Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mushroom (Neroli) Memorial Thread

Scott Adams

Recommended Posts

Scott Adams Grand Master
Scott Adams
Posted

It is with great sadness that I share the very bad news that one of our long-time board members and moderators passed away recently due to complications resulting from a stroke that she suffered a few weeks ago. She was very helpful to many on this board, and this thread is the place to share your thoughts and memories of her. She will be missed dearly by all she touched with her kindness, and I never got to say "thank you" to her for serving as a board moderator--thank you! 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 65
  • Created
  • Last Reply
IrishHeart Veteran
IrishHeart
Posted

I am stunned. She is the " iron lady " to me. One of the best people on c.com and one of the first to reach out to me
so long ago. Always an elegant lady,  but also one of the toughest broads I have ever met! 

She always teased me on threads and she told me more than once to "grow a thick skin, IH. Do not take anything personal and  stay as compassionate as you are."

We often shared PMs and our love of grammar and word play.

I am crying my head off right now and thinking.. ...buggers!! .  we  lost a great gal today. dammit, dammit, dammit.
She loved scotch, i know and I would tell her "blech, Shroom!"  but I will toast her with gin.... again and again

I told her "you are my NZ stop when I am well enough to do my world tour " and she said "you better hurry!"
 

So glad I told her more than once "i just love you ...and I appreciate your wisdom, kindness and enormous sense of humor." I recently told her the response she gave to a newbie was just the most amazing thing ever. (Because it was.)

 

And to her dear Hubs, Clayton...she always spoke of you with so much love! My heart aches for you.

 

She is my hero and her "let's start a thread of stupid stuff doctors say"  reigns supreme.

 

Cheers, Shroomie! Love you madly ...and now I have to stop because  I cannot see the keyboard anymore. :(

jerseyangel Proficient
jerseyangel
Posted

Thank you, Scott. Our Shroomie was a force to be reckoned with for sure! She spent years on this board giving great, knowledgeable advice laced with caring and a wonderful sense of humor. Shroom somehow always had just the right words and was so generous with her replies.

She was a fixture on the "Tickle Me Elbow" thread, and it was there we became friends. I will miss checking in with her there and the silly banter that has ensued through the years.

Rest in peace, Shroomie.

My thoughts are with her husband, family and friends.

Gemini Experienced
Gemini
Posted

I had to read this 3 times before it sank in.  I still am having trouble comprehending that Mushroom is gone.  You know, and this is true, the other day her name just popped into my head.

Out of the blue and I thought....where has she been?  I haven't seen any posts from Mushroom.   I was going to ask Irish because I know how close they were.  Now I know and it makes me sick to my stomach. 

 

I lost a co-worker last summer.  He died of a heart attack, very suddenly.  We were close and I was so upset because I had been on vacation, moving into my new home and I thought of him the same way I thought of Mushroom.  He just popped into my head and I thought how I would seek him out as soon as I returned to work.  Then I got a call from others at work to tell me he was gone.  I never got to say good-bye and that will bother me forever.

 

Rest in peace, Mushroom, and my heartfelt condolences go out to her family.  God has scooped up another good one and it isn't fair that He always takes the best ones before their time.  :(

 

GottaSki Mentor
GottaSki
Posted

Exactly right....God has scooped up one of the best.

Through tears I type...Shroomie you will not be forgotten - by me - or by countless people that you graciously advised with accurate along with sensible words...each and every day that you were able to do so.

Often late in the evening we would be the only mods online and would tag team --- I have missed you each time you've been ill...but firmly believed you could beat anything in your path....we joke about super powers...but I was certain you actually possessed them.

Rest in peace my dear friend...I will miss you always..."my Lectin Cuz"

My prayer today is for Neroli's husband, family and friends that they will find peace and that Shroomie has left a bit of her strength and determination behind to help them through the days to come.

tarnalberry Community Regular
tarnalberry
Posted

Thank you for letting us know, Scott.

My thoughts are with all her family and friends, especially the ones here.

She will be missed.

notme Experienced
notme
Posted

rest in peace, shroomie.  thanks for all the great advice and helping to hold everybody's hand through this sometimes tough life we are trying to live.  i sure will miss you, especially on the cooking 'channel' xxoo and prayers are with your family.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cahill Collaborator
cahill
Posted

Thank you Scott for letting us know

 

 

When I was new to these forums Mushroom was one of the first to reach out to me . Thur my gluten induced fog Mushroom was a beacon , the voice of reason and encouragement. She gave me  hope  and knowledge  that  I so desperately  needed  at  start of my journey . She will be sadly missed. :(

GF Lover Rising Star
GF Lover
Posted

I am shocked.  I've only known her for a year but she made a great impression on me and touched another's life.

 

 

To the Admin,  Moderators, and her close friends and family, I am deeply sorry for your loss. And praying for your strength. 

 

 

shadowicewolf Proficient
shadowicewolf
Posted

I had noticed that she had not posted in a while, but i didn't realize that she had passed. :(

 

I'm shocked. I thought she was one of the strongest members on here. She helped so many. She will be missed.

 

Thank you for letting us know. I was really starting to get concerned.

bartfull Rising Star
bartfull
Posted

Oh my. I'm shocked and heartbroken. When I first came here it was Mushroom, Irish, and Skylark who reached out to me with their knowledge and their compassion. I haven't seen Skylark here in a long time either and I'm almost afraid to ask...

 

Mushroom, I know you have a special place in Heaven. People as kind and giving as you are so rare in this world.

 

To her family, I thank you for sharing her with us, and you will all be in my prayers.

squirmingitch Veteran
squirmingitch
Posted

Shroomie, You helped me. Heck, you helped thousands. I miss you already. I can't believe I won't see your words of wisdom on here anymore. Rest in peace dear girl. You earned it.

My thoughts turn now to her family. May they be content in the knowledge that Shroomie has gone on to help others in another place.

psawyer Proficient
psawyer
Posted

Neroli was a friend to me, and to so many here. She was a pillar of strength, offering help and support to all who came here looking for it. Life threw her many challenges, and she overcame them all, until this last one.

She will be missed. Her wit always livened up anything she was in on. Rest in peace, my dear friend.

GFinDC Veteran
GFinDC
Posted

Shroomie was a great resource for this forum.  She gave good advice and spiced it up with humor often.  For someone who wasn't feeling too well herself she sure put in a lot of effort to give helpful answers to people's questions.  I think that shows love for her fellow humans.  My condolences to Clayton and her family.  The Lord made a fine catch today!  I imagine he's smiling real bright about now.  Happy trails to Shroomie!

elye Community Regular
elye
Posted

This news just continues to seem completely unreal to me...how can Shroomie be gone? Brilliant, hilarious, compassionate.....and a real fighter. I am sure that the legacy she left is monumental, and a big part of it is the countless lost, sick, frustrated people whom she helped on this forum.

Thank you so much, Neroli. This place will never be the same without you.

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

she took the time on my very first post to bold things I should include in my symptoms list to give to my GI, and that was only the start of her help.  I noticed she hadn't posted in awhile, but I thought maybe moderators rotate schedules, and she was on vacation.  too bad I was wrong  :(  

 

thank you for sharing your knowledge with others, Mushroom, and giving ideas about what to try next.  you will be missed!

Gemini Experienced
Gemini
Posted

I hope Shroomie's family see these posts because it's bound to make them feel a little bit better, knowing how well she was thought of on here.

JNBunnie1 Community Regular
JNBunnie1
Posted

Lotsa sads..... :(

GottaSki Mentor
GottaSki
Posted

I hope Shroomie's family see these posts because it's bound to make them feel a little bit better, knowing how well she was thought of on here.

 

We are sending the link for this thread to her hubs.

kareng Grand Master
kareng
Posted

I haven't posted yet, because I didn't really know what to say. Still don't.

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

Gemini Experienced
Gemini
Posted

We are sending the link for this thread to her hubs.

Oh......that is so nice!  I hope it will bring him some comfort.

IrishHeart Veteran
IrishHeart
Posted

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

 

....and laughing with glee that you wrote these words, K.  :)

 

it's 4:25 am and I can't sleep and I was thinking, well, Shroom's on the board...

shadowicewolf Proficient
shadowicewolf
Posted

....and laughing with glee that you wrote these words, K.  :)

 

it's 4:25 am and I can't sleep and I was thinking, well, Shroom's on the board...

I know the feeling :(

 

I normally get up early and her posts were one of the first i would see.

ncdave Apprentice
ncdave
Posted

Neroli was such a dear friend to so many here on this forum including myself. She will truly be missed but never forgotten. My prayers go out to her family and all her friends.  

jerseyangel Proficient
jerseyangel
Posted

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

And a big bowl of split pea soup with lotsa croutons!

We had some great legume/lectin chats. Shroom really knew her stuff on all things food sensitivity.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,665
    • Most Online (within 30 mins)
      7,748
    Christa Cook
    Newest Member
    Christa Cook
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.