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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- RMJ replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4GI DX celiac despite neg serology and no biopsy
It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy. -
- captaincrab55 replied to Colleen H's topic in Coping with Celiac Disease1Heat intolerant... Yikes
Hi Colleen H, I suffered with the pins and needles/burning feeling in my legs and feet for at least 6 years until my Nephrologist figured out that I had to go on a low salt diet. He said my kidneys weren't strong enough to remove the salt. The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option. On the bright... -
- trents commented on Scott Adams's article in Autumn 2025 Issue24Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
The title of this article is misleading. To me, triggering celiac disease refers to something that causes the onset of celiac disease whereas the text of the article explains that what is being meant by the title is actually the triggering of celiac-like reactions or symptoms.- additives
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- Colleen H replied to Colleen H's topic in Coping with Celiac Disease5Gluten related ??
Yes this is very frustrating for me ... not sure what to think. Feels like I'm having reactions to a lot of things Now applesauce?? I don't understand 😞 -
- Colleen H commented on Scott Adams's article in Autumn 2025 Issue24
Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
What about unsweetened applesauce?- additives
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It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
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By captaincrab55 · Posted
Hi Colleen H, I suffered with the pins and needles/burning feeling in my legs and feet for at least 6 years until my Nephrologist figured out that I had to go on a low salt diet. He said my kidneys weren't strong enough to remove the salt. The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option. On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away. Good Luck and hope this helps. -
Yes this is very frustrating for me ... not sure what to think. Feels like I'm having reactions to a lot of things Now applesauce?? I don't understand 😞
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I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle?? Thank you
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Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔 Winter is here. I had to lower my thermostat because I couldn't take that hot air feeling 😔 Hopefully it goes away soon
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