Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Often Do You Eat Out?


smsm

Recommended Posts

smsm Contributor

Hi, So after almost a year and a half into this, I am really truly seeing myself heal. My children are finally growing and sleeping (!!!!), my son is exploding in energy, and my daughter's stomach is better than ever. The downside is I am experiencing intense fear and discomfort with eating outside of the home - and I feel bad. My husband loves to eat out and he is incredibly patient and understanding about not going out, but I think I have become too extreme. I have only been glutened while eating out a handful of times (I tried to go out a ton in the beginning to show that it wouldn't be so hard, and usually I was ok - Disney was a monster success and so were many other places, but when it went badly, it went very badly). I want to teach my young children not to be afraid to go out and how to speak to waiters/chefs/managers and I am frustrating my friends and family with my inability to eat out when it really should be a safe environment (for example an omelet station at brunch where it is only eggs and oil or a steak house). It is just that my symptoms of gluten involve muscle and joint pain that can last weeks and I don't want to be in pain again - I can't enjoy eating out because no bite of food is worth going back to that. How often do you eat out? How do you handle any anxiety about it. I am to the point now where I allow my children to eat out in some cases, but I don't eat - they have not been glutened in our last 3 visits out - why can't that inspire any confidence in me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Strawberry-Jam Enthusiast

I eat out pretty rarely. I will eat at one restaurant in Dublin and two thai takeaways with gluten-free menus. Since thai food is often naturally gluten-free, it doesnt' take them too much trouble to provide gluten-free curries made from coconut milk.

I've had bad experiences at restaurants where the servers seemed clueless. I always pick a place with a gluten-free menu, but I have to add a soya and dairy intolerance on top of that, and it seems like gluten-free stuff is always drizzled with cheese or slathered with cream. :angry:

I'm pretty sure last time I ate out they pan-fried my fish in butter even though they went thru the trouble of leaving the butter off the vegetables. Didn't have the spine to ask about it and I regret that now...

luvs2eat Collaborator

Pretty much never. The last two times we went (to Chilis) and got the gluten-free menu and spoke to the manager and server, I received a salad that didn't even have flour tortilla strips in it according to the menu description, but was filled w/ them. The sad reality is that I simply don't trust restaurants anymore. Hubs and I cook what we like and don't miss it that much.

love2travel Mentor

I don't go to many social events unless I am 100% certain I am safe OR I plan ahead and eat in advance or however I choose to handle it. If I visit my family I do all the cooking with my own stuff.

I do not go to chain restaurants but high-end restaurants where I feel safe. The chefs and staff have received more training (for the most part) and are far more knowledgable. Plus the food is superior. These places really know how to spoil you, yet are discreet. Many offer gluten-free brioche or other bread service as well. So, I eat out about once a month when we make the three-hour drive to the city.

Having said that, I can cook better than most restaurants and enjoy it immensely. So, I rarely even think about eating out! :P My pantry is filled with wonderful gourmet ingredients and my mind is filled with thousands and thousands of superb menu plans.

When traveling it is different - if in a foreign country I plan in advance and take along restaurant cards in those particular languages. Often I go to markets and grocery stores.

xjrosie Apprentice

We eat out about twice a month. It's only been since December that I had my kids' diagnoses though. We have actually been out more frequently than twice a month as of now, but now that I'm learning more creative things to cook, we are going back to our regular thing.

We've eaten at Buffalo Wild Wings, BD's Mongolian Barbeque (they will cook yours in a separate area in a clean pan), Red Robin, Applebees, Cheeseburger in Paradise, Golden Corral (buffet, tricky but doable), and Ruby Tuesday.

Ruby Tuesday was the most gluten-free-friendly.

I refuse to eat anywhere that has "Coney Island" in the name. All I see is sloppiness and lack of education when I think of them.

I want to make my kids confident that they can handle this disease, and not let it handle them. The more they are exposed to tricky situations that come out positively, the more it reinforces the fact that this isn't a lifestyle-ending thing. If it comes out negatively, you know what to avoid the next time.

My advice: go for it. You're giving in to the disease if you let it control what you do.

alex11602 Collaborator

Unless you count my mother's house who is very careful when she cooks for my kids, we have not been out to eat in over a year since before we went gluten free. Eventually I may go to Five Guys, when I get less nervous about it, so my kids can have a fast food burger and feel like everyone else, but I have no desire to eat out at all. If we want something special we find a way to make it in a way that satisfies all our dietary needs.

pricklypear1971 Community Regular

I eat out about once per week. Sometimes more, but I try not to.

I go to high end restaurants that others have told me do gluten-free or publish a gluten-free menu/statement. I also have tried BJ's, Pei Wei, etc. and been fine.

I did have one horrid glutening experience, I think - a local place that had a gluten-free menu but I'd read reviews they were bad at it - they got me the second time.

I do have one totally gluten-free restaurant here, as well as a bakery (just opened) so I am luckier than most. Also, I live in a resort town, and I find they are very good at gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I don't go to many social events unless I am 100% certain I am safe OR I plan ahead and eat in advance or however I choose to handle it. If I visit my family I do all the cooking with my own stuff.

I do not go to chain restaurants but high-end restaurants where I feel safe. The chefs and staff have received more training (for the most part) and are far more knowledgable. Plus the food is superior. These places really know how to spoil you, yet are discreet. Many offer gluten-free brioche or other bread service as well. So, I eat out about once a month when we make the three-hour drive to the city.

Having said that, I can cook better than most restaurants and enjoy it immensely. So, I rarely even think about eating out! :P My pantry is filled with wonderful gourmet ingredients and my mind is filled with thousands and thousands of superb menu plans.

When traveling it is different - if in a foreign country I plan in advance and take along restaurant cards in those particular languages. Often I go to markets and grocery stores.

What she said! :P There are a few people on this forum who I feel are living a parallel life to mine!

If you live in an area where there are many higher end restaurants and awareness, then you will do fine with it. I fully realize that not all parts of the country are like that. You really get to know whether a place will work or not but that takes time and practice. I tend to go to the same places where I know they will not make a mistake and they never have. My husband and I probably go out about once a month to every 6 weeks.

IrishHeart Veteran

I don't go to many social events unless I am 100% certain I am safe OR I plan ahead and eat in advance or however I choose to handle it. If I visit my family I do all the cooking with my own stuff.

I do not go to chain restaurants but high-end restaurants where I feel safe. The chefs and staff have received more training (for the most part) and are far more knowledgable. Plus the food is superior. These places really know how to spoil you, yet are discreet. Many offer gluten-free brioche or other bread service as well. So, I eat out about once a month when we make the three-hour drive to the city.

Having said that, I can cook better than most restaurants and enjoy it immensely. So, I rarely even think about eating out! :P My pantry is filled with wonderful gourmet ingredients and my mind is filled with thousands and thousands of superb menu plans.

When traveling it is different - if in a foreign country I plan in advance and take along restaurant cards in those particular languages. Often I go to markets and grocery stores.

EXACTLY :)

Thanks for your post, LOVE2--- it is almost exactly what I would have written and you saved me the time. :lol: I fear chain places, diners, etc. --gluten galore! :blink:

I am also VERY fortunate to have a TOTALLY dedicated gluten-free cafe/bakery run by "one of us" :) about 45 mins. away that I go to for lunch twice weekly after physical therapy. It's my reward and I socialize with/and have the opportunity to help other celiacs. Lucky me. :)

We NEED MORE of these safe havens.

Cheers, IH

IrishHeart Veteran

What she said! :P There are a few people on this forum who I feel are living a parallel life to mine!

.

We ARE indeed living parallel lives, kiddo. :lol: :lol: :lol:

Darn210 Enthusiast

About once a month and we go to the same three places because we have had good luck there . . . PF Changs, Red Robin, and Five Guys. I let my daughter order for herself most of the time so that she gets experience talking to the wait staff.

Melissa Palomo Apprentice

I eat out way more than I should - but at the same few places. Mostly the local taco shop for work lunches - :)

love2travel Mentor

What she said! :P There are a few people on this forum who I feel are living a parallel life to mine!

If you live in an area where there are many higher end restaurants and awareness, then you will do fine with it. I fully realize that not all parts of the country are like that. You really get to know whether a place will work or not but that takes time and practice. I tend to go to the same places where I know they will not make a mistake and they never have. My husband and I probably go out about once a month to every 6 weeks.

We do live parallel lives in ways, don't we? Nothing wrong with enjoying the best food possible and being able to do so safely at the same time. :P

love2travel Mentor

We ARE indeed living parallel lives, kiddo. :lol: :lol: :lol:

YUP! :D

love2travel Mentor

EXACTLY :)

Thanks for your post, LOVE2--- it is almost exactly what I would have written and you saved me the time. :lol: I fear chain places, diners, etc. --gluten galore! :blink:

I am also VERY fortunate to have a TOTALLY dedicated gluten-free cafe/bakery run by "one of us" :) about 45 mins. away that I go to for lunch twice weekly after physical therapy. It's my reward and I socialize with/and have the opportunity to help other celiacs. Lucky me. :)

We NEED MORE of these safe havens.

Cheers, IH

Only too glad to help, IH! :lol: Sure, make me look like the food snob I am. :lol:

No cafe/bakery anywhere around except the Kinnikinnick one in Edmonton. Oooooh...I almost forgot. They have reformulated their bread. It is now SOFT! No need to wait for 22-minute toast. I tried it the other day and it's true. It did not fall apart, nor did it become crumbly with my heavily-laden sandwich fixings. Good to know for the times I don't make my own.

IrishHeart Veteran

About once a month and we go to the same three places because we have had good luck there . . . PF Changs, Red Robin, and Five Guys. I let my daughter order for herself most of the time so that she gets experience talking to the wait staff.

I just want to say....You are such a wise woman. :) Providing your daughter with coping tools-- early on-- to be independent, assertive and confident ... and in total charge of managing her celiac disease.

Major kuddos, J! ;)

IrishHeart Veteran

Only too glad to help, IH! :lol: Sure, make me look like the food snob I am. :lol:

No cafe/bakery anywhere around except the Kinnikinnick one in Edmonton. Oooooh...I almost forgot. They have reformulated their bread. It is now SOFT! No need to wait for 22-minute toast. I tried it the other day and it's true. It did not fall apart, nor did it become crumbly with my heavily-laden sandwich fixings. Good to know for the times I don't make my own.

It takes one (food snob) to know one. :lol: :lol:

Really? no more 22 minute toast? Girl, that was one of the funniest damn threads I ever read. :lol:

love2travel Mentor

It takes one (food snob) to know one. :lol: :lol:

Really? no more 22 minute toast? Girl, that was one of the funniest damn threads I ever read. :lol:

:lol: on both counts.

I will never, ever forget that 22-minute toast. And at 22 minutes it was not even brown - just sort of beige here and there and sort of crusty but not really. I bet to get it nice and toasty it would have taken 31 minutes. :P

dani nero Community Regular

The only reason I would want to eat out would be because I'm too tired or too busy to cook. This is the toughest part but I usually cope with that because it's becoming tougher for me to put my health into someone's hands. It takes them a split second of absent-mindedness to render me dysfunctional for days, if not weeks.

Besides, I got over restaurant food the moment I found I can make food that is as tasty as theirs and better quality-wise than most. I do miss the days when I didn't have time and simply ordered thai takeout though.

Di2011 Enthusiast

I don't eat out. :{

Unfortunately my skin (DH) also reacts to corn, sals and possibly iodine so that takes away any menu. I am slowly adapting my pantry / cooking so things are a lot more interesting in my kitchen than they have been the past 10 months. I ALWAYS have fresh garlic next to the stove and fresh garlic butter in the fridge. My mums amazing garden potato, our great Aussie avocado, good cheese, garlic and herbs and little bit of curry paste have been my saviour. ((I find Thailand products like rice noodles and curry paste to be most reliable and "safe". Their cuisine is naturally gluten free so their production lines for these products tend to be so..))

I am re-learning to cook. It is a great relief to feel this way after many months of basic meat/veg/fruit and not much else. I was always hungry and struggled to maintain weight. I was so excited to introduce cheese, pure cream and (very natural) yogurt!!!! I might even test a chocolate milk mix at some stage!

When I get it all sorted I hope to have a lot of people over for dinner at my place!

love2travel Mentor

I don't eat out. :{

Unfortunately my skin (DH) also reacts to corn, sals and possibly iodine so that takes away any menu. I am slowly adapting my pantry / cooking so things are a lot more interesting in my kitchen than they have been the past 10 months. I ALWAYS have fresh garlic next to the stove and fresh garlic butter in the fridge. My mums amazing garden potato, our great Aussie avocado, good cheese, garlic and herbs and little bit of curry paste have been my saviour. ((I find Thailand products like rice noodles and curry paste to be most reliable and "safe". Their cuisine is naturally gluten free so their production lines for these products tend to be so..))

I am re-learning to cook. It is a great relief to feel this way after many months of basic meat/veg/fruit and not much else. I was always hungry and struggled to maintain weight. I was so excited to introduce cheese, pure cream and (very natural) yogurt!!!! I might even test a chocolate milk mix at some stage!

When I get it all sorted I hope to have a lot of people over for dinner at my place!

I am so sorry you are unable to eat out and really hope that changes for you very soon. Good thing you can have some dairy. That would have been very hard in addition to your other intolerances.

I know what you mean about Thai products - they are fabulous. I cook Thai often at home with kaffir lime leaves, lemongrass, pandan leaves, make my own curry paste, etc. But I do have to drive 3 hours to good stores to buy these ingredients.

Maybe you will need to send out invitations have US over for dinner! :D

dilettantesteph Collaborator

I can understand why you wouldn't want to eat if there is a possibility of weeks of pain. Why do it? Why not spend the money on cooking supplies and gourmet foods and enjoy cooking and socializing at home?

I don't eat out. I will occasionally go out with friends to socialize and not eat or bring my own food. More often my socializing doesn't involve food or takes place at my house.

GFinDC Veteran

Oh, at least 2 or 3 times a year, maybe 4 or 5 even. That includes times getting a piece of fruit and water or fruit juice to go with my Lara bars I brought along. I have gotten salads at places a few times, and been ok. I always bring something safe with me if I am going out for an event like a sketchcrawl. Because we usually stop for lunch somewhere. As long as I have something with me I can eat I am happy to stop anywhere the group finds handy in the area. Usually we are walking around a neighborhood all day sketching and so we find a local place that looks good. Generally I don't know ahead of time where we will end up eating. So I may get some steamed veggies or salad with no tomatoes or cheese or croutons and vinegar and olive oil dressing. That and an orange or apple or banana and I am all set. I have just not eaten before but that seems a little awkward for the rest of the group. So I think it's better to bring something along to eat. They always think I am some kind of health nut or on some super weight loss diet. :) The one time I had a problem was in a stupid pizza joint where they were tossing the dough in the air a couple feet away from me and patting it down with flour. I got a glass of wine and a pear to eat and got sick. Probably from flour on the glass or pear or just in the air. Or on the waitress maybe. She was cute though so it was worth it. :)

Darn210 Enthusiast

...Or on the waitress maybe. She was cute though so it was worth it. :)

Ummmm . . . GeeEff, were you nibbling on the waitress again? :huh::o:P

:lol::lol:

babygirl1234 Rookie

it depends when my house goes out they are ueslly good about making sure they have gluten-free stuff for me, or they cook me what i can have but they are good about it :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748

    Rena Celiac
    Newest Member
    Rena Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.