am actively dealing with a ray of issues, my skin, eyes and digestive even though not eating wheat.Menopuase has activated so much right now, considering its getting worse with my health. I have learned so much thanks to this website.I wasn't properly told of my celiac disease which was confirmed by colonoscopy and endoscopy in 1994 the same year I gave... -
- Wheatwacked replied to sillyac58's topic in Coping with Celiac Disease3Recurring flu like symptoms after being precribed immune system stimulating drug
With all the bloodwork, have they checked your vitamin D? What is it? Celiac Disease causes malabsorption, so vitamin deficiencies are common. Doctors rarely mention this. B1 Gastrointestinal beriberi, a severe thiamine deficiency, is characterized by symptoms including anorexia (loss of appetite), abdominal discomfort and pain, nausea, and vomiting... -
- sillyac58 replied to sillyac58's topic in Coping with Celiac Disease3Recurring flu like symptoms after being precribed immune system stimulating drug
I used the cream for 4 days as prescribed 3 years ago. While I cannot be sure it triggered these problems, the timing is very suspicious. Yes, the oats are gluten free, and while I knew some celiacs have a problem with oats, I only just thought to eliminate them. I just read about corn on this website, which I do eat plenty of. I do eat dairy, and would... -
- trents replied to sillyac58's topic in Coping with Celiac Disease3Recurring flu like symptoms after being precribed immune system stimulating drug
Welcome to the forum, @sillyac58! Are you still using this topical medication for this precancerous spot on your lip? If not, are you saying you used it for a limited time and believe it triggered additional ongoing immune system reactions with unpleasant symptoms? I'm not clear on this. Are the oats you use certified gluten free? You may know this...
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WOW WOW WOW, your site did it for me: like this, i saw the ads for GliadinX and followed the product. There were several knockoffs. my engineer friend seperated them and found one at the local CVS at a bargain price. So yesterday I tried it. Twice. Lunch and dinner. works fine. Much obliged,
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I am actively dealing with a ray of issues, my skin, eyes and digestive even though not eating wheat.Menopuase has activated so much right now, considering its getting worse with my health. I have learned so much thanks to this website.I wasn't properly told of my celiac disease which was confirmed by colonoscopy and endoscopy in 1994 the same year I gave birth to my first son, my tolerance level was horrible. After being diagnosed and staying away from wheat continued problems. My chiropractor at the time in 2007 had my blood work sent off and turns out I have more food allergies. I told my primary of my celiac disease in 2000 and continued to see that doctor up until May if this year 2025 considering my celiac disease was ignored, disregarded and what Im currently going through and been through. I assumed my celiac disease was " registered " at the time in 1994 just as pregnancy and other ailments are reported. I was shocked to learn that its not a mandated reportable disease not documented by the state from hospitals which I for one think it should be considering all the medical gaslighting im dealing with which is causing depression. Im told not worry about other, well I am and its NOT right.It needs to be documented so others don't suffer and go through this nightmare. Im seriously ready to go down to the mayors office and make some noise. Thoughts?
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By Wheatwacked · Posted
With all the bloodwork, have they checked your vitamin D? What is it? Celiac Disease causes malabsorption, so vitamin deficiencies are common. Doctors rarely mention this. B1 Gastrointestinal beriberi, a severe thiamine deficiency, is characterized by symptoms including anorexia (loss of appetite), abdominal discomfort and pain, nausea, and vomiting. Other potential symptoms like abdominal fullness, indigestion, and constipation can also occur. These gastrointestinal issues may resist standard treatments, signaling a need to consider thiamine deficiency. It is commonly believed that thiamine deficiency is not an issue in the western cultures, so rarely address by doctors. Doses of thiamine above 100 mg several times a day will quickly show improvement. Borderline deficiency will come and go depending on what your eat. Carbs use it up faster, so for example if you eat a lot of carbs today, tomorrow you may have symptoms. Thiamine (Benfothiamine is a synthetic fat soluable thiamine) is water soluable, we only store maybe a weeks worth, and there is no upper limit on how much you consume. Excess is stored or peed away. For them it isn't a oroblem. LOL. They just say some people are like that and see the next patient. -
I used the cream for 4 days as prescribed 3 years ago. While I cannot be sure it triggered these problems, the timing is very suspicious. Yes, the oats are gluten free, and while I knew some celiacs have a problem with oats, I only just thought to eliminate them. I just read about corn on this website, which I do eat plenty of. I do eat dairy, and would be so terrible sad to give it up, but..... Thank you for the diary suggestions. I'll start one today. Thanks for responding!
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Welcome to the forum, @sillyac58! Are you still using this topical medication for this precancerous spot on your lip? If not, are you saying you used it for a limited time and believe it triggered additional ongoing immune system reactions with unpleasant symptoms? I'm not clear on this. Are the oats you use certified gluten free? You may know this already, but even if they are certified gluten free, the oat protein avenin is similar enough to gluten to cause reactions in some celiacs. The development of other food intolerances is also common in the celiac community. Common offenders in addition to oats are dairy, eggs corn and soy. Dairy and oats are the most common, however. You might do well to keep a food diary and check for patterns.
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