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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gemini

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  1. Just because a product in produced in a shared facility does not mean it is contaminated. The possibility of it being cc'd increases with shared lines. Big difference. I know some people do not believe this but I have been gluten-free for a dozen years, am incredibly sensitive, and do eat some products from shared facilities with zero issues in 12 years. That would never be possible if everything were contaminated with wheat.
  2. I wanted to point out that NIMA is not validated for use on anything non-food, including cosmetics and medications. It clearly states that in the directions. I went to use mine today and read everything they sent and noticed this. So, the results won't mean much and you don't want to use the capsules on things that cannot be tested reliably. They are too expensive. Maybe on future models that feature will be available. So, I tried it out on something that I thought it was a good use for and geez.......these things are very cool! I love soup and sometimes do not have time to make soup myself. Whole Foods makes some soup that has no gluten ingredients but I was hesitant to try it out for fear of it being cc'd. Today it was lentil and the fear was them using lentils that might have other grains floating around in them. I first stirred the soup up to incorporate all the ingredients well. The soup was very thick so it was easier to test than more liquid soups. Popped it into the capsule and let it rip. Tested safe! As there were minimal ingredients in it and all were naturally gluten-free, I decided to give it a go. It was delicious and so far, I feel fine. I'll have to post if this experiment ends in disaster but I think all is good!
  3. I totally agree with you on this post! I think the Gluten Free Watchdog is a great source of truthful information too. Gluten Dude seems to still struggle with the diet and wellness and he's been doing this for far too long for that to be. I could say more but I won't. Liability is probably a factor in his blog posts too, as it is with all things in the US today. Too bad, because liability is what is keeping our country from doing as well with the gluten free offerings as Europe does. People should not fear lawsuits because they state their opinion. I think, for me, having the NIMA in a foreign country would be very helpful. I think I would feel a lot better about my food if I tested the entire plate and found it to be safe. This is the first go round with this device so I am sure they will improve reliability in future. It's more appealing than playing Russian Roulette....I lost that game a couple of times on trips! I am hoping that cost will come down also so more people can afford to buy one if they wanted.
  4. SWEET!!!!!! I am so glad you found it fairly easy to vacation there. I have always wanted to go to Machu Picchu and did know that their diet was not totally gluten based but that does not mean it is easy to travel with Celiac. Now I know that the trip is very possible. I love corn and potatoes so that helps. It's funny.....people say the same things about big cities anywhere. Many people speak English, which is good because I don't speak Spanish either. Thank you for all this information!
  5. Neuro symptoms take the longest to disappear/improve. Those were the last to go when I went gluten free and it took a couple of years for that to happen. You are in the beginning stages of recovery so be patient and things will slowly, over time, improve. I had the same dizziness, off balance symptom and it was really bad. It's all a thing of the past! As far as gastro doctors go, it is common for them to disagree on a number of things. I don't know why, but they seem to like to discount or bash other doctors opinions. It is not uncommon to have a negative blood panel. I have been gluten-free for 12 years and I have lost count of the numbers who tested negative on blood work and positive on biopsy. Certain medications can interfere with testing and many never check to see what people are taking. I became so disgusted with their attitude and lack of help that, to this day, I do not have a GI doctor. Since I went gluten-free and my gut healed, all has been well so I don't need one. I also have thyroid disease and that can wreak havoc with symptoms if you don't have that well managed. It took awhile for me to nail everything down so don't worry...you will get better!
  6. How easy was it to eat in Peru? I know their diet is heavy on corn so thought it might be do-able. I mean, who doesn't want to see Machu Picchu? This is why I bought one. There are countries I would like to visit but need to know if I can eat safely.
  7. Very good, JMG! It's been a long time since I saw that. Monty Python were some of the best!
  8. NIMA is a very handy tool to have when traveling. I think many of the issues may be due to inexperience with testing protocol. There is a right way to do it and I wonder how many people actually read the information on it before they use it? It has limitations as far as what can be tested but overall, if I were sitting in a restaurant in a foreign country where English was not the first language, I will be very glad to have the NIMA there to test my food. The inventors issued a statement saying that it is just another useful tool to use when making your decisions about what is safe to eat. That includes ingredients and prep protocol. I probably would not have bought a NIMA if I didn't travel internationally. But I think it will make things vastly easier when in countries where it will be more difficult to ensure a safe meal out. Gluten Dude is not the first choice in whose opinions I trust about gluten-free anything. Some of his statements made on his website sometimes make me wonder if he really knows much about living gluten free correctly.
  9. Ha, Ha......toys! I think that definitely has something to do with it. I also think that the toys have taken some common sense out of nursing/doctoring.......at least for the more recent graduates. They rely too much on the toys/machines. Hospital stays have become very automated and many people I have spoken to are not that happy about the experience. I, personally, detest that automatic blood pressure cuff. I normally have higher BP around those white coats so the one time they used one on me, it kept alarming out. The more it did that, the more annoyed I became....a vicious circle. I mean, do you really need to know someone's BP every minute? That thing ended up being removed.....
  10. But why, all of a sudden, do they need to know your O2 levels when a person clearly does not have a problem? The minute you walk in now they have all this stuff they do and I find it annoying. I can see for people with known medical issues affecting these numbers but they know me and they know I work out. I figured it was the "getting near to the 60 number in a couple of years", when they treat you like a senior citizen all of a sudden. My older girlfriends have warned me about that and I guess they are right! I won't say anything the next time and see if what you said comes up. Thanks for the info because I did not know that!
  11. http://Www.quattrobimbi.com. Take a look at this site. It's where I buy my dry pasta. All the brands are very good........very close to real pasta. The owner is real Italian and imports everything from Italy. Enjoy!
  12. Those little Ghirardelli squares of deliciousness are an outstanding choice. Ghirardelli clearly marks everything for allergy content. As with everything you do now, make sure to read the labels but the caramel filled ones, both dark and milk chocolate, are to die for. There are also the mint ones and the raspberry filled. I could sit and eat the whole bag! You will learn that there are no guarantee's in life for 100% gluten-free food, except anything naturally gluten-free. That in no way means they will make you sick. I was one of the skinny Celiac's who was 20 pounds underweight at diagnosis. My gut was totally trashed. I really needed to gain weight so I did buy gluten-free bread and some mixes to try. Many people advise against that but you know what? I found that as long as I used certified or dedicated line foods, I had no trouble. I ate gluten-free bread right away, toasted. I made gluten-free brownies the third week and ate small amounts without any issues. From the moment I went gluten-free, I did not have any set backs and ever so slowly, got better. The only set back that occurred, strangely enough, was 2 years into the diet when dairy became a problem. I think my gut was healing well and now I noticed the dairy problem. My advice to most is if you want the damn cookie, eat it. If it bothers you, wait a while and try again. The only time I got sick was when I was glutened or cc'd, due to a lack of experience. That didn't happen too often because I HATE being sick. Do not be afraid of food. If you need to gain, go for some processed stuff because you will never gain weight eating whole foods only. Try the Udi's bagels, toasted with peanut butter and banana. Or make an egg sandwich with one. I put veggies or smoked salmon in there too......YUM! The King Arthur line of gluten-free mixes are produced in a dedicated facility so no cc....they are safe! The brownie, cookie and banana bread mixes are delicious! They also have a doughnut mix but I haven't found it yet. I think it has my name all over it...... http://www.kingarthurflour.com/essentials/gluten-free
  13. As another post menopausal woman, I do not keep my house warm. Never have. I run the thermostat at 66-67 degrees, in wintah. I live a life of contradiction. I start to sweat if the heat is set higher than that. I never have a problem with my hands or feet at those temps. but then again, I am so used to having cool hands and feet that it seems normal to me. But they do not blanch at those temps.
  14. Geez...I didn't realize I wrote so much! Sorry for the book but you can't always give advice in one paragraph!
  15. jherm........welcome to the forum! I can offer up some advice on a number of issues you have as I had/have the same problems. I have Celiac, Hashi's thyroid disease, Reynaud's and Sjogren's Syndrome. Yes, I did lose the genetic lottery, didn't I? I have been diagnosed and strictly gluten-free for 12 years this April. As stated by cyclinglady, time will heal things but you must realize that by time we mean anywhere from 1-3 years. I will add that the longer I am gluten-free, as each year passes, I improve and now I feel as normal as anyone else out there without all my problems. I am also disgustingly optimistic...which really does help. Humor is another favorite of mine. The dizziness was a HUGE problem for me and that can come from a number of different causes. I mean, room upending, gotta sit on the floor kind of dizzy. I was severely anemic at time of diagnosis and for a long time before that. I am sure that contributed to the problem but gluten can have neurological effects on the body so that's another thing that will take time to heal. Blood sugar issues....ditto. I had a couple of major episodes with reactions (I am not diabetic) where I passed out but it all was due to undiagnosed Celiac and every one of those things disappeared, over time, after going gluten free. Please do not get really worried about it because these are common symptoms for many of us. When you are not absorbing your food properly, it wreaks havoc with blood sugar. My advice would be to eat frequent small meals with protein at every one. Get your good fats in there also but small amounts, as fat is the hardest food to digest. Eat fruits and veggies freely, as long as they don't bother you. Invest in digestive enzymes for awhile as they will help you to break down your food. Your body is not doing that properly right now. Take one with every big meal you eat, in the beginning. Make sure they are gluten-free. I used Digest Gold from Enzymedica but they are pricey so any good enzyme that is gluten-free will do fine. This is important advice I give to everyone. Your doctor needs to keep treating your thyroid, while keeping track of levels much more frequently as you heal. Your TSH is VERY high. Anything over 2.5 is treatable thyroid disease. These new ranges are not observed by all physicians. They also need to check your actual hormone levels which are Free T3 and T4....the total number. Press for them to do so. Checking only the TSH is half ass medicine. She may be correct in that your thyroid will normalize, over time, but mine didn't. I went too long with undiagnosed Celiac and now I have a half ass thyroid. Mine was also autoimmune, though. Your thyroid controls metabolism so if she does not treat it while you heal, it will slow everything down.....including your healing. Reynaud's Disease........pain in the ass but it can be improved. One of the biggest differences in my symptoms occurred with healing. Over time....sorry if I keep on about that........things got better. The blanching of my fingers and toes got less and less with time on the gluten-free diet. You are calming your overactive immune system down so the attacks should get less frequent and milder. After 4 years on the diet, I was energetic enough to start a rigorous exercise program. Had to because I also have osteoporosis in my spine. Yeah, I know, I look bad on paper but if you met me, you would be surprised that I don't look like I'm falling apart. Turns out, it was the best thing I ever did. Exercise REALLY helped the Reynaud's symptoms. Get all that blood pumping and amazing things happen. Exercise is one the single best things anyone with autoimmune problems can do. I was too weak for the first 4 years on the diet to do much of anything but walk or hike but I do half an hour of weight training and half an hour of cardio twice a week and it has helped me build muscle I never had, improved my balance, greatly improved my mental well being...and the list goes on and on. When you feel better and get some energy back, think about making it a way of life and you will not regret it. I still have some symptoms with Reynaud's but much milder and not as frequent as before diagnosis, which is amazing considering I live in New England and it's cold here right now. I actually love snow and cold and was not going to let Reynaud's prevent me from playing in the snow. The exercise has also helped my osteo. I have not lost any height, which amazes the docs because usually, those with it in their spine lose height as they age. I will be 58 years old in June and I consider it a success! Compression stockings are great if you have circulatory issues. I do because I am very small and have Reynaud's. I wear them from time to time but it really doesn't do wonders for the symptoms of Reynaud's. The exercise did and keeping fingers and toes warm. What cyclinglady said about those stupid gadgets doctors all use now because, really, you will die if they don't know your oxygen levels these days.......she says with sarcasm........she's right! They rarely work on me because of the Reynaud's. So, don't think you are dying or anything because pulse or oxygen doesn't register correctly. I give them one chance to do so and if it doesn't work then I tell them we are done. Not many people really understand this stuff. It gets annoying. I hope this has helped and know that you are not alone. It will get better, I promise. Just make sure that everything you put in your mouth is really gluten free and be patient. You may still have D because you are making small mistakes that we all make in the beginning or you are eating too much fiber and it is hard on your gut. I would suggest taking a good probiotic to help populate your gut with good bacteria. There may not be any and that isn't helping the D. Bananas are good for binding. Cheese is also but you are cutting out dairy for now. I get that. I have to eat dairy lite because large doses still kill me after all these years. But I can tolerate small amounts of good cheese, thank God! If you have any more questions, we are here to help!