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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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  • Recent Activity

    1. - trents replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

    2. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

    3. - Jmartes71 posted a topic in Related Issues & Disorders
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      New issue

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

    5. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

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    • trents
      Okay, I got lost in the weeds here in this protracted thread. What are you taking omeprazole for? Your original thread had to do with dental, gum and thrush issues. Normally, a PPI is prescribed for people with GERD (acid reflux). How long have you been on omeprazole?
    • Caligirl57
      Hi Charlie  I also take omeprazole. It does help. I was diagnosed with fatty liver about 20 years ago. Didn’t pay any attention to it. Then 20 years later diagnosed with celiac disease that I probably had most of my life, looking back. Both of those things caused my liver to fail. I’m not a drinker. When I was diagnosed back in the states I had 30 days to live. After 3 weeks, in hospital I received a liver transplant. I was so sick I was there for 3 months. After that my kidneys went south. I was on dialysis for 8 months and on a kidney transplant list. When we received the call about an available kidney (4yrs) I was so excited! After the transplant the surgeon told my husband I had a 1 in 10 million chase for a kidney transplant as my antibodies were at 99%. Only 1 percent of the population was a match to me. I’m 1 year out from my kidney transplant and have so much energy and life left to live!  Please everyone, listen to your body and get medical advice. I wish I had sooner.   i hope this will inspire more people to Donate to Life. 
    • Jmartes71
      Curious if any other disregarded celiacs medically, not eating wheat and other foods im not to consume but yes its in the house because others have to eat. Currently dealing with eye issues, skin issues,blood and colon look fabulous because NOT consuming. Now im dealing with i may have ms or meningioma....Im also sibo positive, ibs which they think is the cause, " depression " which medical has caused me.Why is it so hard for medical to believe. I went to ER Dec 23 per pcp and got blood drawn sick as hell looking like a corpse bride with dark circles and pale skin.No surprise they said my blood is fine and I had to say thats not what im here for because im always told its fine when not, Ketones waked and then they said I have the flu, ya the flu 24/7 for years battling what the heck is going on.Doctors really need to listen, understand celiac which I've tried to school in past from what I've learned on these websites but it feels as if running in a useless circle. Im to take gabapentin 300. for a week and then go up to 600 since taking this and a other med that was prescribed no longer taking because it makes me awake.This one too is amping me up to not be sleepy when I am tired. Just curious if meningioma or ms is a link to core issue of celiac?I also saw the proclamation but confused because it states that California has two women?  Do I reach out to them? Ive already wrote to my local representative in Stanislaus County.Being celiac and dealing with a circus of clowns that didn't diagnose one doesn't make celiac go away and its not fair or right to us.Im angery, diagnosed by gi doctor by biopsy before foods eliminated from my diet, celiac sprue at the age of 23 in 1994.Now menopause has killed any tolerance i had and body affected badly.No one should go through the medical HELL ive been through.  Also positive HLA-DQ2 
    • Charlie1946
      @Caligirl57 hi and thank you for the reply! I have had myself scared to death over this. I am still having pain but it's not as bad. I have always had bad teeth and gums  @trents thank you, so omeprazole is the right thing to take?
    • cristiana
      @Charlie1946 You are more than welcome.  If you are struggling with mental health do consult with a medical professional and follow their advice if they think you need medication, as I did for a while, but I hope you will find these books as helpful as I did on the road to recovery.
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