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Awol cast iron stomach

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Everything posted by Awol cast iron stomach

  1. Awol cast iron stomach
    As above posters said some don't show gold standard results. My journey , I could not finish my 2 week gluten challenge. I am considered NCGS. My symptoms are a mile long and include many organ system besides gi and skin. My endoscopy showed intraepithelial infiltration, inflammation, (visible by the naked eye stomach and esophageal) discolored...
  2. Awol cast iron stomach
    "They told me I had to order my special diet one week in advance!!! As if I knew when I would get a heart attack!" Wow. It never occurred to me until I joined these forums that people with a medical condition could not get safe food in hospitals. I read your stories and it is sad, frustrating, and frightening. Thank you for sharing your stories...
  3. Awol cast iron stomach
    Ennis, Sorry to hear of the Dr billing situation. I read a book last month (since you are talking about reading) that delves into healthcare and billing. It is titled An American Sickness by Elisabeth Rosenthal . She is a MD and and award winning journalist. She discusses the emergence of a la carte billing like you describe. It may not be your type...
  4. Awol cast iron stomach
    I over the years was low in Mg/calcium,and B vitamins for years, an alternative Dr suggestion I supplement helped to manage my myalgia and connective/nerve issues. In time a Dr diagnosed me vitamin D deficient that also helped. The gi issues were long present with no permanent relief. As for zinc that one shows on my nails mostly toes, but even fingers on...
  5. Awol cast iron stomach
    Hi Elly, DC is very knowledgeable and I find him very helpful since I joined the forum. I avoid gluten As much as humanly possible. I get my ataxia symptoms first, my gi symptoms within 35-45 minutes of consumption. My DH (the rash) arises in 7-9 hours. 2 days my mood plummets. I get a variety of symptoms and they can vary at times. My consistent...
  6. Awol cast iron stomach
    Congratulations on the completion of your PhD. You nailed it othering and isolation aplenty. I also find additional situations of when you reveal to people at work your disease, there is a sub conscious increase in gluten by others . They all freak out and a likely subconsciously increase the gluten heavy meals rolls out immediately following word getting...
  7. Awol cast iron stomach
  8. Awol cast iron stomach
    Hi checking in on you again to finish with your inquiries to the best of my abilities the physiological based details. "What fo you mean your Gallbladder was a trickle of bile?" As you know I explained I went gluten-free prior to my challenge. So I knew what my body felt like before and how it functioned physiologically better after I removed...
  9. Awol cast iron stomach
    Hi checking in on you again to finish with your inquiries to the best of my abilities the physiological based details. "What fo you mean your Gallbladder was a trickle of bile?" As you know I explained I went gluten-free prior to my challenge. So I knew what my body felt like before and how it functioned physiologically better after I removed...
  10. Awol cast iron stomach
    Please also give a review if this works for you. I avoid gluten as much as possible (entirely gluten-free home etc no eating out) and after my last cc incident. I have issues they seem like mast cells or histamine related. I up the B-12 in addition to what is in my multi, it seems to help, but not enough. So I may have to follow your lead. I do also wonder...
  11. Awol cast iron stomach
    Many like cycling lady and Ennis on here said to whole foods. I had to go a step further and blend. In general anti inflammatory food lists items. Think smoothies and soups. Lots of greens, fruits, veggies, I stayed off meats or anything that required gallbladder and pancreas/ bile and enzymes. So initially I was blending broccoli as quasi soup. Blueberry...
  12. Awol cast iron stomach
    After my gluten challenge I literally blended my food as most of my organ systems were inflamed,damaged , and sub par functioning. They could not perform, do their job, they were injured. When I walked my spleen hurt. My spleen! My gallbladder was at a trickle of bile, while I knew it worked well before ( as I was gluten-free before my challenge that is a...
  13. Awol cast iron stomach
    Thanks for the update Mr. Adams. I know this news may upset people, especially those who were willing to undertake the role of test subjects in the advancement of celiac research. In my opinion it is wise to pull the plug at this stage, and I am certain that is not easy for the researchers either. The wisdom is also knowing when to extinguish a non viable...
  14. Awol cast iron stomach
    I would say they are late to the game. Ed Debevic's in Chicago has been insulting customers for decades. Lots of sass and zingers. Although Ed Debevic's they were not specifically attacking gluten free , food intolerant, and food allergy customers. They were politically incorrect to all, I think before politically incorrect became a common term. So late...
  15. Awol cast iron stomach
    Thanks for the information poster boy. Yes,the last few months have been hard on my body. As Ennis pointed out I might be unrealistic about the ataxia/neurology component and healing. As MCAS was something my diagnosing team diagnosis and I didn't fit / check all those boxes. Some days it makes me wonder did they miss something. My husband reminds me they...
  16. Awol cast iron stomach
    I am still working on it. I appreciate the feedback. I do often have similar symptoms to you. I am not sure if it is an immune issue or more of a neurological issue. As you said I may just be unrealistic about how long the neurological stuff takes. So many of our organ systems can get challenged or need to heal. Meanwhile I am trying to return to the workforce...
  17. Awol cast iron stomach
    Any one with Ataxia often have symptoms that could fall under MCAS, POTS, or autonomic dysfunction? Since returning to work I've been working hard to keep some Celiac\DH symptoms under control. I have been doing well for most part. Even stopped eating in work lunchroom to ensure I am safe from cc. I have had struggles on\off last 8 months with neuropathy...
  18. Awol cast iron stomach
    Hi there, One incident of cc at a restaurant my left arm went completely numb within 30-45 minutes after consumption. My symptoms fall like dominos and often in a similar pattern, but it can vary . I avoid gluten, but I also was misdiagnosed for 20 plus years . I have had symptoms my lifetime. After diagnosis and living more strict I found...
  19. Awol cast iron stomach
    Yes , personally my stomach was horrendous on my endoscopy seen by naked eye in scope photos. I must stay gluten-free for not only my intestines , stomach, nerves, brain, gallbladder, pancreas and hormones. I probably forgot something else. Edit - I forgot to add I was negative h pylori etc . So that was ruled out.
  20. Awol cast iron stomach
    Welcome as gluten-free in DC says we often have issues. I had 13 additional food intolerances after my diagnosis. My immune system was quite dysfunctional after my gluten challenge, and almost every organ was inflammed and not functioning properly. I got some foods back over time with healing. I now personally avoid gluten, corn, milk, and oats. During...
  21. Awol cast iron stomach
    Good points. Plus many of us get a variety of symptoms and if alternative helps then so be it. So glad to hear it was identified and you were able to improve.
  22. Awol cast iron stomach
    Most of us have had similar thoughts and feelings to you about the aisles we don't bother going down. On some level I appreciate they are all in one place. As Ennis said in time we make our own recipes etc. My children and husband can eat gluten free items from the store. I have found my immune system likes me to make my own bread and pizza items. In...
  23. Awol cast iron stomach
    Thanks I'll give your bagel recipe a try some time this summer. Best wishes on the farmer's market selling season.
  24. Awol cast iron stomach
    Alternative Dr 's/practitioners I have seen or research use the term digestive issues. They do not use celiac/ncgs specifically. They do ask what your medical history/western diagnosis is, but digestive issues and my gi symptoms or immune symptoms are what is discussed. personally I find most are compliant with regulatory "boxes" for Dr's terminology and...
  25. Awol cast iron stomach
    Doesn't apply to me, but I wanted to say that you are a wonderful person to help locate someone who would be considerate of your present roommate condition. Best wishes
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