Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sad News

covsooze

By covsooze
in Related Issues & Disorders

Recommended Posts

covsooze Enthusiast
covsooze
Posted

I've had another miscarriage :( This time at 9 weeks. I had a scan just as it was starting, and there was no sign of a baby, just an egg sac - like with my first miscarriage. This is my third one now, so I'm being referred for investigations. If anyone has any good links on the subject for me to read, I'd appreciate it. It makes me appreciate my darling son even more now, I think he's a miracle.

Susie x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

My thoughts are with you Susie.

nikki-uk Enthusiast
nikki-uk
Posted
I've had another miscarriage :( This time at 9 weeks. I had a scan just as it was starting, and there was no sign of a baby, just an egg sac - like with my first miscarriage. This is my third one now, so I'm being referred for investigations. If anyone has any good links on the subject for me to read, I'd appreciate it. It makes me appreciate my darling son even more now, I think he's a miracle.

Susie x

AH Susie - I'm so sorry.

kevsmom Contributor
kevsmom
Posted

Susie - I'm sorry for your loss.

jerseyangel Proficient
jerseyangel
Posted

Susie, I'm so very sorry.

Belinda Meeker Apprentice
Belinda Meeker
Posted

Susie x,

My thoughts and prayer r with you !

I sure hope things work out for you for the best and will keep you in my prayers.

Belinda

blueeyedmanda Community Regular
blueeyedmanda
Posted

I'm keeping you in my thoughts Susie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest micah
Guest micah
Posted

I'm so sorry Suzie,

There is a little information on this website. You may have already seen it.

https://www.celiac.com/st_prod.html?p_prodi...-54107278180.2f

Teacher1958 Apprentice
Teacher1958
Posted

Suzie, I am so sorry for your loss.

Brenda

mouse Enthusiast
mouse
Posted

Susie, I am so sorry.

melrobsings Contributor
melrobsings
Posted

I'm so sorry for your loss. I'm going to an fertility doctor and he said with Celiacs it's scary and we can be up to 40% infertile. I see you don't live in NYC, but if you are ever in the area I'm more then happy to give you his number, he's WONDERFUL!!! I wish you all the luck and health in the world!

AndreaB Contributor
AndreaB
Posted

I'm so sorry Susie. :(

Tephie Apprentice
Tephie
Posted

Susie, my thoughts and prayers are with you.

Stephanie

Lisa Mentor
Lisa
Posted

Susie,

I am so sorry for you three losses. I know how emotional it can be. My daughter found out she miscarried this past week.

You may remember, there was a thread here some time ago regarding miscarrages. I was amazed how many of us had suffered them.

I hope you can find some answers.

angel-jd1 Community Regular
angel-jd1
Posted

I can't imagine the emotions you are going through right now. Take some time and take care of yourself right now. This has to be emotionally and physically hard for you. My thoughts are with you.

-Jessica :rolleyes:

Judyin Philly Enthusiast
Judyin Philly
Posted

Susie

So sorry

I had one before and one after my son.

Nothing makes it easier.

please know if care.

Will send a note from Alice Blast.

Judy

lovegrov Collaborator
lovegrov
Posted

I'm so sorry.

richard

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Oh, I'm so sorry. :(

{{{{{}{{{{{HUGS}}}}}}}}}}

Michi8 Contributor
Michi8
Posted

I'm sorry to hear of your loss. :(

Michelle

horsegirl Enthusiast
horsegirl
Posted

Susie,

I'm sorry to read of your experiences & losses. I don't have any wisdom for you, except

to make sure you take care of yourself as much as possible right now. Do something extra

special for yourself, & give your child a great big hug! Good luck in whatever lies ahead.

My thoughts & prayers are with you and your family.

covsooze Enthusiast
covsooze
Posted
  • Author

Wow...I'm overwhelmed by all your support and love. Thanks so much everyone, it means a huge amount.

Susie x

little d Enthusiast
little d
Posted

Susie

I am sorry for you lose, my daughter and I will keep you and you husband/family in our night, night prayers.

donna

2Boys4Me Enthusiast
2Boys4Me
Posted

Susie, I'm so sorry for your loss.

GlutenFree-Amy Newbie
GlutenFree-Amy
Posted

I am so sorry for your loss. I will keep you in my thoughts and prayers.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Susie, I'm very sorry for your loss. I know, nothing, that I will say or do, will make it any easier for you. I just hope, one day you will have the chance to have another healthy baby and I will keep you in my prayers.

Stef

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    2. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.