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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- Theresa2407 replied to chrish42's topic in Doctors4Doctors and Celiac.com
Our support groups in Iowa have tried for years to educate doctors and resource sites like this one. We have held yearly conferences with continued education classes. We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott. In those many years we may have had 2 doctors attend. We sent them information, with no response. I talked to... -
- Scott Adams replied to suek54's topic in Dermatitis Herpetiformis4Awaiting dermatitis herpetiformis confirmation following biopsy
If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch: -
- Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications3
Healthy Gluten Free Foods low sugar that you found?
One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships -
- trents replied to suek54's topic in Dermatitis Herpetiformis4Awaiting dermatitis herpetiformis confirmation following biopsy
You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency. -
- suek54 replied to suek54's topic in Dermatitis Herpetiformis4Awaiting dermatitis herpetiformis confirmation following biopsy
Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application. And yes, giving the gluten-free diet 110%. Very careful...
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By Theresa2407 · Posted
Our support groups in Iowa have tried for years to educate doctors and resource sites like this one. We have held yearly conferences with continued education classes. We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott. In those many years we may have had 2 doctors attend. We sent them information, with no response. I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach. Saying if you see this, it is Celiac. If it isn't in their playbook then they don't care. Most call it an allergy with no mention of our immune system. There is so much false information on the internet. Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone. Scott has working hard for the Celiac community. -
By Scott Adams · Posted
If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch: -
By Scott Adams · Posted
One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships -
You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
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Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application. And yes, giving the gluten-free diet 110%. Very careful about any cross contamination. This is my fifth autoimmune condition so well and truly on that bandwagon.
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