Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do For A Living?


Bosque

Recommended Posts

Bosque Rookie

As many on here, I was misdiagnosed with Celiac


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



quietmorning01 Explorer
What do you for a living?

Hi, Bosque,

My first thought is 'you mean.. . NOOOW?' Currently I work for a software company - part time. It's a new job - I've asked what my current job title is. . .but no one seems to know. . .heh. . gopher, maybe? **laughing** I work at home two days a week and work in the office three, and pretty much can write my own hours - yeah, it fits me very well in my getting older age.

:)

Amyleigh0007 Enthusiast

I teach first grade. Let me tell you, I absolutely love, love, love my job but it's not the greatest job to have when you are a Celiac and you have accidently injested gluten! You can't just run to the rest room when ever you need to. When I am so tired I want to cry I have to force myself to have enough energy to handle 24 six and seven year olds. Parents are always making goodies for us and I can't eat any of them. When PTO orders pizza for us for lunch I can't have it. But, there is always a funny side. I teach cardinal directions with the sentence "Never Eat Soggy Wheat" (North, East, South, West - get it?) and my class gets a kick out of reminding me that I should never eat wheat, even if it isn't soggy. :lol:

whitball Explorer

I'm a case worker and work with adults with developmental disabilities. I cover two counties and trust me I know where every bathroom is in each part of the counties that I cover! Being a celiac has it's challenges, especially when I attend conferences. Most do not have a gluten free menu, so I often have to bring my own food. My clients often struggle with understanding my food restrictions, as they often offer their own snacks or food when I visit their homes.

Lisa16 Collaborator

Hi Bosque!

I am a professor at a large state university. This is the ideal job for a celiac-- you only have to physically be in one place for a couple of hours each day-- the rest of the time you can run to the bathroom all you like. Plus you get the summers off and a long holiday break. Plus the occasional sabbatical. If I didn't have this job, I would never have survived 23+ years of misdiagnosis.

Even so, there were times (before diagnosis) when I had to run out of class-- even in the middle of student presentations. Not good. Funny-- it always happened in the class after lunch. I would eat a bagel.

Now it happens only from time to time and I have many fewer sick days-- I used to get the most god-awful headaches.

JennyC Enthusiast

I worked as an organic chemist for a while, and now I'm back in school studying clinical laboratory science, meaning that I'll be running all of the patient lab tests for hospitals, clinics, and/or reference laboratories. I am counting down the days until graduation... ;)

nasalady Contributor
As many on here, I was misdiagnosed with Celiac

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I was self-diagnosed after I retired; used to be a legal assistant. Sure wish at least one of the doctors I consulted in my lifetime had had the presence of mind to consider celiac--would have saved much suffering and permanent after-effects.

blueeyedmanda Community Regular

I work in a large hospital as a Cancer Research coordinator. Pre-celiac and up till a year after the diagnosis I worked in the central lab here as a tech running blood work and other specimens on the patients. Interesting but this was a better option for me.

hermitgirl Contributor

I am a hairstylist and work at a health club. Love doing hair, club pays the bills. Going to school online. Was originally aiming towards communications, now thinking going about nutrition.

Jamie Contributor

Substitute teacher by day... personal trainer by night....

but... I'm the opposite of ALWAYS having to go to the bathroom if I injest gluten... that's my problem.. so I guess I don't really have to worry about that.

I'm very careful with what I eat when I'm at work(natural foods.. like fruits and salads) .. but if I do injest gluten.. I feel bloated and uncomfortable all day.

DakotaRN Newbie

Hi Bosque,

I am a Registered Nurse at a long term care facility. Love my job on the most part.

elye Community Regular

I teach English as a Second Language, mostly contract work for the embassies here in Ottawa. Since my celiac diagnosis four years ago, I find I am often bringing the subject of diet and nutrition into the conversational/vocabulary practises in my classes. What strikes me profoundly is how relatively ignorant North America has been in regards to the nature of this illness. I mention celiac disease to French, Italian or Spanish diplomats, and they all know about it, discuss it quite easily (minus some grammatical errors!) and talk about how common it is in their countries. We've got a long way to go. . . . ....

prayin4achange Newbie
Substitute teacher by day... personal trainer by night....

but... I'm the opposite of ALWAYS having to go to the bathroom if I injest gluten... that's my problem.. so I guess I don't really have to worry about that.

I'm very careful with what I eat when I'm at work(natural foods.. like fruits and salads) .. but if I do injest gluten.. I feel bloated and uncomfortable all day.

I'm glad someone else has said that have the C problem and not the D. I began to feel a little alone haha.. it might be a little less urgent, but extremely painful and uncomfortable none-the-less!

To answer the question, I work part-time as a clerk in a medical billing office. My job is very stree-free and without much responsibility. I did an after school elementary program last year and almost died. I could never do it all day!

Jenn

julirama723 Contributor

I'm a K-12 music teacher. This makes it INCREDIBLY difficult when I'm glutened or sick, as I don't have an aide and have a room full of expensive (and potentially dangerous!) equipment in which I can't leave children unsupervised. I also teach 9 classes a day, with few breaks, which means I am stuck in my room. When I'm glutened, I'm usually stuck in the bathroom at HOME, totally out of commission.

The kids are very sweet though, like one of the other posters had said. They know that I can't eat wheat. One day during snack time for an after-school music class, I reminded the students to clean up their areas and wash their hands well (the snack was crackers, I was practically holding my breath the whole time.) and that they couldn't touch any of the instruments. One girl forgot and touched a doorknob. She immediately said, "Oh Miss B. I am so sorry! I do not want you to get sick!" and she immediately grabbed Clorox wipes and wiped EVERYTHING she even remotely came into contact with. A few of the other students helped her! That was the cleanest my room has been in ages... :)

oceangirl Collaborator

It's so interesting to see what everyone does to make a living. I've been a professional actor (stage, film,TV and radio), director and teacher of acting at all levels for 35 years.

For the past 8 years I have also been a Special Educator in a behavioral program for students with emotional disabilities in a public high school whose goal is to ameliorate emotional and behavioral issues so students can succeed in their classrooms and in the world! Also not a good job to have when you've been glutened- you cannot tell Tammy to have her emotional breakdown at a later time because you really need to go hang out in the bathroom for a few blocks! Tra la la... fun!

On the up side: all my big, "bad", intense and troubled boys and girls all know what Celiac disease is and what the gluten molecule is and protect me fiercely from the evil gluten! They are great and I love working with teens even as I dislike all the labels ascribed to some of them.

Take care and good health to all,

lisa

songstressc Apprentice
I'm glad someone else has said that have the C problem and not the D. I began to feel a little alone haha.. it might be a little less urgent, but extremely painful and uncomfortable none-the-less!

To answer the question, I work part-time as a clerk in a medical billing office. My job is very stree-free and without much responsibility. I did an after school elementary program last year and almost died. I could never do it all day!

Jenn

I belong to the c club! i too was wondering! Previously teacher - on a sabbatical ? or life change

Roda Rising Star

I have been an X-ray/CT technologist for 14+ years and I also did mammography for 15 months. I am currently working 12hr night shifts to accomidate my boys' school schedule. I am contemplating going back to school, thinking about nutrition, or getting back into mammography. The cafeteria is not open at night so I bring all my own food. Some of my coworkers balk and can't imagine eating the food I eat. I had a thread going early on when I was diagnosed about that. Here is the link: https://www.celiac.com/gluten-free/index.ph...ic=53774&hl

FYI, if anyone is wondering, alot of the people still look at my food as weird and won't try it, but I do have a few friends that love it and can't wait to see what I bring in next for them to try. ;)

ang1e0251 Contributor

I'm a florist with my own shop and we have a coffee bar in the shop also. Makes it easy for me when I'm the boss! But..a couple of times when I was alone, I was in the bathroom when I heard the bells on the door tinkle. A customer!! Kind of embarrasing but what are you going to do?

My assistant is great and everyone around me is very understanding with food. Flower shows were a challenge but now I just take my own food and don't worry about it.

Before we bought the shop and I was dx'd, I worked at a Pizza Hut!! Only 3 days a week but that's when my symptoms were starting to really crank up, no wonder.

Things are much better now and I'm looking forward to many years of good health. Now if we can just get the economy back on track.

maile Newbie

Financial Planner, in front of clients all day long, makes bathroom trips interesting!! (I'm quite honest with my clients, trust is a big part of my job and I've found it best to be up front with my "problems" )

daveray Newbie

Hi

This was an interesting topic. It shows the diversity of this disease.

I am a psychologist.

Salax Contributor

Definitely interesting. I work at a University inside Tech Services at a Helpdesk. AKA, a computer geek.

Kind of interesting for a woman. My hubby gets a kick out of it because he brought me into the field about 9 years ago and then got out and I stayed in. B)

elonwy Enthusiast

I'm a video engineer for a post production company. My office is right next to the bathroom :). We get fed breakfast and lunch every day and dinner if we stay late and they are really good about making sure there is stuff for me to eat. They even stock the freezer with gluten free waffles and Amy's meals, its pretty awesome.

I just started night school to finish my degree from way back when, looking at going into astrogeology. Seems like a huge random change, but I got really sick the last time I was in school and dropped out....then needed to be working and making money. Now I'm feeling good and have energy and great support at home, so back to school! Figuring out the vitamin D deficiency has helped make that possible as well.

Bosque Rookie

Thanks everyone for your input. Being on sabbatical with Celiac

quietmorning01 Explorer
Thanks everyone for your input. Being on sabbatical with Celiac

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,635
    • Most Online (within 30 mins)
      7,748

    dysmathers
    Newest Member
    dysmathers
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
    • Inkie
      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.