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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease17My journey is it gluten or fiber?
There are eight essential B vitamins. They are all water soluble. Any excess of B vitamins is easily excreted by the kidneys. Thiamine is Vitamin B 1. Thiamine is safe and nontoxic even in high doses. Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily. The form of Thiamine in the supplements you mentioned is... -
- xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease17My journey is it gluten or fiber?
Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle. -
- Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15GI DX celiac despite neg serology and no biopsy
Neg for HLA dq8 and dq2 -
- knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15
GI DX celiac despite neg serology and no biopsy
How can you be negative for HLA? What markers did you have here? Curiouser and curiouser... -
- knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease17
My journey is it gluten or fiber?
Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I...
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By knitty kitty · Posted
There are eight essential B vitamins. They are all water soluble. Any excess of B vitamins is easily excreted by the kidneys. Thiamine is Vitamin B 1. Thiamine is safe and nontoxic even in high doses. Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily. The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well. Only about thirty percent of the amount on the label is actually absorbed in the small intestine. Less than that can actually be used by the body. Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable. Thiamine and other B vitamins break down when exposed to light and heat and over time. Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them. What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form. In fact, it takes more thiamine to turn it into a useable form. Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract. High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi. Fiber is a type of carbohydrate. So, high fiber/carbohydrate snacks could trigger Gastric Beriberi. Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic. -
By xxnonamexx · Posted
Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle. -
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By knitty kitty · Posted
How can you be negative for HLA? What markers did you have here? Curiouser and curiouser... -
By knitty kitty · Posted
Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I started taking vitamins according to my nutritional deficiency symptoms. Vitamins worked. My health improved. Now I'm here to help others. Celiac disease causes malabsorption which results in malnutrition. Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more. TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more. Every cell in the body needs thiamine to make energy so the cell can function. Without sufficient thiamine, mitochondria die. Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes. Thiamine has antiviral and antibacterial properties. We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates. The more carbs one eats the more thiamine is needed to process them into energy. If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition. We may not be getting sufficient thiamine from our diets if we eat a gluten free diet. Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts. Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine. Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
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