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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Seeking advice on potential gluten challenge
Oops! @Staticgypsy, I’ll get the book! Thank you! -
- JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Seeking advice on potential gluten challenge
Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was man... -
- Mark Conway replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Have I got coeliac disease
I did'nt know that, I will check what specifically the blood tests were for. Thanks -
- trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Seeking advice on potential gluten challenge
Sorry, @JudyLou, as reread your post, I see that you have had gene testing done already. -
- trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Have I got coeliac disease
Welcome to the forum, @Mark Conway! Can you be more specific about the "coeliac" test your doctor did? There are more than one of them. What was the name of the test? Also, did he order a "total IGA" test? This is a test to check for IGA deficiency and should always be ordered along with the tests specifically designed to detect celiac disease. If you...
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Oops! @Staticgypsy, I’ll get the book! Thank you!
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Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both.
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By Mark Conway · Posted
I did'nt know that, I will check what specifically the blood tests were for. Thanks -
Sorry, @JudyLou, as reread your post, I see that you have had gene testing done already.
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Welcome to the forum, @Mark Conway! Can you be more specific about the "coeliac" test your doctor did? There are more than one of them. What was the name of the test? Also, did he order a "total IGA" test? This is a test to check for IGA deficiency and should always be ordered along with the tests specifically designed to detect celiac disease. If you are IGA deficient, the IGA celiac blood antibody tests used to check for celiac disease per se will not be accurate. Also, if you have been cutting back on gluten before the tests, that will render them invalid. You must have be eating normal amounts of gluten for weeks/months before the blood draw to render valid test results.
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