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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • Scott Adams
      Yes, but what has really happened is that companies just removed "gluten-free" from their packaging, as General Mills has done for Canadian Cheerios. Why they would allow a 20ppm for gluten-free in other foods and only set this higher level for oats is very odd, and no other countries do this.
    • knitty kitty
      That "gut ache" after drinking may be more than alcohol not agreeing with a gut that's trying to heal. Alcohol prevents absorption of vitamins, and actually breaks thiamine Vitamin B 1 so it cannot function.  Thiamine deficiency can cause Gastrointestinal Beriberi, with symptoms of digestive upsets and abdominal pain, nausea, vomiting, anorexia, and can cause neurological problems and problems with thinking and judgement.  I've experienced Gastrointestinal Beriberi myself.  Thiamine supplementation is a must, along with the other B vitamins and Vitamin C.   Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://pubmed.ncbi.nlm.nih.gov/31543793/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/
    • Suze046
      Yeah I think my body is definitely telling me to lay off the alcohol I just don’t seem to agree with it right now but that might be because my gut is still trying to heal. 
    • Gwen myers
      We are a couple with celiac trying to find a concierge doctor in Palm Beach Gardens/West Palm/ Jupiter area that has knowledge of celiac .  Help!
    • Mettedkny
      Thank you so much for your validation. I completely agree with you that the crackers COULD be the culprit even with very small trace amounts (less than 20ppm) and accumulating over time - I am at the point where I am about to request that my son gets retested to make sure that my "control subject" is still testing perfectly lol. I have a meeting with my celiac disease doc tomorrow and will run the crackers by him to see if he is willing to retest in a few weeks. I have not had any of them for the past 3 weeks so far, so fingers crossed, we can retest and hopefully find out if it is them. And no - I have been scouring EVERYTHING to make sure nothing else has changed. Only use gluten-free lip products and toothpaste so not there either (but very good suggestion). Thank you for validating me. I feel like many are just saying "you are not being gluten-free enough - but I do have a perfect 16 year track record that proves otherwise - so has to be something sneaky.
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