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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Scott Adams replied to RMJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Damage after 13 years gluten free
It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful. -
- RMJ replied to RMJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Damage after 13 years gluten free
Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before. I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!- 1
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- trents replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease28Struggling to get into a good pattern
Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes. -
- Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease28Struggling to get into a good pattern
Just giving another update... I was referred to rheumatology, and they suspect that I may also be dealing with fibromyalgia (it has not been formally diagnosed, but just suggested at this point). So, I am continuing with the anti-inflammatory diet and vitamins and still working to keep getting rid of all these hidden gluten sources, but I also do have another... -
- Scott Adams replied to SEQ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Newbie with Celiac / NCGS symptoms
I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could...
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By ShadowLoom · Posted
I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own. -
By Scott Adams · Posted
It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful. -
Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before. I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
-
Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes.
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By Rejoicephd · Posted
Just giving another update... I was referred to rheumatology, and they suspect that I may also be dealing with fibromyalgia (it has not been formally diagnosed, but just suggested at this point). So, I am continuing with the anti-inflammatory diet and vitamins and still working to keep getting rid of all these hidden gluten sources, but I also do have another possible explanation for some of the issues that I'm dealing with.
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