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Coping with Celiac Disease
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Recent Activity
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- knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease36Insomnia help
Happy to answer, @cristiana, Too much of either Vitamin A or Vitamin E can have detrimental health effects, so doctors can be over cautious about their use. However, both are important to health. They act as antioxidants and help reduce inflammation. Both Vitamins A and E have been shown to improve insomnia and body rhythm. Yes, I'm familiar... -
- Rosalie P posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Oat &gluten free eczEMA MOISTURIZER
Looking for recommendations, most have “unsafe” oat ingredients -
- trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease36Insomnia help
@cristiana, milk is also a good source of magnesium, another very important nutrient in nervous system/mood health.- 1
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- trents replied to colinukcoeliac's topic in Gluten-Free Restaurants11
What should I expect from a UK restaurant advertising / offering "Gluten Free" food
@cristiana, no, I'm asking if, when you eat out, do you actually experience symptoms of gluten exposure apart from any consideration of blood antibody test scores? -
- trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Persistent isolated high DGP-IGG in child despite gluten-free diet
Like you, I was a silent celiac. I was largely asymptomatic insofar as GI symptoms were concerned. The first real evidence, retrospectively, of having celiac disease was the development of mildly but persistently elevated liver enzymes which initially was discovered when I tried to donate blood at age 37. That was in about 1987. Of course, my PCP checked...
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By knitty kitty · Posted
Happy to answer, @cristiana, Too much of either Vitamin A or Vitamin E can have detrimental health effects, so doctors can be over cautious about their use. However, both are important to health. They act as antioxidants and help reduce inflammation. Both Vitamins A and E have been shown to improve insomnia and body rhythm. Yes, I'm familiar with "feel the fear and do it anyway". I made some poor decisions based on that philosophy as well. Milk is high in B12, Vitamin A, Vitamin D, magnesium and calcium. Vitamin A and Vitamin D are added to milk, especially to lower fat milks (skim milks), to replace the fat soluble vitamins lost in skimming (removal of naturally occurring fats and fat soluble vitamins found in whole milk). All these vitamins and minerals have been shown to improve major depressive symptoms by improving brain functions in various ways. Vitamin A and D work in tandem to lower inflammatory cytokines and regulate tight junction connections in the intestines. Remember the gut brain axis, if our digestive system is unwell, our brain health suffers, too. Vitamins A and D both help regulate the microbiome. Low calcium or low magnesium can affect brain health resulting in depression and disrupted sleep. Low Vitamin A can result in night blindness, one of the first symptoms of a Vitamin A deficiency. Yes, it's better to get these from dietary sources, however, if one has malabsorption issues as occurs in Celiac Disease (or with lactose intolerance or a reaction to casein) or consumes a poor diet (high in processed foods), then supplementation may be necessary in order to prevent permanent damage, and feel better sooner. It's very hard to pinpoint just one vitamin or mineral to improve our health because our bodies are a cauldron of interdependent chemical reactions involving many different vitamins and minerals and organs going on all the time. But, yes, health improvement can be that fast, if our bodies receive a sufficient amount of missing vitamins or minerals needed for certain chemical reactions that keep our bodies functioning properly. Interesting Reading: https://ods.od.nih.gov/factsheets/VitaminE-Consumer/ Analysis of the concentration of vitamin E in erythrocytes of patients with celiac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC5209463/ Cerebellar syndrome in adult celiac disease with vitamin E deficiency https://pubmed.ncbi.nlm.nih.gov/1950453/ https://ods.od.nih.gov/factsheets/VitaminA-Consumer/ Impacts of vitamin A deficiency on biological rhythms: Insights from the literature https://pmc.ncbi.nlm.nih.gov/articles/PMC9718491/ Effect of Vitamin E Supplementation on Chronic Insomnia Disorder in Postmenopausal Women: A Prospective, Double-Blinded Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/36904186/ High prevalence of low dairy calcium intake and association with insomnia, anxiety, depression and musculoskeletal pain in university students from Jordan https://pubmed.ncbi.nlm.nih.gov/32830623/ Vitamin A and vitamin D regulate the microbial complexity, barrier function and the mucosal immune responses to insure intestinal homeostasis https://pmc.ncbi.nlm.nih.gov/articles/PMC6629036/ Dietary vitamin A modifies the gut microbiota and intestinal tissue transcriptome, impacting intestinal permeability and the release of inflammatory factors, thereby influencing Aβ pathology https://pubmed.ncbi.nlm.nih.gov/38606018/ Association between dietary calcium and depression among American adults: National health and nutrition examination survey https://pmc.ncbi.nlm.nih.gov/articles/PMC9948022/ Dietary magnesium intake affects the association between dietary vitamin A and depression: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC11996644/ -
Looking for recommendations, most have “unsafe” oat ingredients
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@cristiana, milk is also a good source of magnesium, another very important nutrient in nervous system/mood health.
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@cristiana, no, I'm asking if, when you eat out, do you actually experience symptoms of gluten exposure apart from any consideration of blood antibody test scores?
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Like you, I was a silent celiac. I was largely asymptomatic insofar as GI symptoms were concerned. The first real evidence, retrospectively, of having celiac disease was the development of mildly but persistently elevated liver enzymes which initially was discovered when I tried to donate blood at age 37. That was in about 1987. Of course, my PCP checked me for all the hepatitis varieties but cold not find any reason for the elevated liver enzymes. I was also slipping into mild anemia by the time I was in my late 40's and had developed some occasional loose stool and oily stool. My PCP had no clue. I was really concerned about the liver enzymes as they were steadily increasing though never got to alarming levels. My PCP threw his hands up and said during one office visit, "I don't know why your enzymes are elevated. Maybe that's just the way your are." Well, that was not a satisfactory answer. This was about year 2000 and it was not well known that one of the atypical symptoms of celiac disease is elevated liver enzymes. In fact, it happens in about 18% of celiacs. Finally, I booked an appointment with a GI doc who tested me right away for celiac disease and I was positive, both for blood work and biopsy. Within a few months of eliminating gluten my liver enzymes had normalized. But it took 13 years to get a diagnosis. And by that time I had developed osteopenia. Sorry for the long-winded story. My point is, celiac disease can be very slow in developing. By the time symptoms manifest themselves to the extent where they get your attention such that you seek testing, much damage can already be done to body systems. You and your son are very smart to be be pursuing this thing early in his life and let me encourage you, that whatever the next round of testing reveals, you continue to get testing done on a regular basis.
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