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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- knitty kitty replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications20Lubriderm-gluten-free?
@Known1, I'm sure you can find a shelter or community service group that would appreciate your lotion donation. I've replied to the topic of your bloodwork as it relates to vitamins in your "Introduce Yourself" post so as not to high jack this thread. Thanks- 1
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- Scott Adams replied to Olenaideole's topic in Gluten-Free Foods, Products, Shopping & Medications18What apps or tech tools help you manage celiac disease?
The comments requested are very limited in scope, and I don't think this shotgun approach would be helpful, but that is just my 2 cents, for what it's worth. -
- Florence Lillian replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease51Supplements for those Diagnosed with Celiac Disease
Hi all: Scott, I am glad you listed all your supplements, etc, many new to Celiac will be floundering as I was when diagnosed in 1979. After much trial and error, the following supplements are now a daily MUST HAVE for me. We have to keep in mind, too much can be just as damaging as too little. Further, I have found that 'brands' of supplements vary...- 1
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- Scott Adams commented on Jefferson Adams's article in Summer 2022 Issue5
Once Promising Celiac Drug Larazotide Looks Doomed After Disappointing Phase 3 Trial
Welcome @LifeOfBryan, do you have celiac disease, and are you currently on a gluten-free diet? Currently this is still the only treatment, even though there are various medical treatment approaches in the works.- celiac disease
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- Known1 replied to Known1's topic in Introduce Yourself / Share Stuff8Diagnosed Marsh stage 3C in January 2026
Thanks, that is a great idea!- 1
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By knitty kitty · Posted
@Known1, I'm sure you can find a shelter or community service group that would appreciate your lotion donation. I've replied to the topic of your bloodwork as it relates to vitamins in your "Introduce Yourself" post so as not to high jack this thread. Thanks -
By Scott Adams · Posted
The comments requested are very limited in scope, and I don't think this shotgun approach would be helpful, but that is just my 2 cents, for what it's worth. -
By Florence Lillian · Posted
Hi all: Scott, I am glad you listed all your supplements, etc, many new to Celiac will be floundering as I was when diagnosed in 1979. After much trial and error, the following supplements are now a daily MUST HAVE for me. We have to keep in mind, too much can be just as damaging as too little. Further, I have found that 'brands' of supplements vary hugely! I tend to go with the newer ones as I find they 'digest' better, and digestion is HUGE with many of us. In hopes my input may help someone through the jungle of supplements: I buy from Amazon. I take Naka Cal/Mag Marine Algae with Vit D. Explanation here re/ Algae: I do not take anything with fish oil. I can't swallow large capsules so I chew them...a bit 'fishy' tasting but not bad. I was using a top brand but one day it tasted like...rotten, strong, yucky fish taste. I switched to Algae, I also have a 'thing' about farmed fish full of anti-biotics but don't get me started on that...I digress. I take extra D3, Celiacs need this.. I get the one from Sports Research, great company in U.S.A. I also take B complex from 'Thorne' as well as extra B12 subliminal, another one Celiacs need. I agree with Scott the need for extra B12 for a clear brain. I also take a Multi vitamin with Zinc- Naka brand. Also, K2 MK7 is a must for Celiac... and finally, I take Omega-3 Algae. I truly hope this helps someone - I know the struggle well. Florence. -
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it's not mysterious, it's currently not officially diagnosed as labs are presenting a very complicated case with multiple potential causes- and of course they each have a different treatment. hmm... well everything you put in your body is interactive with everything else are you assuming I have an iodine deficiency? I seriously doubt it but I'll check the iodine content of my nori sometime to see if maybe I'm getting too much... too much is bad too. link doesn't work I've spent hundreds if not thousands of hours crafting a good optimal diet for my particular needs. Yes definitely thousands of hours. I have enjoyed it immensely and will continue to refine my diet as it suits me and my own physiology. . My body has decided it will not work properly, either due to an adenoma (benign) or hyperplasia and/or a small kidney defect (that remains to be seen but it's not looking good) and/or we don't yet know......... it does NOT look like it's one single issue, it appears to be at least two different ones not going to give out my full medical history here for ppl to second guess (unless one or more of you have a medical degree and specialize in gastroenterology, nephrology, endocrinology, rheumatology etc) I got permission to stop the drug I was on (I was going to stop it without "permission") so in the meantime I have to walk a VERY VERY fine line with vit D and calcium intake to avoid losing any more BMD than I already have. while I wait til the next round of testing I MAY be able to tolerate a gluten challenge that doesn't have the addition of a confounding variable (the drug I just stopped) it was impossible to tell what symptoms were from the gluten challenge and which were from the drug
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