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What Do You Do For A Living?

Bosque

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Bosque Rookie
Bosque
Posted

As many on here, I was misdiagnosed with Celiac

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quietmorning01 Explorer
quietmorning01
Posted
What do you for a living?

Hi, Bosque,

My first thought is 'you mean.. . NOOOW?' Currently I work for a software company - part time. It's a new job - I've asked what my current job title is. . .but no one seems to know. . .heh. . gopher, maybe? **laughing** I work at home two days a week and work in the office three, and pretty much can write my own hours - yeah, it fits me very well in my getting older age.

:)

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

I teach first grade. Let me tell you, I absolutely love, love, love my job but it's not the greatest job to have when you are a Celiac and you have accidently injested gluten! You can't just run to the rest room when ever you need to. When I am so tired I want to cry I have to force myself to have enough energy to handle 24 six and seven year olds. Parents are always making goodies for us and I can't eat any of them. When PTO orders pizza for us for lunch I can't have it. But, there is always a funny side. I teach cardinal directions with the sentence "Never Eat Soggy Wheat" (North, East, South, West - get it?) and my class gets a kick out of reminding me that I should never eat wheat, even if it isn't soggy. :lol:

whitball Explorer
whitball
Posted

I'm a case worker and work with adults with developmental disabilities. I cover two counties and trust me I know where every bathroom is in each part of the counties that I cover! Being a celiac has it's challenges, especially when I attend conferences. Most do not have a gluten free menu, so I often have to bring my own food. My clients often struggle with understanding my food restrictions, as they often offer their own snacks or food when I visit their homes.

Lisa16 Collaborator
Lisa16
Posted

Hi Bosque!

I am a professor at a large state university. This is the ideal job for a celiac-- you only have to physically be in one place for a couple of hours each day-- the rest of the time you can run to the bathroom all you like. Plus you get the summers off and a long holiday break. Plus the occasional sabbatical. If I didn't have this job, I would never have survived 23+ years of misdiagnosis.

Even so, there were times (before diagnosis) when I had to run out of class-- even in the middle of student presentations. Not good. Funny-- it always happened in the class after lunch. I would eat a bagel.

Now it happens only from time to time and I have many fewer sick days-- I used to get the most god-awful headaches.

JennyC Enthusiast
JennyC
Posted

I worked as an organic chemist for a while, and now I'm back in school studying clinical laboratory science, meaning that I'll be running all of the patient lab tests for hospitals, clinics, and/or reference laboratories. I am counting down the days until graduation... ;)

nasalady Contributor
nasalady
Posted
As many on here, I was misdiagnosed with Celiac
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mushroom Proficient
mushroom
Posted

I was self-diagnosed after I retired; used to be a legal assistant. Sure wish at least one of the doctors I consulted in my lifetime had had the presence of mind to consider celiac--would have saved much suffering and permanent after-effects.

blueeyedmanda Community Regular
blueeyedmanda
Posted

I work in a large hospital as a Cancer Research coordinator. Pre-celiac and up till a year after the diagnosis I worked in the central lab here as a tech running blood work and other specimens on the patients. Interesting but this was a better option for me.

hermitgirl Contributor
hermitgirl
Posted

I am a hairstylist and work at a health club. Love doing hair, club pays the bills. Going to school online. Was originally aiming towards communications, now thinking going about nutrition.

Jamie Contributor
Jamie
Posted

Substitute teacher by day... personal trainer by night....

but... I'm the opposite of ALWAYS having to go to the bathroom if I injest gluten... that's my problem.. so I guess I don't really have to worry about that.

I'm very careful with what I eat when I'm at work(natural foods.. like fruits and salads) .. but if I do injest gluten.. I feel bloated and uncomfortable all day.

DakotaRN Newbie
DakotaRN
Posted

Hi Bosque,

I am a Registered Nurse at a long term care facility. Love my job on the most part.

elye Community Regular
elye
Posted

I teach English as a Second Language, mostly contract work for the embassies here in Ottawa. Since my celiac diagnosis four years ago, I find I am often bringing the subject of diet and nutrition into the conversational/vocabulary practises in my classes. What strikes me profoundly is how relatively ignorant North America has been in regards to the nature of this illness. I mention celiac disease to French, Italian or Spanish diplomats, and they all know about it, discuss it quite easily (minus some grammatical errors!) and talk about how common it is in their countries. We've got a long way to go. . . . ....

prayin4achange Newbie
prayin4achange
Posted
Substitute teacher by day... personal trainer by night....

but... I'm the opposite of ALWAYS having to go to the bathroom if I injest gluten... that's my problem.. so I guess I don't really have to worry about that.

I'm very careful with what I eat when I'm at work(natural foods.. like fruits and salads) .. but if I do injest gluten.. I feel bloated and uncomfortable all day.

I'm glad someone else has said that have the C problem and not the D. I began to feel a little alone haha.. it might be a little less urgent, but extremely painful and uncomfortable none-the-less!

To answer the question, I work part-time as a clerk in a medical billing office. My job is very stree-free and without much responsibility. I did an after school elementary program last year and almost died. I could never do it all day!

Jenn

julirama723 Contributor
julirama723
Posted

I'm a K-12 music teacher. This makes it INCREDIBLY difficult when I'm glutened or sick, as I don't have an aide and have a room full of expensive (and potentially dangerous!) equipment in which I can't leave children unsupervised. I also teach 9 classes a day, with few breaks, which means I am stuck in my room. When I'm glutened, I'm usually stuck in the bathroom at HOME, totally out of commission.

The kids are very sweet though, like one of the other posters had said. They know that I can't eat wheat. One day during snack time for an after-school music class, I reminded the students to clean up their areas and wash their hands well (the snack was crackers, I was practically holding my breath the whole time.) and that they couldn't touch any of the instruments. One girl forgot and touched a doorknob. She immediately said, "Oh Miss B. I am so sorry! I do not want you to get sick!" and she immediately grabbed Clorox wipes and wiped EVERYTHING she even remotely came into contact with. A few of the other students helped her! That was the cleanest my room has been in ages... :)

oceangirl Collaborator
oceangirl
Posted

It's so interesting to see what everyone does to make a living. I've been a professional actor (stage, film,TV and radio), director and teacher of acting at all levels for 35 years.

For the past 8 years I have also been a Special Educator in a behavioral program for students with emotional disabilities in a public high school whose goal is to ameliorate emotional and behavioral issues so students can succeed in their classrooms and in the world! Also not a good job to have when you've been glutened- you cannot tell Tammy to have her emotional breakdown at a later time because you really need to go hang out in the bathroom for a few blocks! Tra la la... fun!

On the up side: all my big, "bad", intense and troubled boys and girls all know what Celiac disease is and what the gluten molecule is and protect me fiercely from the evil gluten! They are great and I love working with teens even as I dislike all the labels ascribed to some of them.

Take care and good health to all,

lisa

songstressc Apprentice
songstressc
Posted
I'm glad someone else has said that have the C problem and not the D. I began to feel a little alone haha.. it might be a little less urgent, but extremely painful and uncomfortable none-the-less!

To answer the question, I work part-time as a clerk in a medical billing office. My job is very stree-free and without much responsibility. I did an after school elementary program last year and almost died. I could never do it all day!

Jenn

I belong to the c club! i too was wondering! Previously teacher - on a sabbatical ? or life change

Roda Rising Star
Roda
Posted

I have been an X-ray/CT technologist for 14+ years and I also did mammography for 15 months. I am currently working 12hr night shifts to accomidate my boys' school schedule. I am contemplating going back to school, thinking about nutrition, or getting back into mammography. The cafeteria is not open at night so I bring all my own food. Some of my coworkers balk and can't imagine eating the food I eat. I had a thread going early on when I was diagnosed about that. Here is the link: https://www.celiac.com/gluten-free/index.ph...ic=53774&hl

FYI, if anyone is wondering, alot of the people still look at my food as weird and won't try it, but I do have a few friends that love it and can't wait to see what I bring in next for them to try. ;)

ang1e0251 Contributor
ang1e0251
Posted

I'm a florist with my own shop and we have a coffee bar in the shop also. Makes it easy for me when I'm the boss! But..a couple of times when I was alone, I was in the bathroom when I heard the bells on the door tinkle. A customer!! Kind of embarrasing but what are you going to do?

My assistant is great and everyone around me is very understanding with food. Flower shows were a challenge but now I just take my own food and don't worry about it.

Before we bought the shop and I was dx'd, I worked at a Pizza Hut!! Only 3 days a week but that's when my symptoms were starting to really crank up, no wonder.

Things are much better now and I'm looking forward to many years of good health. Now if we can just get the economy back on track.

maile Newbie
maile
Posted

Financial Planner, in front of clients all day long, makes bathroom trips interesting!! (I'm quite honest with my clients, trust is a big part of my job and I've found it best to be up front with my "problems" )

daveray Newbie
daveray
Posted

Hi

This was an interesting topic. It shows the diversity of this disease.

I am a psychologist.

Salax Contributor
Salax
Posted

Definitely interesting. I work at a University inside Tech Services at a Helpdesk. AKA, a computer geek.

Kind of interesting for a woman. My hubby gets a kick out of it because he brought me into the field about 9 years ago and then got out and I stayed in. B)

elonwy Enthusiast
elonwy
Posted

I'm a video engineer for a post production company. My office is right next to the bathroom :). We get fed breakfast and lunch every day and dinner if we stay late and they are really good about making sure there is stuff for me to eat. They even stock the freezer with gluten free waffles and Amy's meals, its pretty awesome.

I just started night school to finish my degree from way back when, looking at going into astrogeology. Seems like a huge random change, but I got really sick the last time I was in school and dropped out....then needed to be working and making money. Now I'm feeling good and have energy and great support at home, so back to school! Figuring out the vitamin D deficiency has helped make that possible as well.

Bosque Rookie
Bosque
Posted
  • Author

Thanks everyone for your input. Being on sabbatical with Celiac

quietmorning01 Explorer
quietmorning01
Posted
Thanks everyone for your input. Being on sabbatical with Celiac

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    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
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      Gluten free beer ?

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    • trents
      Patiently Waiting to See Results

      By trents · Posted

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