Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?

celiacchef

Recommended Posts

missy'smom Collaborator
missy'smom
Posted

I am really missing pizza, after a few years of no dairy and no tomatoes. I could probably manage to make and allergen-free crust but what to put on it? All the cheese alternatives are out due to other allergens-soy and tapioca. No nightshades so no red pepper sauce. No matter what it would be more of a foccacia than a pizza. I could make an olive an rosemary foccacia but just not the same without a gooey or saucy element. Some kind of dipping sauce for my foccacia? maybe a balsamic and oil might be ok but still not pizza.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 122
  • Created
  • Last Reply
egallag Rookie
egallag
Posted

Grilled cheese. Okay, so sure I can get a knife, fight with a frozen loaf of Udi's for 5 minutes trying to pry 2 slices off, then defrost it, then slap together a sandwich. But frankly, it just isn't the same.

I totally get the Pop Tarts thing. My husband walked in with a box of some new tropical flavored ones about a week ago. "Oh, you wouldn't have liked them anyway." Really? Hi, have we met? Tropical fruit? omg yes please! I was tempted to beat him senseless with the box.

Had to really laugh out loud at the Udi's comment. Did this just the other day, I thought, let me grab a piece of toast on my way out, opened the bag could not get a single slice, put it back in the freezer and grabbed a rice cake.

And I applaud your restraint with not beating your husband senseless :)

curlyfries Contributor
curlyfries
Posted

Ditto on the frozen bread ordeal. I actually had to get stitches in my thumb one Thanksgiving from trying to separate the slices. All I wanted was to make some breadcrumbs!

IrishHeart Veteran
IrishHeart
Posted

I think the thing I miss the most is perogies!

I've made a perogi casserole which is mashed potatoes layered with cheese and lasagna noodles which is totally yummy...but not exactly the same...

I tried making my own perogies also...but the dough is pretty hard to work with to get them to stay together...:S

Good news! Simona posted a pierogis recipe in the recipe section! Check it out:

IrishHeart Veteran
IrishHeart
Posted

You know, guys....I read through this whole thread (and felt a little bit sad, truth be told) but I also realized there is almost always a "plan B" for most of these foods and ways to make them taste good.

I have to say that I completely agree with meatball man's statement--he said he misses the convenience of eating whatever he wants, wherever he wants. That's what I miss, too. It is hard for a major foodie (as I once once)to give up tasting everything from the simple to the exotic with reckless abandon and then coming home to recreate it. I miss the spontaneity of just getting in the car and eating at cozy diners on back country roads while we are out taking photographs. We need a chain of "gluten free eateries" to spring up across the country and we'll all be golden. B)

That's it. That's what I miss the most. :(

IrishHeart Veteran
IrishHeart
Posted

Just wondering....um, where is the original poster?

Chef??

Are you coming back? You have not been back since this first post.

These sweet people have poured their hearts out telling you what they miss.

Hello?? :blink:

Blackee Newbie
Blackee
Posted

Hi Scott,

What's the best dish that you cook? Do you share any of your recipes?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Hi Scott,

What's the best dish that you cook? Do you share any of your recipes?

He hasn't been back since Oct. This forum doesn't allow advertising in posts so perhaps there is no point for him to come back and try to sell us a book or something else.

WinterSong Community Regular
WinterSong
Posted

Seitan. I can make/find gluten free versions of anything else. But seitan is basically pure gluten :(

IrishHeart Veteran
IrishHeart
Posted

I think the chef has abandoned us.

He has not been back since this first post back in October '11

so we may be talking to the air at this point. :huh:

kareng Grand Master
kareng
Posted

I think the chef has abandoned us.

He has not been back since this first post back in October '11

so we may be talking to the air at this point. :huh:

That's OK. We can talk to each other. Maybe someone will see what we miss and have a recipe for us. Like the pirogies the other day.

IrishHeart Veteran
IrishHeart
Posted

That's OK. We can talk to each other. Maybe someone will see what we miss and have a recipe for us. Like the pirogies the other day.

true dat, K! :)

Excellent point!

Kamma Explorer
Kamma
Posted

I miss...homebaked bread with a thick slice of sharp cheddar cheese. This was my total comfort food/dish.

elizabethh Newbie
elizabethh
Posted

The first thing that comes to mind is pizza, I really loved bagel bites and seriously ate those like every day. Also beef jerky, I haven't been able to find a gluten free beef jerky, not sure if there are any or not but that's a bummer.

NewGlutenFreeChef Newbie
NewGlutenFreeChef
Posted

I started another tread with a similar question not knowing that this one existed click here to visit mine if you like though I will continue to check this thread to as it has a large number of ideas on it already as well.

livelifelarge24 Enthusiast
livelifelarge24
Posted

The biscuits from Lucille's BBQ

SammyJ17 Newbie
SammyJ17
Posted

It has only been a few days for me...but the pizza "bones" and REAL bread already for sure!!! I just wish we actually had a selection of reasonably priced, GOOD food to choose from. :unsure:

ndw3363 Contributor
ndw3363
Posted

Pizza, pizza, pizza!! I was missing it before (good, greasy, NY style pizza), but now that I am mostly grain free/sugar free as well, I miss all things carbohydrate. Even the gluten-free alternatives!! Making mac n' cheese with quinoa pasta was one of my treat foods - now I can't have that. For awhile, I was only allowing myself carbs a couple times per week - but that's a slippery slope. Once you start to eat them, you can't stop. Why do our bodies crave things that aren't good for us? Why can't I be an asparagus addict or something? Hopefully once I get my latest issues in check, I can have a heart to heart with my willpower and allow myself the occasional carbohydrate treat.

thefreespirit Rookie
thefreespirit
Posted

I'm veggie and gluten/wheat free. I really miss a nice veggie 'sausage' for a sandwich. :rolleyes:

dani nero Community Regular
dani nero
Posted

Donuts

... donuts

Arabic sweets like Baklawa, Zeinab's Fingers, Knafe

Nutella

ravioli

Anything made with puff-pastry

I can make a pretty decent crusty pizza and amazing fried chicken or fish so those I don't miss!

I'm gonna cry lol :-)

dani nero Community Regular
dani nero
Posted

Just wondering....um, where is the original poster?

Chef??

Are you coming back? You have not been back since this first post.

These sweet people have poured their hearts out telling you what they miss.

Hello?? :blink:

HAHAHAHAHAHA :-) We can still drool over this thread!

IrishHeart Veteran
IrishHeart
Posted

HAHAHAHAHAHA :-) We can still drool over this thread!

I drooled, but I also cried. And I wondered why he asked us to spill our guts like that (just to be cruel? :o ) gee, I hope not!

But as Karen pointed out, by reading through it, I could point someone to a recipe on here that she could use because she missed pierogies.

And maybe others will see something they can link to as well.

So, it has a purpose after all. :)

love2travel Mentor
love2travel
Posted

Donuts

... donuts

Arabic sweets like Baklawa, Zeinab's Fingers, Knafe

Nutella

ravioli

Anything made with puff-pastry

I can make a pretty decent crusty pizza and amazing fried chicken or fish so those I don't miss!

I'm gonna cry lol :-)

You can make Nutella:

Open Original Shared Link

I believe Nutella is gluten-free, anyway.

You can also make ravioli. A few of us here make our own pasta and love it! That way you can fill the ravioli with whatever you like. :P

Poppi Enthusiast
Poppi
Posted

Donuts

... donuts

Arabic sweets like Baklawa, Zeinab's Fingers, Knafe

Nutella

ravioli

Anything made with puff-pastry

I can make a pretty decent crusty pizza and amazing fried chicken or fish so those I don't miss!

I'm gonna cry lol :-)

Nutella is most definitely gluten free! And there are many donut recipes out there.

IrishHeart Veteran
IrishHeart
Posted

Why do our bodies crave things that aren't good for us? Why can't I be an asparagus addict or something?

I hear that. <_<

Since freshly made squishy french bread and ANY cheese are my top two favorite food groups--I find gluten-free and dairy free living to be the ultimate cosmic "screw you" :lol:

I mean, if only celiac were caused by something like fried livers or snails or fava beans for example, I would be the happiest celiac on the planet. :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.