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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • hjayne19
      This is great thank you very much @Scott Adams
    • hjayne19
      Thank you so much @knitty kitty I really appreciate this information. I’m so thankful to have found this forum and this community. After reading the book “at last a life” that @cristiana recommended, I have been experiencing a lot more anxiety than I thought I was. This book really helped me put things into perspective.    In terms of the B complex, do you have recommendations for amounts or any B complex should do? I am in Canada if that makes any difference for brands.    Also those articles are very helpful as well, thank you. I know 3 months is still early in the healing period but these tips are very helpful to hopefully feel physically better sooner than later! 
    • Aretaeus Cappadocia
      "I'm wondering if she just hadn't eaten enough to test positive?" --> Because your daughter is "IGA deficient", the (gliadin IGA) test she was given could not work properly and the result of that particular test was meaningless. The amount of gluten she did/didn't eat would not matter for that part, whether or not she actually has celiac disease. If instead she had had normal levels of IGA in her blood, then the question of how much gluten she was eating would become relevant.
    • cristiana
      That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection.  If do see my gastroenterologist I'll mention it again.   I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm it.
    • Scott Adams
      For the Inguinal hernia I could definitely feel it, and it came with an obvious bulge that appeared soon after doing a project where I was drilling holes on concrete using a very old school regular hand drill with mason bit, instead of a hammer drill with mason bit--this left me squatting over the drill putting my weight on it for several hours (the hammer drill would not have required this level of stress, nor the time it took). Bad idea--learn from my mistake in being "lazy" and not renting (or buying) the proper tool for the job. My umbilical hernia was around for many years, and I didn't feel that one at all, so never worried about it. My doctor basically recommended doing both in one surgery, which seemed like wise move.  As far as the possible IBS connection to either, it was definitely apparent after getting the Inguinal hernia, which is why I asked my doctor about that, but after getting both fixed I realize that the umbilical hernia likely also had mild IBS effects over the years.
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