Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Let's Talk To Oprah


wethree

Recommended Posts

wethree Newbie

On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jacqui Apprentice
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

done-going ther now. My family and I keep saying I ned her doc's - Dr. Oz and Dr. Rosen(?). We were very disappointed in the View talk about celiac disease. My Mom told me they dedicated a whole show to depresasion, which is commercially announced every commercial celiac needed a whole show, not the last 10 minutes!!eak. Sorry but celiac needed a whole show as it barely scratched the surface.

confused Community Regular
done-going ther now. My family and I keep saying I ned her doc's - Dr. Oz and Dr. Rosen(?). We were very disappointed in the View talk about celiac disease. My Mom told me they dedicated a whole show to depresasion, which is commercially announced every commercial celiac needed a whole show, not the last 10 minutes!!eak. Sorry but celiac needed a whole show as it barely scratched the surface.

I think it would be awesome if dr. oz talked about celiac. I was not impresses with the segment on the View either. I felt it did not cover it enough and it was all rushed. I was happy to see it on television, just wish it was longer and gave a more detailed view of the whole aspect of celiac. Ten minutes is not enough time to talk about something that so many have no idea what it is.

paula

jacqui Apprentice
I think it would be awesome if dr. oz talked about celiac. I was not impresses with the segment on the View either. I felt it did not cover it enough and it was all rushed. I was happy to see it on television, just wish it was longer and gave a more detailed view of the whole aspect of celiac. Ten minutes is not enough time to talk about something that so many have no idea what it is.

paula

Ditto.

It is almost a year now and I am sooo tired of people including most of the doctors I or family have had to deal with. NO ONE takes Celiac serious, well at least the people(including family!!) I have been dealing with have been completely ignorant.

I can't go on it is late and I feel a rage of frustration coming on... :angry:

jacqui Apprentice
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

I went, I signed up, But I couldn't find what you were talking about so I started to e-mail them and then got side tracked...

Where do I look?

My husband and I will do it this morning...

darlindeb25 Collaborator

Click on her site and scroll down to "email us". When that window opens, there are different guestions you can click on and one is, Do you have an idea for our show?

UNCHeel Rookie

I think you all read my mind. I will log in and make the suggestion as well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

GREAT IDEA!!!!

I'm rushing out the door right now--can someone please post a link to tempt those who are either lazy, rushed, not good with Oprah's sites, etc? That way, we might get more of us getting the message across to Oprah!

jerseyangel Proficient

Here's the link--

Open Original Shared Link

confused Community Regular

Done, i so hope she listens to all of us that send in this idea. I really belive she will listen to us.

Has anyone ever tried to get Dr Phil to do an show on celiac?

paula

luvs2eat Collaborator

Don't like Oprah... won't watch Oprah... the only time I've written was the first and last time to tell her to please scrape her nose off the ceiling... cause I don't CARE what she thinks!!

(bah, humbug... I'm not usually so crabby...)

Fiddle-Faddle Community Regular

Thanks, Patti!

I sent my request in. This is the second time I've written (I tried last summer, too), but maybe it'll catch her attention if a whole bunch of us keep peppering her with emails!

finally diagnosed Apprentice
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

all set. i sent an email with a suggestion. i hope it works. lorrie

UNCHeel Rookie

Mine is in too. We'll keep our fingers crossed.

  • 2 weeks later...
angelbender Newbie

Well, a bit later than these other postings but I just sent my request to Oprah's Show too. I also am not very fond of her anymore.....she pretty much does whatever she pleases/suits her. I had written a number of times years ago about covering Fibromyalgia and got a nasty reply. Perhaps this will turn out better.

I haven't checked all of the postings yet but did anybody see the article on Elizabeth Hasselback in the April 09 issue (it came out last Friday) of People Magazine where it mentions her Celiac Disease twice?

  • 2 weeks later...
brendygirl Community Regular

Today they show Oprah After the Show and it had Oprah's trainer, Bob Greene talking about his book The Best Life about diet and exercise. A woman in the audience asked how she could accommodate her diet since she is allergic to peanuts, dairy, and gluten.

Bob said there are gluten free recipes on his book's website and that when you register you can set parameters so you can only receive Gluten-free recipes.

I thought it was great to hear them speak about gluten free! It seemed he was quite familiar with it.

elye Community Regular

Unfortunately, he isn't as familiar with the disease as we all are, or he'd be ALL OVER Oprah to do a complete show on celiac and its myriad debilitating symptoms... :(

Canadian Karen Community Regular

Personally, I think it is negligent of Oprah to be all over the autism issue without bringing up the gluten connection at all...... :angry:

gfp Enthusiast
Personally, I think it is negligent of Oprah to be all over the autism issue without bringing up the gluten connection at all...... :angry:

LOL... no offense.... but Oprah will do what makes for viewing figures....fits neatly into a show.... etc. and has the right components to make her look good...

So the problem really is her Dr's probably have no idea about celiac disease.... (above and beyond what our MD's do)....

We can probably see 101 reasons it actually would make a good show.... and all the different avenues she could explore whereas her advisors and script writers just see a dull disease....

Basically and I know this sounds tough.... a few avenues she'd love to cover would be

"My husband had moods and beat up on me when he was glutened"

"I lost my job/baby/marriage due to celiac"

"My employer discriminated against me because of my disease"

Not poor (mainly) white (often) middle class Americans ... or perhaps I'm just cynical...

More chance of getting on Jerry Springer by saying you'll get glutened and start pulling the hair out of the MD they bring on to say brain fog is all in your head.... :ph34r:

However its definately worth a go.... I just think y'all have more chance if yoos rights yoos emails like this!

elye Community Regular

That is a great idea!

The producers of Oprah's show are simply rolling their eyes at stories of weekends spent in the bathroom with unrelenting D, of nagging migraines, of brain fog, of stomachs that look nine months pregnant...I can just see their eyes glazing over. They need to hear from those who have had countless miscarriages, a failed marriage, spectacular seizures and memory loss, the cancer diagnosis that could have been halted had celiac been diagnosed in time. Unfortunately, it is only the gut-wrenching stories that they will glance twice at--the stories that would make her audience stammer, "WHAT? Eating wheat can do THAT?!" If anyone is brave enough to write to Queen O with a personal account of the truly tragic and debilitating sides of this disease (and you must sound desparate and committed to getting the word out) I think then we have a chance of bending her ear. Gfp, you are onto something...

gfp Enthusiast
Gfp, you are onto something...

Sometimes I actually hate to be correct....!

Its just entertainment... people tune in for sensationalism.... I don't think Quenn O is bad... she's just dfoing her job which is entertainment.... and in some ways she does actually help.... but only when it fits the sensationalism and promotes her... but that is what entertainment is all about...

I always remember hearing a newspaper writeup for Jerry Springer doing a show at Cambridge univerity.... he started the show by asking what the heck intellengent people were doing watching his show.... then continued saying he doesn't care if it makes him money.. (at least its honest)...

The thing is there is some sensationalist thing in all of us to some extent.... its the slow down to see the traffic accident syndrome...

but it makes for good viewing figures and these people are just following their job....

I honestly think unless there is sensationalism its not going to be considered... and that means as you say someone willing to share (on national TV) some very personal stories....

Suzanne M. Rookie

I also have written to Oprah about doing a show. She reaches so many households. I run into people every week that seem to have symptoms of Celiac, but, have never heard of it, and they are not getting diagnosed correctly.

elye Community Regular

I'm afraid my personal account to Oprah was just too eye-rolling and boring...low iron and vague GI stuff. But I am serious when I put the call out to the countless people who have eye-opening, incredible stories about what gluten has done to them. Really, I'm certain that this is the magic bullet to get Oprah finally to look our way, after all the posts we have shared together over the last few years on this problem of getting her attention.

  • 2 weeks later...
brendygirl Community Regular

Oprah tends to do shows based on topics of interest to people she knows. For example, she just did a whole show on the topic of Russell Simmons' book, Do You. Oprah does not have celiac disease, and it is NOT her responsibility to do a show about it.

ELISABETH HASSELBECK DOES have celiac disease and SHE should be using HER celebrity status to push the issue and SHE should talk to Oprah about how she felt the best she ever had while on Survivor- eating only fish and rice! (the mini-segment The View did on celiac disease was downplaying and confusing- it seemed her mission was to show how NORMAL she is rather than to educate people about it)

eleep Enthusiast

Hey -- if she needs someone to talk about losing a relationship because of celiac, I'll dish about my breakup for celiac publicity!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.