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Coping with Celiac Disease
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Recent Activity
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- Scott Adams replied to Ginger38's topic in Related Issues & Disorders21Shingles - Could It Be Related to Gluten/ Celiac
Amen! I'm already bothering my doctor about getting an updated vaccine!- 1
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- Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Blood Test for Celiac wheat type matters?
The type of wheat does not matter for the test--all wheat contains gluten. You need to eat lots of wheat daily for 6-8 weeks before a blood test. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is... -
- cristiana replied to Ginger38's topic in Related Issues & Disorders21Shingles - Could It Be Related to Gluten/ Celiac
Sorry... I accepted it! I don't want shingles EVER again!- 1
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- GlutenFreeChef posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Blood Test for Celiac wheat type matters?
I finally am seeing a GI specialist after being gluten free for over 10 years. When I turned 30 an allergy panel stated that I was allergic to wheat, barley, rye, oats, peanuts, soy, and crab/lobster. A friend who worked at a pharmacy said my results looked just like hers and that I was probably celiac or severely gluten sensitive, so I stopped eating gluten... -
- Scott Adams commented on Scott Adams's article in Diagnosis, Testing & Treatment2
A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)
Approximately 30–40% of the U.S. population carries the HLA-DQ2 or HLA-DQ8 genetic markers associated with celiac disease.- celiac disease
- cell therapy
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Posts
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By Scott Adams · Posted
Amen! I'm already bothering my doctor about getting an updated vaccine! -
By Scott Adams · Posted
The type of wheat does not matter for the test--all wheat contains gluten. You need to eat lots of wheat daily for 6-8 weeks before a blood test. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. -
Sorry... I accepted it! I don't want shingles EVER again!
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By GlutenFreeChef · Posted
I finally am seeing a GI specialist after being gluten free for over 10 years. When I turned 30 an allergy panel stated that I was allergic to wheat, barley, rye, oats, peanuts, soy, and crab/lobster. A friend who worked at a pharmacy said my results looked just like hers and that I was probably celiac or severely gluten sensitive, so I stopped eating gluten and everything else on my list. I felt better. Since November of 2024 I've been having issues that looked like thyroid, but could be EoE in combination with perimenopause and went off of dairy as well, which provided relief. While in Europe in November I decided to try eating wheat because I kept hearing rumors that I may not react to their wheat, and I didn't. I was so glad that now I'm importing it to make my own breads. My Homeopathic doctor said it was probably the glyphosates and pesticides that I am allergic too or reacting too, not the gluten. The GI wants to retest me for celiac and told me that I would need to switch back to American wheat products for the test to come out positive otherwise I may test negative since European wheat is different. This makes no sense to me. Gluten is gluten and is in the flour there as well as here. Please help, I don't want to ingest the pesticides and glyphosates for this test as I get severe migraines, bloating and joint pain when I do eat American wheat products. That is how I know I've had cross-contamination at restaurants. Does the type of wheat really matter???? I am so conflicted with this. The GI was getting irritated with me insisting that if gluten was really the issue that it would still show up regardless of where the wheat came from. -
By Scott Adams · Posted
Speaking from experience, and as someone who was taking zinc in my multivitamins at the time of my outbreak, I would not rely on zinc or other supplements to prevent a shingles outbreak. That is what the new, extremely effective, 2 shot shingles vaccine is for, and this vaccine is very effective at preventing outbreaks. In my case I've not had shingles symptoms since I had the vaccine, which was over 10 years ago.
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