Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mushroom (Neroli) Memorial Thread

Scott Adams

Recommended Posts

Scott Adams Grand Master
Scott Adams
Posted

It is with great sadness that I share the very bad news that one of our long-time board members and moderators passed away recently due to complications resulting from a stroke that she suffered a few weeks ago. She was very helpful to many on this board, and this thread is the place to share your thoughts and memories of her. She will be missed dearly by all she touched with her kindness, and I never got to say "thank you" to her for serving as a board moderator--thank you! 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 65
  • Created
  • Last Reply
IrishHeart Veteran
IrishHeart
Posted

I am stunned. She is the " iron lady " to me. One of the best people on c.com and one of the first to reach out to me
so long ago. Always an elegant lady,  but also one of the toughest broads I have ever met! 

She always teased me on threads and she told me more than once to "grow a thick skin, IH. Do not take anything personal and  stay as compassionate as you are."

We often shared PMs and our love of grammar and word play.

I am crying my head off right now and thinking.. ...buggers!! .  we  lost a great gal today. dammit, dammit, dammit.
She loved scotch, i know and I would tell her "blech, Shroom!"  but I will toast her with gin.... again and again

I told her "you are my NZ stop when I am well enough to do my world tour " and she said "you better hurry!"
 

So glad I told her more than once "i just love you ...and I appreciate your wisdom, kindness and enormous sense of humor." I recently told her the response she gave to a newbie was just the most amazing thing ever. (Because it was.)

 

And to her dear Hubs, Clayton...she always spoke of you with so much love! My heart aches for you.

 

She is my hero and her "let's start a thread of stupid stuff doctors say"  reigns supreme.

 

Cheers, Shroomie! Love you madly ...and now I have to stop because  I cannot see the keyboard anymore. :(

jerseyangel Proficient
jerseyangel
Posted

Thank you, Scott. Our Shroomie was a force to be reckoned with for sure! She spent years on this board giving great, knowledgeable advice laced with caring and a wonderful sense of humor. Shroom somehow always had just the right words and was so generous with her replies.

She was a fixture on the "Tickle Me Elbow" thread, and it was there we became friends. I will miss checking in with her there and the silly banter that has ensued through the years.

Rest in peace, Shroomie.

My thoughts are with her husband, family and friends.

Gemini Experienced
Gemini
Posted

I had to read this 3 times before it sank in.  I still am having trouble comprehending that Mushroom is gone.  You know, and this is true, the other day her name just popped into my head.

Out of the blue and I thought....where has she been?  I haven't seen any posts from Mushroom.   I was going to ask Irish because I know how close they were.  Now I know and it makes me sick to my stomach. 

 

I lost a co-worker last summer.  He died of a heart attack, very suddenly.  We were close and I was so upset because I had been on vacation, moving into my new home and I thought of him the same way I thought of Mushroom.  He just popped into my head and I thought how I would seek him out as soon as I returned to work.  Then I got a call from others at work to tell me he was gone.  I never got to say good-bye and that will bother me forever.

 

Rest in peace, Mushroom, and my heartfelt condolences go out to her family.  God has scooped up another good one and it isn't fair that He always takes the best ones before their time.  :(

 

GottaSki Mentor
GottaSki
Posted

Exactly right....God has scooped up one of the best.

Through tears I type...Shroomie you will not be forgotten - by me - or by countless people that you graciously advised with accurate along with sensible words...each and every day that you were able to do so.

Often late in the evening we would be the only mods online and would tag team --- I have missed you each time you've been ill...but firmly believed you could beat anything in your path....we joke about super powers...but I was certain you actually possessed them.

Rest in peace my dear friend...I will miss you always..."my Lectin Cuz"

My prayer today is for Neroli's husband, family and friends that they will find peace and that Shroomie has left a bit of her strength and determination behind to help them through the days to come.

tarnalberry Community Regular
tarnalberry
Posted

Thank you for letting us know, Scott.

My thoughts are with all her family and friends, especially the ones here.

She will be missed.

notme Experienced
notme
Posted

rest in peace, shroomie.  thanks for all the great advice and helping to hold everybody's hand through this sometimes tough life we are trying to live.  i sure will miss you, especially on the cooking 'channel' xxoo and prayers are with your family.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cahill Collaborator
cahill
Posted

Thank you Scott for letting us know

 

 

When I was new to these forums Mushroom was one of the first to reach out to me . Thur my gluten induced fog Mushroom was a beacon , the voice of reason and encouragement. She gave me  hope  and knowledge  that  I so desperately  needed  at  start of my journey . She will be sadly missed. :(

GF Lover Rising Star
GF Lover
Posted

I am shocked.  I've only known her for a year but she made a great impression on me and touched another's life.

 

 

To the Admin,  Moderators, and her close friends and family, I am deeply sorry for your loss. And praying for your strength. 

 

 

shadowicewolf Proficient
shadowicewolf
Posted

I had noticed that she had not posted in a while, but i didn't realize that she had passed. :(

 

I'm shocked. I thought she was one of the strongest members on here. She helped so many. She will be missed.

 

Thank you for letting us know. I was really starting to get concerned.

bartfull Rising Star
bartfull
Posted

Oh my. I'm shocked and heartbroken. When I first came here it was Mushroom, Irish, and Skylark who reached out to me with their knowledge and their compassion. I haven't seen Skylark here in a long time either and I'm almost afraid to ask...

 

Mushroom, I know you have a special place in Heaven. People as kind and giving as you are so rare in this world.

 

To her family, I thank you for sharing her with us, and you will all be in my prayers.

squirmingitch Veteran
squirmingitch
Posted

Shroomie, You helped me. Heck, you helped thousands. I miss you already. I can't believe I won't see your words of wisdom on here anymore. Rest in peace dear girl. You earned it.

My thoughts turn now to her family. May they be content in the knowledge that Shroomie has gone on to help others in another place.

psawyer Proficient
psawyer
Posted

Neroli was a friend to me, and to so many here. She was a pillar of strength, offering help and support to all who came here looking for it. Life threw her many challenges, and she overcame them all, until this last one.

She will be missed. Her wit always livened up anything she was in on. Rest in peace, my dear friend.

GFinDC Veteran
GFinDC
Posted

Shroomie was a great resource for this forum.  She gave good advice and spiced it up with humor often.  For someone who wasn't feeling too well herself she sure put in a lot of effort to give helpful answers to people's questions.  I think that shows love for her fellow humans.  My condolences to Clayton and her family.  The Lord made a fine catch today!  I imagine he's smiling real bright about now.  Happy trails to Shroomie!

elye Community Regular
elye
Posted

This news just continues to seem completely unreal to me...how can Shroomie be gone? Brilliant, hilarious, compassionate.....and a real fighter. I am sure that the legacy she left is monumental, and a big part of it is the countless lost, sick, frustrated people whom she helped on this forum.

Thank you so much, Neroli. This place will never be the same without you.

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

she took the time on my very first post to bold things I should include in my symptoms list to give to my GI, and that was only the start of her help.  I noticed she hadn't posted in awhile, but I thought maybe moderators rotate schedules, and she was on vacation.  too bad I was wrong  :(  

 

thank you for sharing your knowledge with others, Mushroom, and giving ideas about what to try next.  you will be missed!

Gemini Experienced
Gemini
Posted

I hope Shroomie's family see these posts because it's bound to make them feel a little bit better, knowing how well she was thought of on here.

JNBunnie1 Community Regular
JNBunnie1
Posted

Lotsa sads..... :(

GottaSki Mentor
GottaSki
Posted

I hope Shroomie's family see these posts because it's bound to make them feel a little bit better, knowing how well she was thought of on here.

 

We are sending the link for this thread to her hubs.

kareng Grand Master
kareng
Posted

I haven't posted yet, because I didn't really know what to say. Still don't.

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

Gemini Experienced
Gemini
Posted

We are sending the link for this thread to her hubs.

Oh......that is so nice!  I hope it will bring him some comfort.

IrishHeart Veteran
IrishHeart
Posted

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

 

....and laughing with glee that you wrote these words, K.  :)

 

it's 4:25 am and I can't sleep and I was thinking, well, Shroom's on the board...

shadowicewolf Proficient
shadowicewolf
Posted

....and laughing with glee that you wrote these words, K.  :)

 

it's 4:25 am and I can't sleep and I was thinking, well, Shroom's on the board...

I know the feeling :(

 

I normally get up early and her posts were one of the first i would see.

ncdave Apprentice
ncdave
Posted

Neroli was such a dear friend to so many here on this forum including myself. She will truly be missed but never forgotten. My prayers go out to her family and all her friends.  

jerseyangel Proficient
jerseyangel
Posted

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

And a big bowl of split pea soup with lotsa croutons!

We had some great legume/lectin chats. Shroom really knew her stuff on all things food sensitivity.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748
    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.