Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg Omg Omg!


cherie012

Recommended Posts

cherie012 Apprentice

OK. I know the whole BM topic is kind of gross, but..you all will totally understand, I hope..... He had his first EVER in his life NORMAL BM!!!!! OMG OMG I am SOOOOOOOOOO happy!!!!! Oh happy day!!!! I think this is it! This is the key! No meds! I told the DR we already began a food trial, and our results so far..... Oh I hope this continues! Maybe he'll gain and grow now.... :D:lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

LoL! :-)

Congratulations!

Smunkeemom Enthusiast

Oh I remember the first normal BM that Annika had after her start on the gluten-free diet. I thought about recording it in her baby book LOL

Congrats, it's a great feeling when you know your kid is feeling better. It makes you feel like all this work (figureing out the diet) really is worth it.

:D

dlp252 Apprentice

Where else but here would everyone TOTALLY understand! :) Congratulations!

VydorScope Proficient

Woot! COngrats! Yea, prbly everyone here can relate LOL what a world we live in , eh?

traveljunkie Rookie

:) Yeah!!! It's so wierd wierd how we get excited about poop! :P Keep on with the diet, it seems to be the answer!!

Charlene

Guest nini

YAYYYYYYY!! Doing the happy poopy dance!!!! :lol::lol::lol::lol:

I do remember the first time my daughter had a solid bm after going gluten free! I thought it was a MIRACLE!!!!!

yeah, where else would people TOTALLY understand! Congrats!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cherie012 Apprentice

Ya know, I was SO happy, I called my family ( poor people LOL) DH, and wrote the ped GI... I am ESTATIC. I mean, that is a BIG first around here. sounds SO silly, but man! We can do this. It seems to be helping... :huh: Thank you all SOOOOO much for tolerating my insessant questioning, LOL. You all helped seal the deal for me to start gluten-free first......

:D:D

taweavmo3 Enthusiast

Oh yeah, we all TOTALLY get how excited you must be! I'm so glad you are already seeing results...that makes any challenges you face completely worth it!

What's funny, is that I'm so used to talking about BM's, I forget sometimes that others are still quite embarrassed to talk about it. So, I'll be spouting off about Ben's diarrhea, or whatever......and I'll get the strangest looks from some people. Even my dad, he hates it when I even say the word diarrhea. I don't even think twice about it anymore, it's part of our normal daily conversation these days when it comes to talking about the kids!

Rachel--24 Collaborator

Thats great news! Wasnt it just a couple days ago the doctor was suggesting meds? Sounds like your child is responding very quickly to the diet change so I'm sure you have your answer now. :)

cherie012 Apprentice
Thats great news! Wasnt it just a couple days ago the doctor was suggesting meds? Sounds like your child is responding very quickly to the diet change so I'm sure you have your answer now. :)

I had put him on the diet myself last week~ it wasn't hard because he's small, and the main thing I had to do was replace his snack foods~ generally dry cherios or puffed wheat, or crackers with other things. we beefed up his fresh fruit and veggie intake as well instead of the other snacks he was using, and put rice cereals in place of the wheat, rice crackers in place of the others. There wasn't an immediate change~ but it tapered down to same ol same ol but 2 times one day, to one, and today was "normal" His dr said saturday on the phone he wanted to do drugs first, because he didn't want to restrict his diet ( I already had resticted it, but wasn't really hopeful after my conversation with him that it would work at all, since it had been a few days and still no change.)

Judyin Philly Enthusiast
OK. I know the whole BM topic is kind of gross, but..you all will totally understand, I hope..... He had his first EVER in his life NORMAL BM!!!!! OMG OMG I am SOOOOOOOOOO happy!!!!! Oh happy day!!!! I think this is it! This is the key! No meds! I told the DR we already began a food trial, and our results so far..... Oh I hope this continues! Maybe he'll gain and grow now.... :D:lol:

Congrats....It must be awful to see your child go through this...I know how i felt about my first formed BM 20 weeks ago after 10 years.....what a wonderful season blessing.

judy in philly

mytummyhurts Contributor
His dr said saturday on the phone he wanted to do drugs first, because he didn't want to restrict his diet

That's really weird to me...he's concerned about your child not being able to eat a few things that could possibly be causing serious damage...but he's okay with putting a bunch of chemicals in him? :huh:

cherie012 Apprentice
That's really weird to me...he's concerned about your child not being able to eat a few things that could possibly be causing serious damage...but he's okay with putting a bunch of chemicals in him? :huh:

It was odd to us, too. He wanted to put him on steroids, and a ulcerative colitis med that has nasty side effects~ some are brain injury in children under 2..... Blood issues, etc. It had to be taken with folic acid... He wanted to see if that helped ebfore doing diet changes.. :huh:

We tend to do lots of japanese style foods in this house, so eliminating gluten for the kids isn't that bad ( say, as it is for me who is a total bread/baked good/fast food addict, lol). the main culprits of gluten here were breakfast cereals that were eaten as snacks, crackers, breaded chicken etc... the kids don't care much for bread/sandwiches.

Smunkeemom Enthusiast
What's funny, is that I'm so used to talking about BM's, I forget sometimes that others are still quite embarrassed to talk about it. So, I'll be spouting off about Ben's diarrhea, or whatever......and I'll get the strangest looks from some people. Even my dad, he hates it when I even say the word diarrhea. I don't even think twice about it anymore, it's part of our normal daily conversation these days when it comes to talking about the kids!

yeah. I get into that too. My husband has Crohns and my kids have celiac, and I have some type of IBS so we talk about poop at our house a lot.

"How are you today?"

"okay, my crohns is bothering me"

"solid, or rhea?"

"water rhea"

"I will go get the immodium"

it's a natural conversation for us, when other people figure that out they are less embarassed, but it's difficult to remember that other families aren't so open about thier bathroom stuff.

:P

e&j0304 Enthusiast

I'm so happy for your little guy!

That's wonderful news. Drs. are so quick to drug people and I really feel that it is most time unwarrented.

I wish your little boy the best of luck with his new diet. We have seen amazing results with it ourselves.

Take care!

Shannon

Guest nini

I just wanted to mention, since you said that Cheerios had been one of his fave snacks, that Glutino is now making several flavors of a gluten free cereal that is very much like Cheerios! I like the Honey Nut version!

katerinvon Rookie
I had put him on the diet myself last week~ it wasn't hard because he's small, and the main thing I had to do was replace his snack foods~ generally dry cherios or puffed wheat, or crackers with other things. we beefed up his fresh fruit and veggie intake as well instead of the other snacks he was using, and put rice cereals in place of the wheat, rice crackers in place of the others. There wasn't an immediate change~ but it tapered down to same ol same ol but 2 times one day, to one, and today was "normal" His dr said saturday on the phone he wanted to do drugs first, because he didn't want to restrict his diet ( I already had resticted it, but wasn't really hopeful after my conversation with him that it would work at all, since it had been a few days and still no change.)

Congrats, and good for you to be willing to try something else. I've been a nurse for ten years, and I know that doctors don't have all the answers. No one could possibly be educated in every detail of everything that can go wrong with the human body. And, like everyone else, some are more open to suggestion than others.

My daughter is undiagnosed, on the diet, and durring her last really bad episode, the Dr. (not our regular one) told us not to worry, it's probably just a virus, and gave us an antifungal for her raw bum, even after my husband explained her history. (Sigh)

Thankfully, we have the resourses, time, energy, and motivation to search out all the tiny details of something that affects our children. Try doing that for 30-50 people with 30-50 problems every day, and you can see why our Drs won't always go that extra mile. (Again, sigh)

Good luck and much happiness in your gluten free travels. :)

Karen

jenvan Collaborator

Small victories! Woo hoo!!

cherie012 Apprentice

Karen, I am a RN too, but not GI, LOL. I am very new to this realm, starting with the birth of my son... I know they don't have all of the answers, but sometimes feel strange not taking thier advise, when generally it is sound. But, he is having positive results, no matter what the tests may or maynot say. It could be coincidental, but I doubt it. I will keep on going for awhile, and then trial him to see what happens. If it comes back, then we know, right?

Thanks to all!

katerinvon Rookie
Karen, I am a RN too, but not GI, LOL. I am very new to this realm, starting with the birth of my son... I know they don't have all of the answers, but sometimes feel strange not taking thier advise, when generally it is sound. But, he is having positive results, no matter what the tests may or maynot say. It could be coincidental, but I doubt it. I will keep on going for awhile, and then trial him to see what happens. If it comes back, then we know, right?

Thanks to all!

I'm not a GI specialist, either. Ask me about wounds, I'll tell you about wounds! (My daughter's rash ulcers looked like stage II-III decubetis ulcers!)

I agree, too, that we should not give up on our Drs, just not take everything they have to say as gosple. :) At least research what he tells you so you understand what is going on. :) Education is our best defence!

Karen

jerseyangel Proficient

So happy to hear you put him on the diet yourself and are seeing positive results. I was so hoping he wouldn't have to go on the harsh steroids--Dr. gave them to me when they still thought my symptoms were a result of recurring sinus infections. (Said that the mucus draining down my throat was causing the nausea, etc.) That was years ago, and it did give me relief for a while, but by the time the disease came roaring back, a lot of damage had been done. I had injections of Decadron, and I feel that that contributed to my high blood pressure now. A lot of the side effects of steroids don't show up for years.

ianm Apprentice

Nothing makes your day like a good dump. :lol: It is rather disturbing that the doctor was quick to put a child on heavy duty drugs and not consider a dietary change first.

junieb Rookie

LOL!!!! I had the same feeling when dd just last month, at 7y, had the same thing!! I couldn't believe there was just 1 big poop in the toilet. I didn't realize how gross it always was until I saw this 1st normal one.....36 hours after eating her last bite of gluten. And, the horrible foul smell is no longer there! Her belly is noticably less distended now and the nightly stomachaches are almost gone. She is not as tired as she was and people who don't really know her situation have recently commented that she looks like she has grown during the past month. This is all so wild. Congrats!

mommida Enthusiast

I am so happy for you guys! Get ready to go shopping for the coming growth spurt!

Laura

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...