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Coping with Celiac Disease
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Recent Activity
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- trents replied to Ginger38's topic in Related Issues & Disorders1Shingles - Could It Be Related to Gluten/ Celiac
I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles. -
- Ginger38 posted a topic in Related Issues & Disorders1Shingles - Could It Be Related to Gluten/ Celiac
I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry. But Developing s... -
- Russ H commented on Scott Adams's article in Latest Research5Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
This is the test KelleyJo is referring to: Blood-Based T-Cell Diagnosis of Celiac Disease- burden
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- Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0
Coeliac UK Research Conference 2025
There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease. https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t -
- Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders5Basic metabolic panel results - more flags
Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources. I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
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I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
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I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry. But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion
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There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease. https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
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By Rejoicephd · Posted
Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources. I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all. -
By knitty kitty · Posted
You're right, doctors usually only test Vitamin D and B12. Both are really important, but they're not good indicators of deficiencies in the other B vitamins. Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer. The other B vitamins can only be stored for much shorter periods of time. Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest. Thiamine stores can be depleted in as little as three days. There's no correlation between B12 levels and the other B vitamins' levels. Blood tests can't measure the amount of vitamins stored inside cells where they are used. There's disagreement as to what optimal vitamin levels are. The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people. Folate requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products. Vitamin D requirements have been updated only in the past few years. Doctors aren't required to take as many hours of nutritional education as in the past. They're educated in learning institutions funded by pharmaceutical corporations. Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins. Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself. Her book The Paleo Approach has been most helpful to me. You're very welcome. I'm glad I can help you around some stumbling blocks while on this journey. Keep me posted on your progress! Best wishes! P.S. interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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