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Dermatitis Herpetiformis
Discussions concerning the skin condition associated with celiac disease.
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Recent Activity
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- maryannlove replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications9Gluten free thyroid medications
Before I could call them (after all my research), Costco Pharmacy called and told me they found a generic gluten-free levothyroxine. Was told name is Amneal brand. Said they called and company confirmed is gluten free. Only one I had found was Lannett so did more research and found: “BRIDGEWATER, N.J., Nov. 12, 2018. Amneal Pharmaceuticals, Inc. (N... -
- Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3This Roller Coaster Ride Needs to Stop
Given your severe symptoms it sounds like you would be much better off going 100% gluten-free! -
- Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3This Roller Coaster Ride Needs to Stop
Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes...- 1
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- Wheatwacked replied to somethinglikeolivia's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Am I celiac or not?
Just like you cannot be a little pregnant, you cannot be a little Celiac. Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,00...- 1
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- somethinglikeolivia replied to somethinglikeolivia's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Am I celiac or not?
Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!- 1
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By maryannlove · Posted
Before I could call them (after all my research), Costco Pharmacy called and told me they found a generic gluten-free levothyroxine. Was told name is Amneal brand. Said they called and company confirmed is gluten free. Only one I had found was Lannett so did more research and found: “BRIDGEWATER, N.J., Nov. 12, 2018. Amneal Pharmaceuticals, Inc. (NYSE: AMRX) today announced that it has completed a transition agreement with Lannett Company. Under the terms of the agreement, Amneal will take over the distribution and marketing of Levothyroxine sodium tablets from Lannett beginning December 1, 2018 through March 23, 2019, ahead of when the Company's previously announced 10-year Levothyroxine distribution agreement with Jerome Stevens begins on March 23, 2019.” So looks like we’re good until at least 6/23/29. Active ingredients are colloidal silicon dioxide, lactose, magnesium stearate, CORN STARTCH, acacia, sodium startch glycolate. Bottom line: We can tell our pharmacists we need gluten-free, generic Amneal brand Levothyroxine. AMEN. -
By Scott Adams · Posted
Given your severe symptoms it sounds like you would be much better off going 100% gluten-free! -
Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods. Unfortunately my suspicions are correct. When I eat gluten-free foods -like Schar breads or rolls, or the crackers, including when I stay in my carb limit, my sugar spikes and just sits there.. .it won;t even come back down for hours. So in the end it drives my overall glucose and A1C up. I can't really even eat oats or things like that. Cereal is very iffy. Gluten free pizzas, gluten free nuggets, and things like that majorly spike my sugar as well, again, even when staying in my carb limits. I already feel so limited on foods because of the diabetes so of course, when medical people and family and friends are like just go eat gluten, I have been like oh okay - maybe it is all in my head and hey its way cheaper to eat gluten and tastes wayyy better...and then I end up right back where I am today,. MISERABLE, just laying around in pain, spending all day in the bathroom, having accidents related to diarrhea, constant tremors, heart rate issues, chest pain etc. and I forgot about these terrible painful canker sores in my mouth right now, I can't even hardly eat or drink or swallow they hurt so bad. Not being able to feel like I can eat gluten free is extremely frustrating. I had some great recipes and substitutes for things, and was at a decent place with all that, until the diabetes went crazy out of control, so gluten-free living seems to not be an option for me. However, eating gluten when I truly still believe I am celiac -just misdiagnosed- does NOT seem like a wise idea. I am honestly scared I am going to get deathly ill from all this or something. I even asked my GI doctor, more like begged, if he would please just label me as celiac and tell me I was for sure (like he did before) so I could get the support I truly need. No such luck. He just keeps saying but your tests were okay 🙄 My family went to an arcade and pizza/pasta buffet yesterday - obviously I didn't want to miss out spending time with my family and my mom spent money paying for my meal/buffet - and I was hungry, so of course I ended up eating pizza and pasta that was not gluten-free, because they don't offer any gluten-free options, and then my brother and others want to ask can you eat that or are you supposed to, and I am like well no, and I will definitely pay for it. They think it is hilarious when I say things and then make comments, like how it is so fun to go out with me especially places like that because I am not supposed to eat but I just do it anyway and say I will pay for it 😥 just seems everywhere I turn it is pointless and I have no support
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By Wheatwacked · Posted
Just like you cannot be a little pregnant, you cannot be a little Celiac. Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015. My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer. 70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said McCarthy ... “There are now very few patients with infections, and asthmatics who are coming off medications are staying off of them. ... A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; ... Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL; -
By somethinglikeolivia · Posted
Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
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