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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Adeling commented on Scott Adams's article in Autumn 2025 Issue12Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
I, too, was diagnosed in 1980. I was lucky that my mother cooked everything for me from scratch. I also feel lucky that I can have potatoes. I'm sorry for this extra limitation!- additives
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- Julie 911 replied to Julie 911's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Medication
I finally got rhe answer and Tylenol is ok. Thanks everyone -
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- Florence Lillian commented on Scott Adams's article in Autumn 2025 Issue12Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
I was diagnosed with Celiac disease in 1980. There were no gluten-free products nor was there informed guidance. Since then, many, many companies now make gluten-free food. However, I have always become very, very sick when eating one of the main ingredients in the majority of gluten-free foods - POTATO STARCH. I eat a potato, or anything with potato starch...- additives
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- Adeling commented on Scott Adams's article in Autumn 2025 Issue12
Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
If you are lucky enough to be diagnosed young and if you stick to a strict gluten free diet, most people will not need to heed these pieces of advice. Being strict with a gluten free diet is the most important thing. I've heard way too many people say, "It only upsets me a little", or, "I can get away with a taste".- additives
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Hey Julie! I was in a similar situation before my biopsy and my gastro said Tylenol was fine. Just avoid ibuprofen or anything anti-inflammatory until you're cleared. Hope your surgery goes smoothly!
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I don't see how cornstarch could alter the test results. Where did you read that?
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By knitty kitty · Posted
For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12. The combination of these three vitamins has analgesic effects. I have back pain and this really works. The B vitamins are water soluble and easily excreted. Hope this helps! Keep us posted on your results! -
By knitty kitty · Posted
Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis. Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food. With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins. The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations. Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating. Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen. If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition). Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D.. Talk to your doctor about checking for nutritional deficiencies. Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes. If you do not have genetic markers for Celiac, it's probably IBS. If you do have genetic markers for Celiac, it's probably Celiac. I was misdiagnosed with IBS for years before my Celiac diagnosis. Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.
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