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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders4Severe severe mouth pain
@knitty kitty thank you for replying so quickly! I have not done well at all taking vitamins or supplements, I have such a hard time swallowing even small pills, so I have resorted to crushing them and taking them with Gatorade. Pretty much I eat baked chicken tenders, Fairlife chocolate protein shakes, gluten free crackers. Thank you so much for the advice... -
- Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders4
Severe severe mouth pain
Hi, thank you for the quick reply! I was diagnosed about 5 years ago I think, I try to be extremely careful with what I eat so I don't get cross contamination. I used to get little sores in my mouth when I was little, usually from sucking on hard candy, but L-lisene would clear it right up. I got that Nasal Navage thing and used it twice and that's when... -
- xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease39My journey is it gluten or fiber?
The thiamax and benfo I ordered should come tomorrow. I will start Friday ny b complex the benfo and thiamax for breakfast. I haven't ordered magnesium yet. I wanted to start with this first then add magnesium. Should it be fine to take b complex the thia/benfo and eventually magnesium at breakfast together? Thanks -
- knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease39My journey is it gluten or fiber?
What have you taken so far? and when? -
- knitty kitty replied to Charlie1946's topic in Related Issues & Disorders4
Severe severe mouth pain
Welcome to the forum, @Charlie1946, How long have you been diagnosed with Celiac disease? Do you take any nutritional supplements? Vitamins? Herbal medicine? Do you eat processed gluten free facsimile foods? Is your diet high in carbohydrates? Many vitamin deficiencies can contribute to poor oral health. Vitamin C, Cobalamine B...
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Posts
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By Charlie1946 · Posted
Hi, thank you for the quick reply! I was diagnosed about 5 years ago I think, I try to be extremely careful with what I eat so I don't get cross contamination. I used to get little sores in my mouth when I was little, usually from sucking on hard candy, but L-lisene would clear it right up. I got that Nasal Navage thing and used it twice and that's when I thought I had a sinus infection. So I got a z pack. Then I noticed my tongue was coated and it was white except right down the middle which was more brown and crusty, like the corners of my mouth. I also have dry mouth and I went way too long before I started treating it. So then I had some kind of huge pill and Nystatin mouthwash. My mother in law's new husband ( they live upstairs) started complaining of exactly the same symptoms as me. He went to urgent care, they said it wasn't thrush, it was shingles. We both went to our dentist's for cleanings, I don't have insurance so I really couldn't tell they cleaned my teeth at all. But she said my mouth looked good, all cleared up. I had a day and a half of no pain and then it came right back. So I got more pills and miracle mouthwash. There are times it feels like dry socket and times it feels like it's bleeding but it's not. I don't see any gum or facial swelling, I did see a couple of tiny ulcers on my bottom lip, roof of my mouth is still sore, and my tongue and cheeks are still a little coated. I am just at a loss. My mother in law's husband, they took swabs and called back a week later and said it was a new herpes variant virus that is going around but not contagious. He was cured after a week! And I'm going on 3 months 😭 -
By xxnonamexx · Posted
The thiamax and benfo I ordered should come tomorrow. I will start Friday ny b complex the benfo and thiamax for breakfast. I haven't ordered magnesium yet. I wanted to start with this first then add magnesium. Should it be fine to take b complex the thia/benfo and eventually magnesium at breakfast together? Thanks -
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By knitty kitty · Posted
Welcome to the forum, @Charlie1946, How long have you been diagnosed with Celiac disease? Do you take any nutritional supplements? Vitamins? Herbal medicine? Do you eat processed gluten free facsimile foods? Is your diet high in carbohydrates? Many vitamin deficiencies can contribute to poor oral health. Vitamin C, Cobalamine B12, Thiamine B 1, Riboflavin B 2 and Pyridoxine B6, to name a few. For pain, a combination of Thiamine, B12 and Pyridoxine B 6 have analgesic properties. They work together to relieve pain better than over-the-counter pain relievers, imho. -
Welcome to the celiac.com family, @Charlie1946! I have not experienced what you are going through except possibly accelerated loss of enamel and receding gums, to some extent, anyway. But I can tell you that thrush and canker sores have been reported by other members of this online community. Let me ask you some questions. First, how long ago were you diagnosed with celiac disease? Second, are you consistent with the gluten-free diet? Third, have you recently been on a course of antibiotics? Thrush often follows on the heels of being on a course of antibiotics because the antibiotics kill off the good bacteria the keep yeast and fungi in check.
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