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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- nanny marley posted a topic in Introduce Yourself / Share Stuff0Manitol and mri
Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little, I get a weird throat and ears and I've read it is... -
- Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications7Ibuprofen
Ok thank you. Me either -
- Scott Adams commented on Scott Adams's article in Autumn 2025 Issue5The Addictive Nature of Gluten and How to Quit Eating It (+Video)
Just today here someone was discussing their wish to cheat on their diet when they go to Italy: -
- hayley3 commented on Jefferson Adams's article in Conferences, Publicity, Pregnancy, Church, Bread Machines, Distillation & Beer3Michael Douglas Calls Gluten-free Diet Key to Post-Cancer Health Recovery
People don't go gluten free unless they feel better...It's a hard thing to go gluten free. But this is 2025, 10 years later...I was searching to see what diet he followed to get better and I'm surprised he went gluten free and that actually helped. -
- Colleen H posted a topic in Coping with Celiac Disease0
Celiac attack confusion and anxiety
Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain, neuropathy and muscle, jaw pain, the stomach issues , Horrible anxiety and confusion?? I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that...
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By nanny marley · Posted
Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little, I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄 -
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Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain, neuropathy and muscle, jaw pain, the stomach issues , Horrible anxiety and confusion?? I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen?? I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ?? Thank you
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By Scott Adams · Posted
The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat. -
Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
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