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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


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    • hjayne19
      Hi @knitty kitty just covering back to this topic. I appreciate everyone’s help. Dairy was definitely adding to some of my issues but I wanted to ask about histamine. When I was working with my dietician I mentioned I got a stuffy nose when I was eating strawberries which I had just noticed one day in particular. Once I looked more into this I realized that histamine peaks at night and can cause insomnia exactly as I had been describing before. Working with her I realized while I wasn’t eating a lot of high histamine foods, I was eating a lot of histamine triggering or releasing like bananas (I was having several a day) and strawberries. Also some nights are worse than others but I also discovered meat sitting out even for a day can increase in histamines especially salmon which I eat quite a lot of even though I thought I was getting it fresh. Just wanted to know your thoughts and I’m just curious how this ties into celiac and leaky gut. 
    • Teaganwhowantsanexpltion
      I was diagnosed at 6 after having severe stomach pain after eating white bread or any kind of gluten my sister had one done aswell I was scared for the biopsy but thats bc the gas mask thing but now that I am a 14yr old female struggling with severe chronic pain making my body ache for no reason making it hard to sleep and do the things I love like playing spot which I love to do but I can sometimes not even be able to walk bc my knees hurt so bad I can or my hips or back the only think I wish for is to be a normal kid which I can't even be and I get accused of faking pain bc there is no physical things to notice especially at school when one day it will be so sore im limping the next im walking perfectly fine idk if its all from celiac disease but im the only one in my family that has this problem 
    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
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