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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • Heatherisle
      Thanks for your reply. She has been given a date for her endoscopy, 28th of this month, so hopefully she’ll know for sure if she definitely has coeliac. Needless to say she’s dreading it!!!!
    • Russ H
      That is more than 10x the standard range, so a strong positive. In the UK for children and adults under the age of 55, at least 10x the standard range is sufficient to be diagnosed without having an endoscopy. The NICE guidelines are are different for children in that a referral to a gastroenterologist is also recommended for diagnosis. https://www.coeliac.org.uk/healthcare-professionals/diagnosis/how-to-test/ https://www.coeliac.org.uk/healthcare-professionals/diagnosis/diagnosis-in-children/  
    • knitty kitty
      Welcome, @annamarie6655, I followed the AIP diet, too.  It allows the intestines time to heal.  I still avoid a lot of processed foods.  Once you get used to eating whole foods, they taste better than processed foods. I couldn't eat pepperoni without becoming ill.  Pepperoni is a processed meat that uses "meat glue" to hold its shape.  "Meat glue" is microbial transglutaminase produced by microbes in a lab.  Transglutaminase produced by microbes works the same in our bodies as tissue transglutaminase, which causes inflammation.  Remember those antibody blood tests, tTg IgA and tTg IgG?  They test for tissue transglutaminase produced by the body in response to gluten.  The microbial transglutaminase provokes the same response in our bodies as if exposed to gluten.  Best to avoid processed meat products like formed chicken nuggets, luncheon meats, formed hams, sausage, etc.   Best wishes.
    • knitty kitty
      Welcome to the tribe! Do discuss the Autoimmune Protocol Diet (Dr. Sarah Ballantyne) with your dietician.  The AIP diet helps while the intestines are healing, lowering potential to develop other food sensitivities.  Be sure to discuss supplementing with vitamins and minerals.  Damaged intestines don't absorb essential nutrients well.  Supplementing while healing boosts absorption and provides vitamins needed for repair.  
    • MegRCxx
      Update: Biopsy results in, i have coeliac disease and awaiting advice with the dietitian. Thank you everyone for your help.
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