Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Found Out - Little Bro Has A Brain Tumor

ShayFL

By ShayFL
in Introduce Yourself / Share Stuff

Recommended Posts

ShayFL Enthusiast
ShayFL
Posted

Hey everyone....I just found out my little bro has a brain tumor. It is on his pituitary and they suspect it is "benign" even though it has completely messed him up physically and caused depression. His hormones are a mess....so I dont see it as "benign". They are still running tests. They put him on medication immediately to "shrink" the tumor and it is making him quite ill.

He is young at 36 and has a wife and autistic 10 year old son who thinks the sun and moon revolve around "Daddy". He is such a great guy and it breaks my heart to see him go through this.

Prayers needed and greatly appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikki-uk Enthusiast
nikki-uk
Posted

I'm so sorry to hear this :(

My thoughts are with you.

Lisa Mentor
Lisa
Posted

So sorry about your brother. I hope he has a speedy recovery.

jerseyangel Proficient
jerseyangel
Posted

Oh my God, Shay--I'm so sorry to hear this. I will most definately keep your brother and his family in my thoughts and prayers. Keep us posted.

MELINE Enthusiast
MELINE
Posted

I am so sorry Shayfl.....I really don't know what to say. My prayers are with your brother and his family. You have to support him and be strong for him. I can't even imagine how painful this must be. Keep us informed about his progress. Iknow many people who went through really difficult situations and are healthy now (leuchemia...) so please have faith.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

Hi Shay,

I'm SO sorry. That's a very difficult thing to go through at any time of the year. Hopefully the doctors can figure this out and he'll be on the road to much better health.

My prayers are with you and your brother!

lizard00 Enthusiast
lizard00
Posted

So sorry to hear that Shay!! I hope that the outlook is promising and that your brother recovers speedily!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Prayers sent!

mommida Enthusiast
mommida
Posted

My prayers are with your brather and family and friends.

Laura

ShayFL Enthusiast
ShayFL
Posted
  • Author

Thank you everyone!! I just spoke with him in depth. He has to take the medication until March when they will do another MRI to see if the tumor is "shrinking". It is not a secreting tumor, it is just putting pressure on the pituitary and causing hormonal defects.

Thank you for your prayers. We need em!!!

frec Contributor
frec
Posted

I'll be praying...

ang1e0251 Contributor
ang1e0251
Posted

I'm praying for major tumor shrinkage and a Christmas miracle! Please feel all the healing prayers sent his way.

flourgirl Apprentice
flourgirl
Posted

You have my prayers, too, Shay! Not only for a miraculous recovery and return to full good health, but for a happy, holy Christmas season for your family...especially for kids. Hang onto your hope, and circle yourselves with love....T

blueeyedmanda Community Regular
blueeyedmanda
Posted

My thoughts are with your family and do hope your brother well.....

MyMississippi Enthusiast
MyMississippi
Posted

My daughter-in-law just had surgery last month for the same thing---- She came thru the surgery fine----- And the tumor was benign just as they suspected.

Amazing how resiliant the human body is ---- and there is awesome medical technology and skill these days.

Will be praying for your brother.

luciddream928 Explorer
luciddream928
Posted

I'm so sorry, Shay. You and your family are in my thoughts and prayers!

Blessings,

Rachel

neesee Apprentice
neesee
Posted

I'm sorry Shay. I'm adding my prayers for your brother too!

neesee

home-based-mom Contributor
home-based-mom
Posted
Prayers needed and greatly appreciated.

You got 'em.

DingoGirl Enthusiast
DingoGirl
Posted

My prayers and hope also! :)

ksymonds84 Enthusiast
ksymonds84
Posted

My prayers are with you and your brother Shay.

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

Shay, I'm so sorry to hear this. My thoughts and prayers are with you and your brother and his family. Hang in there. I know this is hard on you too.

ShayFL Enthusiast
ShayFL
Posted
  • Author

Thank you again everyone!! It is the waiting that is so hard. March seems such a long way off. If he needs the surgery that will be another hurdle as he lives in a very rural part of GA. Tallahassee would be the closest for him. I know how important a good surgeon is!!

ravenwoodglass Mentor
ravenwoodglass
Posted

Shay, Hopefully the doctors feelings are right and this will be benign. I will keep you guys in my prayers.

henny Explorer
henny
Posted

best wishes for a quick, uncomplicated, and complete recovery!

have faith that this is treatable and thank goodness they found it!

cmom Contributor
cmom
Posted

My prayers are with you, Shay. My stepson had a brain tumor (and 2 cysts) when he was around 15. Once it was discovered, they operated within the week. He is fine now (age 36) and just got married Nov. 15. Have faith and think positive!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Haugeabs
      - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil. Gluten free but not certified gluten free. Soy free, GMO free.
    2. trents
      - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even...
    3. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    4. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    5. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,413
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Haugeabs
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Haugeabs · Posted

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By trents · Posted

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.