Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Wanted To Say Thanks To Everyone For Being So Great!

Sweetfudge

Recommended Posts

Sweetfudge Community Regular
Sweetfudge
Posted

So I've spent some time on another forum (which will remain nameless), and I've shared some personal problems...all I ever seem to get from the people there are criticisms. They just have no regard for how their words make me feel. I'm just happy that I have you all to vent to and help me through my problems in a constructive way! You all rock! ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Rant away here, you're safe! It's quite therapeutic, eh? ;)

Hugs.

Karen

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Glad you found all of us here, I felt the same way when I first came here. I thought I was the only person in the whole world with this condition. That I was going to wallow in my own self pity for the rest of my life.... boy was I wrong. I dont even think celiac anymore. Its just my way of life now.. it becomes so natural, its like I was never any other way.

The people here are great. Always supportive, no matter what.

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Mean people suck!

Our peeps are the greatest!

jerseyangel Proficient
jerseyangel
Posted

Stick with us, Sweetfudge--you're safe here :)

Ursa Major Collaborator
Ursa Major
Posted

You're so right about other forums. I've been a member of many forums, for fibromyalgia, Asperger Syndrome (three of those), Tourette Syndrome, and this is the first one where I've really felt safe.

It seemed on other forums, the nice people (or defenseless ones, like me) get bullied until they leave. Here, any bullies that start treating others badly, are made to leave instead. It's a great place to be.

Jestgar Rising Star
Jestgar
Posted

I think that ever being so miserably depressed while eating gluten, how could I possibly find anyone else's comments or experiences something to grouch about?? :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
I think that ever being so miserably depressed while eating gluten, how could I possibly find anyone else's comments or experiences something to grouch about?? :D

lol!

thanks all! :)

Guest nini
Guest nini
Posted

this is a really great site! Thanks to Scott for creating it, and thanks to all the wonderful friends I've met here!

luvs2eat Collaborator
luvs2eat
Posted

I agree... I've learned so much here and know I can ask anything and get experienced and tolerant answers!!

happygirl Collaborator
happygirl
Posted

just as happy as you are to have us, we are happy to have you part of our family!!!

taweavmo3 Enthusiast
taweavmo3
Posted

Yep...had a bad experience too on another celiac forum, and now this is the only place I post. The people here are absolutely awesome, I learn something new everyday. Thanks, ya'll!

floridanative Community Regular
floridanative
Posted

I also agree as this type of forum goes, celiac.com can't be beat. Only very few negative people told me some things that thank goodness turned out not to be true. I ignored them and plunged on learing this new way of life. Now I find I don't have time for this board as much so I love listserv since I it's quick and you may be able to help someone and if not you just don't reply. But when you really need help with a product or anything really, someone on this board is likely to be able to, and take the time to help you. Some of the boards out there are so fanatical they are scary. I got some really bad medical advice from several people on such a board. When their advice about exactly what type of supplement to take turned out to be wrong, I left and never looked back.

Though it's been said before - special thanks to Nisla and Patti as they let me know I would be okay when I was so scared in the very beginning. Happy Holidays guys!

Lisa Mentor
Lisa
Posted

Oh yes, it was not so long ago when I was panicked, struggling and clueless about Celiac Disease. This was my first experience on a message board, as many of you remember. Kaitie, celiac3270, Karen, Lynne, Patti, Judy, Mouse, Rachel, richard, Shirley, as well as others, walked me through this maze, and with their help, I found my way out. Many have become dear friends.

I truely could not have become healthy without ALL of you and I give you my thanks. :)

PS: That's about as sappy as I get, so enjoy it. :P

Lisa

grantschoep Contributor
grantschoep
Posted

Agreed to the idea "this site is great".

I've been on many other sites. Gluten related and ones that are not. So many of the replies to questions are of the following.

1. You didn't say where you were from. You must say where your from.

2. "Search.... this question has been asked 100 times..."

3. Or simple one off "me too" or "ya that". Yes in away this post is one of those, but it contains more letters that "yea that"

Ahh... I just had to rant.

Lisa Mentor
Lisa
Posted

This is such a great post, I just wanted to bump it up a bit.

Kaycee Collaborator
Kaycee
Posted

This place is awesome, I have had experiences elsewhere where I was belittled and made to feel I was making everything up. I felt I had to keep on defending myself.

But here I can just say as much or as little as I want without getting the third degree. It is very therapeutic to just sit and type, it makes me feel better.

The best part, as far as my family is concerned, as I have become a bit obssessed with coeliac, is that I don't bore them to tears with it.

Cathy

jesscarmel Enthusiast
jesscarmel
Posted
Agreed to the idea "this site is great".

I've been on many other sites. Gluten related and ones that are not. So many of the replies to questions are of the following.

1. You didn't say where you were from. You must say where your from.

2. "Search.... this question has been asked 100 times..."

3. Or simple one off "me too" or "ya that". Yes in away this post is one of those, but it contains more letters that "yea that"

Ahh... I just had to rant.

i had the same experience and laughed when i read the thing about "say where you are from" i also hated how you HAD to say "eating out is risky" everytime you mentioned a restaurant!! lol

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Winter 2026 Issue
      8

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

      Thanks this is helpful!
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fermented foods, Kefir, Kombucha?

      very interesting thanks for the info
    3. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    4. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    5. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,916
    • Most Online (within 30 mins)
      7,748
    Ykat
    Newest Member
    Ykat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.