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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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Gemini last won the day on February 20

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  1. As with the gluten free diet, there is a learning curve to using one of these and you have to read all instructions on its use.
  2. I think the NIMA would be best suited for use in restaurants and not so much for pre-packaged foods. It is also very important to read all directions before using as there are limitations, which are clearly stated, to it's use. I never worry about pre-packaged foods because I choose my processed foods wisely. If a company is labeling their food as gluten free, then they must test so they are already doing the testing for you. The only time I was ever sick from a processed food was in the very beginning and it was a brand that became known for some issues with people getting sick. After 12 years, knowing what is safe becomes second nature. Restaurant food, when traveling, is my only concern. Again, I choose my places wisely from folks who have vetted these places and reported them on reputable Celiac websites. I also take into consideration how I am treated when there and answers to questions asked on food prep. You cannot rely on a single source for safety when deciding on whether food is safe to eat. The NIMA team clearly states that their tester will not work on soy sauce or fermented foods so testing Asian foods will not be reliable. But with most other types of cuisine, as long as they don't contain some of the ingredients listed as a problem, testing should be straight forward. No one should have the expectation it will test as well as an ELISA lab test but used as a tool in the total decision making process, it can be a great resource. I am keeping track of every restaurant meal I test when traveling and whether or not I think it may have been wrong, depending on how I feel the next day. I always know if I have been glutened, which is not very scientific but if the NIMA says safe and I get sick, that will give me some useful information. I think this device is pretty damn good for a first try and I really think down the road, we will have VERY accurate testing means available to help us dine out more easily. I think that far more likely to happen than anyone coming up with the cure that they keep touting about. Funny enough...I am not remotely interested in a cure but would like accurate testing for dining out when traveling. That's the only time I worry about a hit.
  3. You can come with me anytime! We could all eat at Côte and make piggies of ourselves! Ha, Ha!
  4. I am glad you found a Côte near you! Honestly, I really trust these people. You cannot eat out 10 times over 2 trips and not get sick at all if they weren't reliable. I always know when I have been hit because the symptoms only happen when I am glutened. Do your usual Celiac spiel when ordering but I have eaten at multiple locations and it was all good! I hope you have the same experience. Their food is delicious. Thank you for the additional tips on safe places to eat. I have heard of Franky and Bennie's from other people but have not seen one yet but can check on locations. It is nice to have less expensive options when traveling because I do spend a lot of money on food........I guess it is better to spend more and be safe but other options are always welcome. I forgot to add.........feel free to post away on recommending this place. I posted a review on Tripadvisor myself!
  5. You know......that is something I was wondering myself. The "what if" moment when you test food in a restaurant and it comes back as a fail. Personally, I think I would very nicely show them the results and see what the reaction was. I am not sure I would eat any food from that restaurant because I also know what can happen when a chef's meal is questioned. The bottom line is that I would scratch off that restaurant from my list of safe places to eat, without causing too much of a fuss at the restaurant. If they cannot get the meal right on the first go, I am done with them. I do tend to eat out in known safe places when I travel. The only places I would test are new places. There is a chain in Britain called Côte, which does French peasant type food. They have one of the best gluten-free menu's I have ever seen anywhere. The staff are well trained and I never have had any stupid looks or questions when ordering. I have eaten there at least 10 times over 2 trips and never had the slightest problems. The food is delicious too! The French are such foodies that I have always been able to trust their menu's and cooking. We will be in London for a week this May and I intend on eating there repeatedly. They do breakfast, lunch and dinner and it's a safe place to get a fantastic breakfast out, which I find harder to do than dinner. So, this morning I feel fine. No problems from the soup I tested yesterday.......small victories are great!
  6. Just because a product in produced in a shared facility does not mean it is contaminated. The possibility of it being cc'd increases with shared lines. Big difference. I know some people do not believe this but I have been gluten-free for a dozen years, am incredibly sensitive, and do eat some products from shared facilities with zero issues in 12 years. That would never be possible if everything were contaminated with wheat.
  7. I wanted to point out that NIMA is not validated for use on anything non-food, including cosmetics and medications. It clearly states that in the directions. I went to use mine today and read everything they sent and noticed this. So, the results won't mean much and you don't want to use the capsules on things that cannot be tested reliably. They are too expensive. Maybe on future models that feature will be available. So, I tried it out on something that I thought it was a good use for and geez.......these things are very cool! I love soup and sometimes do not have time to make soup myself. Whole Foods makes some soup that has no gluten ingredients but I was hesitant to try it out for fear of it being cc'd. Today it was lentil and the fear was them using lentils that might have other grains floating around in them. I first stirred the soup up to incorporate all the ingredients well. The soup was very thick so it was easier to test than more liquid soups. Popped it into the capsule and let it rip. Tested safe! As there were minimal ingredients in it and all were naturally gluten-free, I decided to give it a go. It was delicious and so far, I feel fine. I'll have to post if this experiment ends in disaster but I think all is good!
  8. I totally agree with you on this post! I think the Gluten Free Watchdog is a great source of truthful information too. Gluten Dude seems to still struggle with the diet and wellness and he's been doing this for far too long for that to be. I could say more but I won't. Liability is probably a factor in his blog posts too, as it is with all things in the US today. Too bad, because liability is what is keeping our country from doing as well with the gluten free offerings as Europe does. People should not fear lawsuits because they state their opinion. I think, for me, having the NIMA in a foreign country would be very helpful. I think I would feel a lot better about my food if I tested the entire plate and found it to be safe. This is the first go round with this device so I am sure they will improve reliability in future. It's more appealing than playing Russian Roulette....I lost that game a couple of times on trips! I am hoping that cost will come down also so more people can afford to buy one if they wanted.
  9. SWEET!!!!!! I am so glad you found it fairly easy to vacation there. I have always wanted to go to Machu Picchu and did know that their diet was not totally gluten based but that does not mean it is easy to travel with Celiac. Now I know that the trip is very possible. I love corn and potatoes so that helps. It's funny.....people say the same things about big cities anywhere. Many people speak English, which is good because I don't speak Spanish either. Thank you for all this information!
  10. Neuro symptoms take the longest to disappear/improve. Those were the last to go when I went gluten free and it took a couple of years for that to happen. You are in the beginning stages of recovery so be patient and things will slowly, over time, improve. I had the same dizziness, off balance symptom and it was really bad. It's all a thing of the past! As far as gastro doctors go, it is common for them to disagree on a number of things. I don't know why, but they seem to like to discount or bash other doctors opinions. It is not uncommon to have a negative blood panel. I have been gluten-free for 12 years and I have lost count of the numbers who tested negative on blood work and positive on biopsy. Certain medications can interfere with testing and many never check to see what people are taking. I became so disgusted with their attitude and lack of help that, to this day, I do not have a GI doctor. Since I went gluten-free and my gut healed, all has been well so I don't need one. I also have thyroid disease and that can wreak havoc with symptoms if you don't have that well managed. It took awhile for me to nail everything down so don't will get better!
  11. How easy was it to eat in Peru? I know their diet is heavy on corn so thought it might be do-able. I mean, who doesn't want to see Machu Picchu? This is why I bought one. There are countries I would like to visit but need to know if I can eat safely.
  12. Very good, JMG! It's been a long time since I saw that. Monty Python were some of the best!
  13. NIMA is a very handy tool to have when traveling. I think many of the issues may be due to inexperience with testing protocol. There is a right way to do it and I wonder how many people actually read the information on it before they use it? It has limitations as far as what can be tested but overall, if I were sitting in a restaurant in a foreign country where English was not the first language, I will be very glad to have the NIMA there to test my food. The inventors issued a statement saying that it is just another useful tool to use when making your decisions about what is safe to eat. That includes ingredients and prep protocol. I probably would not have bought a NIMA if I didn't travel internationally. But I think it will make things vastly easier when in countries where it will be more difficult to ensure a safe meal out. Gluten Dude is not the first choice in whose opinions I trust about gluten-free anything. Some of his statements made on his website sometimes make me wonder if he really knows much about living gluten free correctly.
  14. Ha,! I think that definitely has something to do with it. I also think that the toys have taken some common sense out of nursing/ least for the more recent graduates. They rely too much on the toys/machines. Hospital stays have become very automated and many people I have spoken to are not that happy about the experience. I, personally, detest that automatic blood pressure cuff. I normally have higher BP around those white coats so the one time they used one on me, it kept alarming out. The more it did that, the more annoyed I became....a vicious circle. I mean, do you really need to know someone's BP every minute? That thing ended up being removed.....
  15. But why, all of a sudden, do they need to know your O2 levels when a person clearly does not have a problem? The minute you walk in now they have all this stuff they do and I find it annoying. I can see for people with known medical issues affecting these numbers but they know me and they know I work out. I figured it was the "getting near to the 60 number in a couple of years", when they treat you like a senior citizen all of a sudden. My older girlfriends have warned me about that and I guess they are right! I won't say anything the next time and see if what you said comes up. Thanks for the info because I did not know that!