Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Symptom!

K8ling

By K8ling
in Coping with Celiac Disease

Recommended Posts

K8ling Enthusiast
K8ling
Posted

My mouth has ulcers!! THis is a very new symptom and I think I got cc'd with the kidlet sharing snacks while we had colds.

Usually I only have gastro problems but the mouth ulcers are actually preferable to me LOL I can handle those easily.

Can my symptoms change with pregnancy? We are working on putting a gluten-free bun in the oven.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

My understanding is that pregnancy changes everything. :P

jerseyangel Proficient
jerseyangel
Posted

Could they be caused by the virus (cold) you had?

K8ling Enthusiast
K8ling
Posted
  • Author

Could they be caused by the virus (cold) you had?

I wondered about that! I have never had mouth ulcers before EVER even with a cold. so I am curious about this.

jerseyangel Proficient
jerseyangel
Posted

I wondered about that! I have never had mouth ulcers before EVER even with a cold. so I am curious about this.

I've had something like that after a cold--like a cold sore but inside the mouth. It hasn't happened to me in years--I was under a lot of stress when it would happen.

Lisa Mentor
Lisa
Posted

Yes, there is some research that links cold sores or mouth ulsers to Celiac....now, to put my finger on it? :huh:

From PubMED:

Aphthae are seen in patients with hematinic deficiency (iron, folate, or vitamin B12); celiac disease; Crohn's disease; HIV infection, neutropenia, and other immunodeficiencies. The mouth ulcers in Behçet's syndrome are often major aphthae with frequent episodes and long duration to healing

Diagnosis of aphthae is based on the patient's history and clinical features because specific tests are unavailable. A full blood chemistry (hemoglobin level, differential white cell count, and red cell indices), iron levels, and possibly red cell folate and serum vitamin B12 measurements, and other investigations may help exclude systemic disorders. Biopsy is rarely indicated.

srall Contributor
srall
Posted

My daughter and I both had mouth ulcers which going gluten free has cleared up.

Good luck on that gluten free baby btw

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rainer83 Newbie
rainer83
Posted

I used to get those when I used to use lipgloss made with wheat germ. I also used to use shampoo with wheat germ and it would made my scalp so itchy, my teachers used to think I always had lice.

cap6 Enthusiast
cap6
Posted

mouth ulcers were a big deal with me before going gluten-free. I would get 8 or 9 at a time. I still get them once in awhile but since going gluten-free they never ulcerate to the point of total pain. Good luck with your little bun.

SGWhiskers Collaborator
SGWhiskers
Posted

Look into hand foot mouth disease (not hoof and mouth disease). It is a coxsackie virus that causes prolific mouth ulcers along with a cold. I had the type that does not cause hand and foot spots, just mouth ulcers and the cold. I was as sick as ever with that virus. I don't remember if it caused GI problems as well, but I do remember a really bad GI issue sometime that year. It was 7 years ago now. If I didn't have mild celiac symptoms all growing up, then that virus was certainly the triggering event for my celiac. And if you google it, remember I was a school employee at the time working with kindergarteners and elementary kids. When I went into the doctor, he called his student in to see because the spots on my tonsils looked like strep, but then I had ulcers on the roof of my mouth as well which we learned was a hallmark of coxsackie vs. strep.

Skylark Collaborator
Skylark
Posted

I had canker sores in my mouth all my life. They disappeared gluten-free. I often get one or two when I've been glutened.

Eilidh Newbie
Eilidh
Posted

Hey,

So I get mouth ulcers...but really badly. I only get one or two at a time and they last for up to 2 1/2 weeks! They are EXTREMELY painful and I end up eating very little food when I have them. The form that I have is called Aphthous ulcers. They are an auto-immune infection that often occurs when you have a low immune system. SO, when you get sick, or get cross-contamination, or eat gluten, your immune system has to work a lot harder to deal with the gluten and leads to low levels of immunoglobulin in the oral mucous membranes. Then if you end up injuring the inside of your cheek, your body has a very hard time replenishing your oral mucous membrane....leading to a canker sore or mouth ulcer.

Thats at least as much as I could find out. They are not contagious, and so you didn't contract it from the kid with the cold.

As for the pregnancy... celiac has been known to effect women getting pregnant, because the body takes such a long time to heal. When my mom was trying to get pregnant with me (before she knew she was celiac)she went to the doctor and he said that she wasn't absorbing nutrients, and to eat a lot of ice cream...and it worked. It might not be it...but it is all I can suggest.

I hope this helps a bit.

Good luck with the baby,

Eilidh

Danig5 Newbie
Danig5
Posted

My mouth has ulcers!! THis is a very new symptom and I think I got cc'd with the kidlet sharing snacks while we had colds.

Usually I only have gastro problems but the mouth ulcers are actually preferable to me LOL I can handle those easily.

Can my symptoms change with pregnancy? We are working on putting a gluten-free bun in the oven.

I am new to this blog thing but I have Celiac and in the past I have had horrid ulcers that required medical attention they have since disappeared now that I know what is wrong with me. :) best of luck

Marz Enthusiast
Marz
Posted

Heya,

I don't think I got full on ulcers, but I did have problems with biting my cheeks, and having the sore stay around for several days. Nowadays I have a sore spot for an hour and then I'm all better :)

K8ling Enthusiast
K8ling
Posted
  • Author

Thanks guys! This hung out for about 2 weeks and then FINALLY went away. It was quite difficult to eat!

I went to the doctor again yesterday and I am showing physical symptoms of being pregnant so they gave me a blood panel and a hormone shot (getting pregnant isn't an issue but staying pregnant is) so I am at home on partial bed rest.

Thanks for all the help guys! I'll keep you posted!

cyberprof Enthusiast
cyberprof
Posted

I had canker sores in my mouth all my life. They disappeared gluten-free. I often get one or two when I've been glutened.

Ditto.

I eat lots of extra garlic (raw preferred) which stings a bit but helps them heal faster.

Good luck! I hope you have good news on the baby soon.

SoyBoy Rookie
SoyBoy
Posted

B-complex deficiency can cause mouth ulcers, and of course is common with Celiac. Since you are working on getting pregnant, do you happen to be taking folic acid supplements? I think I remember reading somewhere that folic acid may mask some B12 deficiency symptoms, and may even lower B12 levels. I

K8ling Enthusiast
K8ling
Posted
  • Author

Yep! Def taking B6 and a prenatal (gluten-free of course).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,244
    • Most Online (within 30 mins)
      7,748
    tmperrella
    Newest Member
    tmperrella
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.